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56 yo recommend treatment complete removal

User
Posted 15 Apr 2024 at 11:46

My cancer hasn't spread beyond the prostate, I have Gleason of 6&7

Hospital recommend complete removal, is there another treatment for me ?

2 reasons, 1 I like to shoot my load. 2. I already suffer with ED following an accident in 2016 the hospital said I'll probably be in the 20% of inactive 

How do you deal with this ?

I'd like to think I have another 20 years to live

User
Posted 15 Apr 2024 at 12:24
Either way, I think "Load shooting" will be a thing of the past will be the reality I'm afraid.

Better than the alternative - Eh?

User
Posted 15 Apr 2024 at 20:24

Here is my take. The specialists have recommended a course of treatment with curative intent. Many posts on here involve questions about which treatment to have since the specialists often don't recommend one over the other since they result in similar outcomes and life expectancy. Except in my case, like yourself, I was given a good nudge towards surgery because the consultants thought that would provide the best long term outcome. However I am surprised that they have not offered you the chance to talk to the oncologist about RT so you can properly weigh up your options.

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User
Posted 15 Apr 2024 at 12:24
Either way, I think "Load shooting" will be a thing of the past will be the reality I'm afraid.

Better than the alternative - Eh?

User
Posted 15 Apr 2024 at 13:26

That aside, is there other treatments ?

If not how have people dealt with being inactive?

User
Posted 15 Apr 2024 at 13:41

Have they discussed radiation ?

either way there will be nothing to shoot but with radiation you still get a orgasmic feeling and can still get it up. The question is if its contained and they remove it will you mentally be happy that its unlikely to cause you problems later or do you want to take a chance and still have some sexual function?

 

User
Posted 15 Apr 2024 at 14:19

Don't (or DIDN'T WE) we all. 😁

But as my parents used to tell me as a kid, "He who wants never gets"

I'm mystified why you have two Gleason scores?

 

 

User
Posted 15 Apr 2024 at 14:26
I have 3+4 one side and 4+3 the other so I suppose he could have 3+3 and a 3+4 ?
User
Posted 15 Apr 2024 at 15:21

Exactly 

I have 3 cores with 3+4

And

2 cores with 3+3

 

Edited by member 15 Apr 2024 at 15:23  | Reason: Not specified

User
Posted 15 Apr 2024 at 15:32

Originally Posted by: Online Community Member

Have they discussed radiation ?

either way there will be nothing to shoot but with radiation you still get a orgasmic feeling and can still get it up. The question is if its contained and they remove it will you mentally be happy that its unlikely to cause you problems later or do you want to take a chance and still have some sexual function?

 

RT is the best option, by far in most cases - there will always be risks - but with death as the big option, you must face it.

User
Posted 15 Apr 2024 at 16:21

You could ask about focal therapies. They treat just the cancer and not the whole prostate. It depends if your cancer is focal and where it is as to how suitable you might be. You need to be referred to a focal therapy centre to find out if you're suitable.

Pros:
Generally fewer side effects. Depending where the cancer is, you might preserve erectile function, continence, and even some semen.

Cons:
Might not treat all the cancer (usually only one or two main lesions are treated), leaving you on active surveillance for what's left.
More likely to recur. Prostate cancer often isn't focal, springing up in many places in the prostate eventually. Can sometimes be treated with focal again, but also radiotherapy or prostatectomy are likely to be salvage options too. You might end up worse off after either of these salvage treatments than if you'd had them in the first place though.
There might be a slightly higher possibility of it recurring and eventually going metastatic than if you have a whole-prostate treatment at the outset.
Not many centres do focal therapies, and they're mostly in the South-East, so it might involve some travel.

A pre-existing reduction in erectile function doesn't help with outcomes of erectile function - it's not going to improve and often gets at least a little worse. Have you have that investigated and is the cause known?

EDIT: Just to add, preserving some semen is not the same as remaining fertile, if that's the reason for concern. Semen contains lots of different components, and although you might still ejaculate something, which if you're lucky still looks like semen, it doesn't mean all the components will still be present, so it is much less likely to be viable for fertility even so.

Edited by member 15 Apr 2024 at 16:27  | Reason: Not specified

User
Posted 15 Apr 2024 at 20:24

Here is my take. The specialists have recommended a course of treatment with curative intent. Many posts on here involve questions about which treatment to have since the specialists often don't recommend one over the other since they result in similar outcomes and life expectancy. Except in my case, like yourself, I was given a good nudge towards surgery because the consultants thought that would provide the best long term outcome. However I am surprised that they have not offered you the chance to talk to the oncologist about RT so you can properly weigh up your options.

 
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