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Biopsy Result today!

User
Posted 14 Jan 2024 at 11:13

So went to hospital this morning to get the results of my biopsy in December, always thought that I had cancer there but pleased with the results personally 

So my results were as follows for me…

28 Biopsy samples taken, 4 showed cancer, 24 were clear.
Gleason score of 3+4
T2 - N0 - MX
CPG 2
Cancer Localised to prostate.

Was told all options open to me, but I’m going on active surveillance so blood test in April then another in July before an out patient appointment and then MRI in 18 months.

Was told I can change my mind at anytime if I decide to go ahead with any treatment options.

Seems like a positive outcome hopefully 

User
Posted 14 Jan 2024 at 14:08

Hi Richard

That is great news. I think you are one of the lucky ones whose cancer has been detected early.

The only aspect that would worry me is that you are delaying or made to delay an MRI assessment for 18 months. Gleason score, whilst being a reasonable assessment , is not always an accurate assessment. Quite often some men find that the post surgery assessment of Gleason score is found to be higher (occasionally lower!). Gleason score does not tell you accurately how wide spread the cancer is, because it is a subjective assessment by pathologists; MRI assessment will also show if the margins around the prostate gland are clear. This is just my opinion, both from personal experience and reading about other men's experiences.

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 14 Jan 2024 at 15:09
Hi Adrian,

Richard had previously said in early November: 'So following a raised PSa of 7.4 then going down to 6.5'

Well done, Richard, those are EXCELLENT results. Almost as good I'm sure as you could possibly have wished for. Now it's time just to protect those healthy margins. I'm sure you will.

Cheers, Bruce

User
Posted 15 Jan 2024 at 14:16

Originally Posted by: Online Community Member

Consultant did say she has a patient who’s been on AS for 12 years & another for 8 so that seems positive too.πŸ™‚

Hi Richard.

As I said, I totally respect your decision. I elected to go on AS. Why would anyone have anything done when extra treatment may not be needed? As I remember, almost 70% of patients stay on AS and don't have radical treatment, as their disease remains stable. My only word of caution is don't solely rely on PSA checks, mine remained steady, yet the disease significantly progressed. Make sure you have have other checks MRI's etc, whilst your condition is be monitored.

Adrian

Edited by member 15 Jan 2024 at 14:17  | Reason: Not specified

User
Posted 15 Jan 2024 at 21:42

A very good idea to be on AS particularly with the wedding coming up. I assume your life expectancy without cancer would be 87. With your age being 65 and a bit of Gleason 4. I suspect you will need treatment at some point in the next 22 years. As Adrian has found out Active Surveillance does not stop the cancer from sneaking up on you, even though it is supposedly being watched closely. At the moment you would probably be eligible for LDR brachy which would be a minimally invasive procedure in a few years that may not be the case.

Enjoy your life whilst you're relatively young, continent and potent, but switch to a more radical treatment the moment things start to look more risky.

Dave

User
Posted 31 Jan 2024 at 19:19

Hi Richard

Short answer is yes. I got diagnosed at the end of August, but recently decided I’d like to see a copy of my report, for the same reasons as you. I phoned the specialist nurse and they printed it off and posted it out to me the next day. You shouldn’t have any trouble getting it mate.

They make interesting reading. I discovered that they found perineural invasion in one sample, and cribriform/IDC in another. None of this had been mentioned to me before. 
Anyway, let us know how you get on πŸ‘

Ian.

User
Posted 14 Jan 2024 at 11:13

So went to hospital this morning to get the results of my biopsy in December, always thought that I had cancer there but pleased with the results personally 

So my results were as follows for me…

28 Biopsy samples taken, 4 showed cancer, 24 were clear.
Gleason score of 3+4
T2 - N0 - MX
CPG 2
Cancer Localised to prostate.

Was told all options open to me, but I’m going on active surveillance so blood test in April then another in July before an out patient appointment and then MRI in 18 months.

Was told I can change my mind at anytime if I decide to go ahead with any treatment options.

Seems like a positive outcome hopefully 

User
Posted 14 Jan 2024 at 12:46

Wow, that’s a long time to wait for your biopsy results Richard, I hope you’ve not been too stressed over it.

I can’t really offer any advice as to whether active surveillance is the right choice for you but at least your options are open, and the only thing I would say is that if treatment IS required, go ahead with it whilst ALL the options of radical treatment are still open to you. I wish I had got checked sooner, but you know…… COVID….

Best of luck and stay positiveπŸ’ͺπŸ’ͺπŸ’ͺ

Derek

User
Posted 14 Jan 2024 at 14:31

Originally Posted by: Online Community Member

Seems like a positive outcome hopefully 

Indeed, your results seem fantastic and could have been so much worse. Can you tell us what your PSA levels are and can you confirm that your tumour is unilateral disease, that is one place in your prostate, and have you got reasonable safety margins? 

I respect your choice of going on active surveillance, it's the initial choice I made. My advice would be to ensure that whilst on it, you have regular PSA checks and follow up DREs and MRIs.

All the best mate.

Adrian

 

Edited by member 14 Jan 2024 at 14:41  | Reason: Not specified

User
Posted 14 Jan 2024 at 15:26
I would take that as a 'win' but you do have Prostate Cancer and it's not going to get any better. It will deteriorate and your diagnosis at this point is still a 'guesstimate' - my 3+4 became 4+5 when it was removed.

I know that AS is a very appealing option but you are now in the best position that you will ever be for a 100% curative procedure so maybe now is the time to think very carefully about this. Delaying the inevitable may not be the best decision.

Sorry to sound like a hard a*** but I just feel that it needs stressing that your best position to be in is now.

User
Posted 15 Jan 2024 at 18:14

I can’t comment on RP other than to say most of the guys that I know well from Maggies are happy that they chose that route, even though they have incontinence and ED issues long after the Op. Neither would I wish HT/RT even on my worst enemy, but there again if it’s going to cure me I will just have to live with it….and some men seem to get off lightly with side effects.🀷🏼‍♂️ I can only say that I WISH I had a Choice of treatment even though neither is an easy option, so the importance of close monitoring is VERY important.

All the best,

Derek

User
Posted 14 Jan 2024 at 20:26

I think Steve is offering very valuable advice, Richard - just observing other reports from the AS broadside - and it does seem to be VERY broad indeed. Many it seems ultimately have unfortunate twists and find themselves losing options.  You may well come to determine that there is no time like the present .... just so you can rest for surety's sake ... for the remainder of what I'm certain will be a long life. Happy New Year to you and yours.  

Edited by member 14 Jan 2024 at 20:28  | Reason: Not specified

User
Posted 15 Jan 2024 at 13:42

Hi guys thank you for the comments on my post, yes I am more than pleased with those biopsy results and happy to take the active surveillance option initially. Reason behind this is that my daughter is getting married in the summer & I didn’t want to be recovering from any surgery or radiotherapy while walking her down the aisle.

i did mention to the consultant that I will more than likely go with the surgery option after Xmas but as my results were pretty good I wanted to hold fire with that option this year. My cancer is contained on the apex of the prostate & nowhere else according to the mri results and with only 4 of the 28 biopsies showing cancer I feel going on AS this year is the right choice.

Consultant did say she has a patient who’s been on AS for 12 years & another for 8 so that seems positive too.πŸ™‚

User
Posted 15 Jan 2024 at 19:02

Like Derek says h/t effects everyone differently I found it very tolerable I worked all the way through it and even managed to carry on my 6 a side football every week not sure why some suffer more than others πŸ€”

Show Most Thanked Posts
User
Posted 14 Jan 2024 at 12:46

Wow, that’s a long time to wait for your biopsy results Richard, I hope you’ve not been too stressed over it.

I can’t really offer any advice as to whether active surveillance is the right choice for you but at least your options are open, and the only thing I would say is that if treatment IS required, go ahead with it whilst ALL the options of radical treatment are still open to you. I wish I had got checked sooner, but you know…… COVID….

Best of luck and stay positiveπŸ’ͺπŸ’ͺπŸ’ͺ

Derek

User
Posted 14 Jan 2024 at 14:08

Hi Richard

That is great news. I think you are one of the lucky ones whose cancer has been detected early.

The only aspect that would worry me is that you are delaying or made to delay an MRI assessment for 18 months. Gleason score, whilst being a reasonable assessment , is not always an accurate assessment. Quite often some men find that the post surgery assessment of Gleason score is found to be higher (occasionally lower!). Gleason score does not tell you accurately how wide spread the cancer is, because it is a subjective assessment by pathologists; MRI assessment will also show if the margins around the prostate gland are clear. This is just my opinion, both from personal experience and reading about other men's experiences.

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 14 Jan 2024 at 14:31

Originally Posted by: Online Community Member

Seems like a positive outcome hopefully 

Indeed, your results seem fantastic and could have been so much worse. Can you tell us what your PSA levels are and can you confirm that your tumour is unilateral disease, that is one place in your prostate, and have you got reasonable safety margins? 

I respect your choice of going on active surveillance, it's the initial choice I made. My advice would be to ensure that whilst on it, you have regular PSA checks and follow up DREs and MRIs.

All the best mate.

Adrian

 

Edited by member 14 Jan 2024 at 14:41  | Reason: Not specified

User
Posted 14 Jan 2024 at 15:09
Hi Adrian,

Richard had previously said in early November: 'So following a raised PSa of 7.4 then going down to 6.5'

Well done, Richard, those are EXCELLENT results. Almost as good I'm sure as you could possibly have wished for. Now it's time just to protect those healthy margins. I'm sure you will.

Cheers, Bruce

User
Posted 14 Jan 2024 at 15:26
I would take that as a 'win' but you do have Prostate Cancer and it's not going to get any better. It will deteriorate and your diagnosis at this point is still a 'guesstimate' - my 3+4 became 4+5 when it was removed.

I know that AS is a very appealing option but you are now in the best position that you will ever be for a 100% curative procedure so maybe now is the time to think very carefully about this. Delaying the inevitable may not be the best decision.

Sorry to sound like a hard a*** but I just feel that it needs stressing that your best position to be in is now.

User
Posted 14 Jan 2024 at 20:26

I think Steve is offering very valuable advice, Richard - just observing other reports from the AS broadside - and it does seem to be VERY broad indeed. Many it seems ultimately have unfortunate twists and find themselves losing options.  You may well come to determine that there is no time like the present .... just so you can rest for surety's sake ... for the remainder of what I'm certain will be a long life. Happy New Year to you and yours.  

Edited by member 14 Jan 2024 at 20:28  | Reason: Not specified

User
Posted 15 Jan 2024 at 13:42

Hi guys thank you for the comments on my post, yes I am more than pleased with those biopsy results and happy to take the active surveillance option initially. Reason behind this is that my daughter is getting married in the summer & I didn’t want to be recovering from any surgery or radiotherapy while walking her down the aisle.

i did mention to the consultant that I will more than likely go with the surgery option after Xmas but as my results were pretty good I wanted to hold fire with that option this year. My cancer is contained on the apex of the prostate & nowhere else according to the mri results and with only 4 of the 28 biopsies showing cancer I feel going on AS this year is the right choice.

Consultant did say she has a patient who’s been on AS for 12 years & another for 8 so that seems positive too.πŸ™‚

User
Posted 15 Jan 2024 at 14:16

Originally Posted by: Online Community Member

Consultant did say she has a patient who’s been on AS for 12 years & another for 8 so that seems positive too.πŸ™‚

Hi Richard.

As I said, I totally respect your decision. I elected to go on AS. Why would anyone have anything done when extra treatment may not be needed? As I remember, almost 70% of patients stay on AS and don't have radical treatment, as their disease remains stable. My only word of caution is don't solely rely on PSA checks, mine remained steady, yet the disease significantly progressed. Make sure you have have other checks MRI's etc, whilst your condition is be monitored.

Adrian

Edited by member 15 Jan 2024 at 14:17  | Reason: Not specified

User
Posted 15 Jan 2024 at 18:14

I can’t comment on RP other than to say most of the guys that I know well from Maggies are happy that they chose that route, even though they have incontinence and ED issues long after the Op. Neither would I wish HT/RT even on my worst enemy, but there again if it’s going to cure me I will just have to live with it….and some men seem to get off lightly with side effects.🀷🏼‍♂️ I can only say that I WISH I had a Choice of treatment even though neither is an easy option, so the importance of close monitoring is VERY important.

All the best,

Derek

User
Posted 15 Jan 2024 at 19:02

Like Derek says h/t effects everyone differently I found it very tolerable I worked all the way through it and even managed to carry on my 6 a side football every week not sure why some suffer more than others πŸ€”

User
Posted 15 Jan 2024 at 21:42

A very good idea to be on AS particularly with the wedding coming up. I assume your life expectancy without cancer would be 87. With your age being 65 and a bit of Gleason 4. I suspect you will need treatment at some point in the next 22 years. As Adrian has found out Active Surveillance does not stop the cancer from sneaking up on you, even though it is supposedly being watched closely. At the moment you would probably be eligible for LDR brachy which would be a minimally invasive procedure in a few years that may not be the case.

Enjoy your life whilst you're relatively young, continent and potent, but switch to a more radical treatment the moment things start to look more risky.

Dave

User
Posted 31 Jan 2024 at 18:13

Guys, just a quick question regarding my results. Can I ask the hospital for a copy of my biopsy results to see what the percentage of my positive 4 cores were & how they got the 3+4 Gleason, CPG 2 from my four positive cores from twenty eight taken.

I would like to keep a record of this journey.

User
Posted 31 Jan 2024 at 19:19

Hi Richard

Short answer is yes. I got diagnosed at the end of August, but recently decided I’d like to see a copy of my report, for the same reasons as you. I phoned the specialist nurse and they printed it off and posted it out to me the next day. You shouldn’t have any trouble getting it mate.

They make interesting reading. I discovered that they found perineural invasion in one sample, and cribriform/IDC in another. None of this had been mentioned to me before. 
Anyway, let us know how you get on πŸ‘

Ian.

User
Posted 31 Jan 2024 at 22:18

Thanks for that, I’ll drop them an email tomorrow and askπŸ‘πŸΌ

 
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