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Today is the First Day of the Rest of my Life

User
Posted 15 Mar 2015 at 13:21

Hi Steve,

Lets hope that you hear some news soon on the Trop test, ECG are not really the best way to determine what is going on as they only give a yay or nay for that moment in time.  Trevor has had several "normal " ECG readings with very abnormal Trop test results.

The injection in your tummy is a blood thinner so I am thinking maybe another blockage somewhere as the pain eased when this was given.

Do you have a GTN spray ? this really helps with Angina pain as it widens the arteries much as an inhaler works in Asthmatics. 

This can't be helping with your stress levels. We are all rooting for you.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 15 Mar 2015 at 13:44
Hi Julie,

I had four sprays of my GTN during the episode at 5am. It did help a bit.

My early results from my first troponin test was 18. I've had three so far. The last was at 11am today. I asked about the one last night and they said it was 16 so the signs are that I haven't had a heart attack. Which is good news because I didn't want to think that I was that vulnerable to an attack.

Only thing is it leaves the mystery of why the pains. It makes me seem an idiot for wasting everyone's time. Still if the cardiologist has an opinion of what might have caused things to happen, that might useful information.

I'll post when I find anything out.

Steve x

Edited by member 15 Mar 2015 at 19:43  | Reason: Not specified

User
Posted 15 Mar 2015 at 14:10

You are not wasting anyone's time Steve, that is what they are there for and clearly there is a problem . Your Trop tests are not in normal range . I hope that you get some answers today. My friend has just had the new CT Angiogram done it is apparently the way forward and much less invasive than the old way but guess what she has too wait two weeks for the results , apparently it takes that long for the secretary to type the letter.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-yell.gif

Stay strong, it will get sorted.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 15 Mar 2015 at 16:08

Hi teve,

Glad that you are able to communicate, that will help pass the time. One thing to consider, with al the pressure on hospital bed space at the moment, if there was not a clinical need for you to be there, you would not be there.

So, relax, let the experts find what is wrong, and sort you out.

atb

dave

User
Posted 15 Mar 2015 at 18:22
I am so sorry you have all these problems. I am new to this thread but there are a few options I would like to offer. Please forgive me if you already know of these.

Macmillan offer grants which can help through tough times. Also have you heard of PIP, there are special rules for terminally I'll people and it is not means tested.

Macmillan nurses are great at helping people get what they are entitled to. If you want any further info let me know.

As others have said talk to your doctor there are things out there to help and we all need that sometimes.

Love to you xx

User
Posted 15 Mar 2015 at 18:47

Steve,

I have been catching up on this thread which has moved fast in the last 24 hours. Nothing much to add other than to say you are in the right place whilst they find a solution and try and relax whilst you are there. The wider problems won't go away but can wait and I agree with others that it seems a good option to take some professional advice on how you feel. We are here for you but take all the professional help you can get. Thinking of you!

User
Posted 15 Mar 2015 at 19:55
Hi,

I've now been transferred to a different ward because the cardiac consultant didn't have time to review my results today. So basically, I'm spending another night in hospital to wait to see the consultant tomorrow.

I hope the wait is worthwhile and it answers a few questions.

Thanks everyone for all your messages.

Steve

User
Posted 15 Mar 2015 at 19:56

Dear Steve

Whilst you are in hospital, it might be a good time to raise the point about how low you have been feeling.

They might be able to refer you to the right person to speak to.

Please let someone know.

Lyn's idea of showing these threads was an excellent one and will make it easier for you to explain. You wont have to say much.

Please consider it and get the help that you need.

Does your wife know how you have been feeling? Could she raise the point for you?

Thinking of you.

Alison x

 

ps Looks like we were posting at the same time. I know it is awful being kept in, but best to get to the bottom of this once and for all. xxx

Edited by member 15 Mar 2015 at 19:58  | Reason: Not specified

User
Posted 15 Mar 2015 at 20:19

Originally Posted by: Online Community Member
I am so sorry you have all these problems. I am new to this thread but there are a few options I would like to offer. Please forgive me if you already know of these.

 

Ooo-er! Not that we think you are terminally ill, Steve! You will get better and get back to work eventually so perhaps organisations like BHF have similar grants for people who just need a helping hand? 

Try to get some sleep - more sleeping time, less time to think and get stressed x 

Edited by member 15 Mar 2015 at 20:22  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Mar 2015 at 20:27
Thanks, Alison.

I didn't mind staying an extra night really. I have been in quite a lot of pain today. I think I pulled a muscle this morning when I reacted to the chest pains I was suffering. Now I'm suffering every time I try to move, it's agony.

I've already spoken to my cardiac rehab nurse last Thursday about what I was going through and she feels I should contact the excellent. " Talking Therapy" service in our area. I will do that. I think it is probably easier than trying to sort this out while I'm trying to sort out the heart problems. I think they would just refer me to the same service anyway.

Steve x

User
Posted 15 Mar 2015 at 20:41
Hi Lyn,

Not planning to go just yet even though my rushed post when arriving at hospital yesterday may have suggested otherwise. A very kind post by Joy anyway.

It's difficult to keep track of people's diagnosis sometimes, especially when mine seems to change weekly. If it was written as a soap opera script it would probably be discounted as being too unlikely.

Anyway, thanks to you and everyone here, I'm feeling a bit more positive now, if I find out solutions to my heart problems tomorrow.

Steve x

User
Posted 15 Mar 2015 at 21:23

Hi Steve,
Hope you get some sleep and rest tonight, and then some answers tomorrow. The 'Talking Therapy' sounds like a step in the right direction and I'm sure will offer you some relief. I'm glad you feel ok about staying in another night, tomorrow is another day .....
Take it easy,
Miss x

User
Posted 15 Mar 2015 at 21:31
Hi

best place to be at this time.

I read you had taken your spray 5 times if you have to take a third its 999

Edited by member 18 Apr 2015 at 09:35  | Reason: Not specified

User
Posted 15 Mar 2015 at 22:30

Hi Carol,

Thanks for your message.

I think I get depressed because I have so much to cope with but it reaches the point where you reach saturation point and it becomes too much for one person to handle.

I was and to a certain point am, a very positive person but the events of the last nine months have worn me down.

I think I have been very supportive to my wife while crying out inside for help from others, which I have found on this site. She has tried and has been very supportive, but she has relied on me for most things. 

 She's a beautiful person and doesn't deserve to be going through this.

I often pretend to be happy when around people. I don't have to pretend to be sad as that is how I feel at times.

During my work as a press photographer it was not easy sometimes which is why I escaped the world of newspapers to work in PR for many years. I fully understand the concept of post traumatic stress and feel I was affected by some of the experiences I had to live through.

I do feel the talking therapy will help me , certainly as a starting point because I feel writing helps me, it just that when I hit rock bottom, I don't feel much like writing. Talking, I feel, would be easier, it's just that the right people are not always there when you really need them.

I have learned that the most important thing in life isn't money or processions but life itself and being with the ones you love.

Steve

Edited by member 17 Mar 2015 at 23:23  | Reason: Not specified

User
Posted 16 Mar 2015 at 09:17

A lovely heartfelt piece of writing Steve. You talked about your wife at Newark and it feels as if that issue remains alive. Yet sometimes you have to be selfish and sort yourself out first. If your wife cannot give you the support you need seek it elsewhere so you can eventually be strong for her too. You feel zapped of energy and you are not used to the inactivity. It would help to talk this through and seeking professional help is a starting point. Although we can listen and this site is supportive sometimes that is not enough to get on top of some of the feelings the events of the last nine months have generated for you.

Hoping to hear better news of your heart problems this week and that you have sought some help. You will get there eventually but now is not the time to go inward and try and do it yourself, take your problems to someone who can help.

User
Posted 16 Mar 2015 at 09:47

Hi Steve

I thought of something yesterday when reading your posts and when you said you had pulled a muscle it reminded me again.  Derek Redmond was running the 400M in the 1992 Olympics at Barcelona when he pulled a hamstring, you may remember it?  He continued in spite of this and his dad plus the crowd cheering him on helped him over the line.  There's lots of clips of this on YouTube.

Steve we're all here to "cheer you on and get you over the line!"

Best wishes, Arthur

 

 

 

User
Posted 16 Mar 2015 at 12:28
Originally Posted by: Online Community Member

I have learned that the most important thing in life isn't money or processions but life itself and being with the ones you love.

Steve

Hi Steve

I think the above statement sum it all up, you have now taken your first step into putting this downward spiral in reverse and the only way is up mate.So let the Specialists do their job, and allow yourself time to concentrate on those important things you have identified.

All the best

Roy

Edited by member 16 Mar 2015 at 12:32  | Reason: Not specified

User
Posted 16 Mar 2015 at 13:20
Only trying to help
User
Posted 16 Mar 2015 at 13:34
Steve

good afternoon, I hope you have had a better start to this week.

I like your last post it shows that you are starting to put the pieces together and as Roy highlighted your closing statement encourages me to think that you are on the right track.

I think you are ready to hear somethings from me. I am not very good at saying things in a conversation or face to face with a person so I use writing as my means of getting my feelings out there.

I am sure you will have done the same with photography.

I have rather unkowingly struggled just recently not so much from grief but from issues that go back a very long way. I could not see this but I was encouraged by a really good friend who could see it to find someone that I could talk to, I decided to give that a try and have sarted talking with a pastoral care specialist at work. I know her well enough to feel comfortable but not so well that I feel intimidated or embarrassed telling her very personal things. She now knows that I write when I am troubled so she has encouraged me to share some of my recent writing with her. Maybe you could try something similar you clearly enjoy writing and it is a great way to "spill" you don't have to share what you write but if you need to you can.

I admit I have had times recently when I began to wonder how you as one person could have so many things going wrong and I am so sorry that I thought that way. I just want you to know that I cannot help you in any other way than to be here for you and to let you know the depression you have is by no means unique or just yours.You are not alone.

xx

Mo

User
Posted 16 Mar 2015 at 16:27
Steve

noticed that you changed your reply to me about your wife.

Edited by member 18 Apr 2015 at 09:18  | Reason: Not specified

 
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