Okay I've reached the enzalutimide circle as my circles just decrease a bit.
Had onco appointment today. Mixed bag on the various results but overall ok. PSA gone up from 3.90 to 10.1, reversing the last year of decline. Bone scan showing further metastases in the right leg and pelvis area and a few new hotspots there, which reflects my experience of increased pain there, rest of bone scan static so good news there. Great news that on the CT scan no developments at all so no soft issues issues at all, so very pleased with that one.
We discussed enzo or Abby; chemo and/or radium 223. Slight concern from onco about some patients having had neurological issues with enzo, thought he admitted this was a small number and not heard it on here. (Anyone heard about this?). Decided best option is enzo, given diabetes but if it causes problems I can switch to Abby within three months. Keep chemo and radium 223 back for now. So decision made and start in two weeks (on holiday next week).
Then saw urologist and he confirmed for now I can discontinue self-catherisation as no longer getting significant retention. Gives relief from that endless task for now. Such a relief just to go to bed without that procedure. No UTI for about 10 months so staying on prophylactic dose of anti-biotic for now. Out of the blue he then initiated a conversation about end of life decisions particularly around when to discontinue treatments. I was impressed that this discussion was taking place even though it is not happening for me yet. Important to have thought through such decisions before they are upon you.
So overall a not unexpected development and still after five years + still moving along to that end point but mercifully slowly.