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Toilet accidents

User
Posted 04 Apr 2024 at 00:49

Hi . Apologies for the subject . But my husband is 81 and has got prostrate cancer … and alzimers. … he has no recollection of being diagnosed and at the time wouldnt accept any treatment for either problems. ..  so far I’ve coped .., but to date he’s had 3 accidents involving toilet mishaps ie;  not getting there in time and trying to cover up the accident ,,,but leaving signs … which I have to clean up . And wait until he goes to bed to get the clothes in the wash … How can I get him to wear incontinence pants etc when ,,,he insists he’s well …and that it wasn’t him who  made the mess .  And there’s nothing wrong with me I feel great. Is what he keeps saying … total denial . It’s just me at home .. I’m aged 78 with COPD and arthritis . He was always stubborn and a bury your head in the sand kind of man..  I  cant make him have treatment and he wouldn’t allow carers  etc in .  … I think I need to speak to his DR and insist he makes my husband understand his illnesses ..  somehow .  as I don’t know how long I can cope alone ..  .OR IS that too cruel . ? I would appreciate your advise . 

 

User
Posted 04 Apr 2024 at 00:49

Hi . Apologies for the subject . But my husband is 81 and has got prostrate cancer … and alzimers. … he has no recollection of being diagnosed and at the time wouldnt accept any treatment for either problems. ..  so far I’ve coped .., but to date he’s had 3 accidents involving toilet mishaps ie;  not getting there in time and trying to cover up the accident ,,,but leaving signs … which I have to clean up . And wait until he goes to bed to get the clothes in the wash … How can I get him to wear incontinence pants etc when ,,,he insists he’s well …and that it wasn’t him who  made the mess .  And there’s nothing wrong with me I feel great. Is what he keeps saying … total denial . It’s just me at home .. I’m aged 78 with COPD and arthritis . He was always stubborn and a bury your head in the sand kind of man..  I  cant make him have treatment and he wouldn’t allow carers  etc in .  … I think I need to speak to his DR and insist he makes my husband understand his illnesses ..  somehow .  as I don’t know how long I can cope alone ..  .OR IS that too cruel . ? I would appreciate your advise . 

 

User
Posted 04 Apr 2024 at 20:20

Hi Nanny 7,

I'm sorry that you find yourself in such a difficult predicament.  I certainly don't think that you are being "cruel" for trying to find a solution to a difficult situation. 

You have asked for advice, but I can't really offer you any advice, as such.  As you suggest, it may be a good idea to speak to his G.P., but, in my opinion, his doctor won't be able to "make" your husband understand his diagnoses, or coerce him into accepting treatment for either his dementia, prostate cancer, or even his incontinence.  Nor can anyone coerce him into accepting home carers.  It may be that the time is approaching that you come to acknowledge that you cannot continue to look after him at home for much longer without assistance from home carers (which he refuses).  If or when that time comes, you could ask for him to be assessed by the Local Authority under the Mental Capacity Act as to whether he is able to make an informed judgement as to what his needs are and, realistically, how they can be met (taking into account your own health issues and his refusal of home carers).  If he is deemed to lack capacity to make such informed judgements, then decisions can be made for him.  This might include admission to hospital for assessment and/or transfer to a residential or nursing home.  This might not be something that you would want right now, but you have indicated that you have your own health issues, which are likely to worsen over time.  So, you may want to start planning for such an eventuality.

Best wishes,

JedSee.

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User
Posted 04 Apr 2024 at 20:20

Hi Nanny 7,

I'm sorry that you find yourself in such a difficult predicament.  I certainly don't think that you are being "cruel" for trying to find a solution to a difficult situation. 

You have asked for advice, but I can't really offer you any advice, as such.  As you suggest, it may be a good idea to speak to his G.P., but, in my opinion, his doctor won't be able to "make" your husband understand his diagnoses, or coerce him into accepting treatment for either his dementia, prostate cancer, or even his incontinence.  Nor can anyone coerce him into accepting home carers.  It may be that the time is approaching that you come to acknowledge that you cannot continue to look after him at home for much longer without assistance from home carers (which he refuses).  If or when that time comes, you could ask for him to be assessed by the Local Authority under the Mental Capacity Act as to whether he is able to make an informed judgement as to what his needs are and, realistically, how they can be met (taking into account your own health issues and his refusal of home carers).  If he is deemed to lack capacity to make such informed judgements, then decisions can be made for him.  This might include admission to hospital for assessment and/or transfer to a residential or nursing home.  This might not be something that you would want right now, but you have indicated that you have your own health issues, which are likely to worsen over time.  So, you may want to start planning for such an eventuality.

Best wishes,

JedSee.

User
Posted 04 Apr 2024 at 20:38

Hello Nanny

Just to say that you should apply for Atendance Allowance ( if you havent already) and reach out for some advice and support ? They are all for supporting you in your own home bc residential care is expensive maybe someone could watch over your husband for a couple of hours whilst you had some "me time " 

Best wishes 

Liz

User
Posted 04 Apr 2024 at 22:10

Hi Nanny7,

What a tragic situation you are in. Do you have Power of Attorney for your husband? without it unfortunately I think it is very difficult to do anything relating to your husbands care.

Derek

Edited by member 04 Apr 2024 at 22:13  | Reason: Not specified

User
Posted 04 Apr 2024 at 23:13

What an awful situation to be in, you have my sympathy.

I would try phoning the Prostate Cancer UK Specialist Nurses on 0800 074 8383 (as shown at the top of this page); they will know how to get the help and assistance you and your husband need.

I have used this service myself and found the person on the other end to be really helpful and pleasant. It's what they are there for so do not hesitate to speak to them.

 

 
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