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Erecting the Erection - Medication

User
Posted 10 Oct 2015 at 13:43

Sorry Lyn to only provide " guess-timations " .. We tend to keep the stopwatch out of the bedroom to spare me any further embarrassment ;-))

If life gives you lemons , then make lemonade

User
Posted 10 Oct 2015 at 14:37

:-) ;-) ;-) ;-) ;-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 20 Oct 2015 at 17:40

Originally Posted by: Online Community Member

Chromedome, good luck with your recovery
Yes it is very early days for you.
Perhaps your body just needs to catch up with your mind!

Did you have any nerve sparing I wonder?

Hi Johsan,

It was only partially nerve-sparing.  I'm being prescribed Cialis - we'll see how that goes.  I'm also being referred to a specialist nurse at the ED clinic.  Fingers, toes, eyes and everything else crossed!

User
Posted 20 Oct 2015 at 18:04
I am nearly 11 months post op still pretty much fully incontinent and doesn't seem to be getting any better. I am on 5 ml of cialis, do get feelings but not full erections tried the pump but rings either to tight or not tight enough, I still use the pump for exercise. Have tried sexy time in the shower as sometimes get a semi while standing up much more so than lying on my back but because of the incontinence not much fun. Hoping after the year is up I will be referred to the incontinence clinic and perhaps the ED clinic.
User
Posted 20 Oct 2015 at 19:01

Oh dear davi1 - why are you waiting until the year is up? Push for those referrals now!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 Oct 2015 at 18:19
Oh Chris you seriously need to make this into a comedy along with Johnny and his limp wet chip! My husband now has a radioactive light sabre after his Brachytherpy and was turned into a "dalek" after taking Viagra. Reading your post certainly turned my frown upside down. Thank you.

Andrea xx

User
Posted 29 Oct 2015 at 08:06

Hi all
A question to all Caverject users and maybe Lyn.
So last night opportunity to use full 20mg after near success with 17.5mg. No stress nice night away. And it was a flop. Maybe a 50% erection that lasted under an hour and nowhere near useable grrr !
Questions
1 Now had 5 wks Bicalutamide HT. No loss of libido but cud this have affected it ?
2. Is dose rate logarithmic or linear? Example if a guy 50% hard at 15mg , might he need 30mg. Do they do bigger doses? Annoying as it works within minutes but just doesn't do the full job
3. Does the dose relate to a mans size ? Does 20mg work better on smaller penises as a rule ?
On this particular occasion he just got fatter and fatter with no length and zero rigidity.
I am a far more patient patient and we laughed it off , but was sad as was hoping to have a monthly prop where the experience was more intimate without pumps and lube and standing up.
I am slightly concerned that the majority of men post operation go on daily Cialis and that has not been offered me. I hope the little fella ain't missing out on repair !
Best wishes everyone
Chris

If life gives you lemons , then make lemonade

User
Posted 31 Oct 2015 at 01:00

Chris the bicalutamide will not affect the caverject and no, caverject dosage is not related to size of the penis. It sounds to me like you didn't quite inject into the right place - a couple of times, John hit the urethra and the dose came straight out of the end of his penis. With practice you will get better at injecting precisely.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Oct 2015 at 20:08

A couple of people have sent me a PM since I posted above and I don't like replying one to one in case the wrong information is given and there is no-one else to see it and correct it (personally, I think the biggest mistake of the new forum was to introduce PMs)

Common mistakes are to not mix it well enough or to forget to knock out bubbles from the top of the needle before injecting, or to inject into the wrong part of the penis. To inject Caverject correctly, the needle should go in half way down the shaft at a good 90 degrees - if you angle it even slightly, you might miss the spongy tissue and it won't work properly. Avoid visible veins or arteries as these will carry away the solution. Give the penis a massage to help the solution move around the spongy tissue. It is best to alternate from right side to left side so that scar tissue doesn't build up. You would know if you accidentally injected into the urethra as the solution comes out of the end of your penis.

Sometimes, there are rogue injections in the box or even a whole batch can be faulty. John once had a box in which every single one failed but it is possible they had been left on the windowsill and overheated.

If caverject is going to work, it will work regardless of whether you are in the mood or not. If it seems to work and then deflates, don't make the mistake of thinking the opportunity has been missed. The first time John had it with the ED nurse, he got an erection immediately but we then had a row and it went down. We drove home, stopped at a cafe, had another row and eventually kissed and made up, at which point the erection returned - this was probably about 90 minutes or more after the injection had been given. A bit of self-belief seems to help it along :-)

Sadly, there are quite a lot of men for whom it doesn't work at all but if it worked when the ED nurse did it then it is most likely a technique issue

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Nov 2015 at 16:11

WOW! How did that happen??

This morning I woke up with a rock solid, unbendable, fit for purpose erection!!!

I'm really chuffed, cant wait for it to happen again!

User
Posted 10 Nov 2015 at 16:20

Yay !! Good for you.

What on earth were you dreaming about!!

We can't control the winds - but we can adjust our sails
User
Posted 10 Nov 2015 at 16:44

Ha Haaaaaaa !! GO GO PABLITO
This is going to happen to me . I'm 2 months behind you .God what a treat , and I bet your smile was from ear to ear like a cat's from Cheshire
Envy
Chris

If life gives you lemons , then make lemonade

User
Posted 10 Nov 2015 at 16:53
P

Well done, what had you been eating ?

Thanks Chris

User
Posted 10 Nov 2015 at 18:09
Yay what's the story morning glory? I hope you can recall and then use at will !!!

Best wishes

Xx

Mo

User
Posted 10 Nov 2015 at 18:56

Jealous as hell! http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

Best Wishes
Luther

User
Posted 10 Nov 2015 at 19:28
Yay!!

I'm still living in hope. But it's great to hear there is hope

X

User
Posted 11 Nov 2015 at 00:19

Originally Posted by: Online Community Member

WOW! How did that happen??

This morning I woke up with a rock solid, unbendable, fit for purpose erection!!!

I'm really chuffed, cant wait for it to happen again!

 

What's your address? 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Nov 2015 at 07:57

Lyn !!    http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

Edited by member 11 Nov 2015 at 07:58  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 11 Nov 2015 at 09:40
Lyn

That really did make me laugh

Thank you

User
Posted 11 Nov 2015 at 09:59

Thanks for all of your comments!

Sadly I was unable to put it to good use, but it has boosted my hope and confidence! If it has given hope to others then I'm pleased. There have been some very amusing comments, which I've enjoyed, so thanks to you all!

I think I read somewhere that pistachio nuts are meant to help with erections, so I've been munching them a bit recently. (Lidl sell both unsalted and salted at a very reasonable price).

Otherwise the evening before the "event" was my normal half bottle of Rioja, followed by a homemade chilli con carne, with lots of chilli's and also some chocolate.

So far as my meds are concerned just 5mg of Ciallis daily (which I take in the morning).

BTW, dead as a doornail this morning! Lyn you might wish to put your request on hold! ;-))

User
Posted 11 Nov 2015 at 11:43

Lyn,

You'd be disappointed at my address! 

Steve

User
Posted 11 Nov 2015 at 16:54

P

I was eating the pistachio nuts at the same time as this happened one year after surgery.

"I am getting some success with Sildenafil the only side effect is the stuffed up feeling. I have been away for a couple of days and missed my tablets, last night I had mushrooms in garlic butter with a cheese sauce followed by a ham and pineapple pizza accompanied with a G & T and woke up with a sizeable erection and sadly the wife was 170 miles away."

I also tried the natural Viagra made from melons, strawberries limes etc, did nothing but at least I got some of my 5 a day fruits.

Thanks Chris

 

 

User
Posted 11 Nov 2015 at 19:03

Chris, does that confirm that pistachio nuts are the way to go??

I'll keep on munching! :-))

User
Posted 11 Nov 2015 at 19:37

Great result for you Pablito. Maybe a full bottle the next night and double the amount of nuts?

What dies puzzle me, and others I expect, is that you might get an event worthy of hanging a heavy coat on one day and nothing as splendid the next or another? Worth keeping working at it though.

atb

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 11 Nov 2015 at 20:11
P

Posted 11 November 2015 19:03:34

Chris, does that confirm that pistachio nuts are the way to go??

I'll keep on munching.

Well they taste nice anyway so I will keep eating them.

Had my urethral catheter removed yesterday after 44 days so ready to restart medication and nuts.

Thanks Chris

User
Posted 11 Nov 2015 at 20:18

Do a pistachio / Viagra smoothie .

Don't quote me , just tell me how it goes ;-))

If life gives you lemons , then make lemonade

User
Posted 11 Nov 2015 at 20:20
Lyn

I wish I hadn't read your comment whilst drinking my new night time cocktail of pomegranate juice and sparkling water .the splurge has left little red dots all over my PJs ....

xx

Mo

User
Posted 22 Nov 2015 at 14:04

Caverject diary if anyone interested !
Today was #3 attempt with Injection. Taking into account past experience and comments above I today used vacuum pump to get as large as possible beforehand. It seemed a great idea -- much bigger target and easy to move the veins out of the way. Very thorough preparation and mixing of injection etc. The actual injection was better for being semi-erect ( honest guys it's not that bad once you've done it a couple of times ) , and I went for the full 20mg dose.

Absolutely NOTHING . No pain or throbbing , no erection. It might as well have been water I had put in there. Very upsetting as we rarely get time together. So did I inject wrong , is the batch faulty as mentioned above , are my nerve bundles actually getting worse rather than better , is it the HT affecting it ?? Who really knows. I have one left to use before ED clinic 14th Dec. I will go for 17.5mg again as strangely had the very best result with that. I wouldn't mind but Caverject really is the " golden chalice " for a lot of men I think , and if that doesn't work then you are truly stuffed. I tried 20mg Levitra the other day ( Surgeon said to try occasionally) and had horrible side-effects all day which really made me feel ill , and even an hour with Kelly Brook wouldn't have stirred anything.
I am becoming a patient patient , and again took this on the chin , but I'm not ready to give up.
Best wishes to all as ever
Chris

If life gives you lemons , then make lemonade

User
Posted 22 Nov 2015 at 14:41

The needle is pre-made to the correct depth - my guess is that using the pump first meant the liquid was injected into the wrong bit of your penis.

Probably best to follow the instructions and use it properly rather than muck about in the strange belief that you can improve on what all those researchers and scientists know!!!!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Nov 2015 at 14:44

It makes me sad when men post on here that ED is no big deal because you can get tablets or injections. The proportion of men for whom none of the treatments work is depressingly high but those men who have been lucky can inadvertently continue to perpetuate a myth by failing to realise that they are the lucky minority

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Nov 2015 at 15:47

Well at least i'm having a go haha ! I'm trying ( very trying Elaine says ? ) . My ED nurse says both the penis main chambers are completely interconnected , so it shouldn't matter where I inject roughly . I utterly respect your view as you've been through it all . I guess by process of elimination ( i'm an engineer ) , I go back to flaccid and 17.5mg then I have some genuine feedback for my nurse which we can move forward on . It might be as you said and a dodgy batch , but I guess after my next attempt ( 4 ) I will have a clue what's going on . I'm getting better at accepting though. Me and my better half are quite solid right now
Chris

If life gives you lemons , then make lemonade

User
Posted 22 Nov 2015 at 16:32
After being diagnosed with depression and given appropriate medication I stopped trying as my libido vanished when I started taking the medication.

Into month two of this I am going to give it another try.

Cialis definately provoked a reaction so back onto 20mgs twice a week and the wonderful vacuum pump, which to be honest I find an horrendeous contraption.

Now, where is that lady>:)

User
Posted 22 Nov 2015 at 16:43

Horrendous contraption it is, but it does what it says on the tin !! And any wood is better than no wood .
You might settle into the medication Les given some time . I certainly hope so. I've had a lot thrown at me over the years medication wise , but I still pester Mrs CJ if she stands still for too long

If life gives you lemons , then make lemonade

User
Posted 22 Nov 2015 at 17:33

Nurse will probably say there is no such thing as a faulty batch but we have had a whole box fail in the past and Zoe's view was that they were either faulty batch or had been stored incorrectly by pharmacy or wholesale supplier or similar.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Nov 2015 at 19:02

NO IT'S NOT!!!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif  Well, not necessarily!

FFS, SO much of recovery can be affected by attitude of mind.  Perspective.  If you see the pump as a "Horrendous contraption", then that is what it will be. 

Introduce it to your partner, make it a menage a trios?  Let them work it for you with you.  Make it part of your foreplay.  Your sex life has changed, can be resurrected and made good again.  And you can make it work for you or you can moan and whinge about it.

Acceptance of the "new normal" may make it more bearable, and even enjoyable?

dave

 

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 22 Nov 2015 at 19:12

Sorry Dave you are right. It's actually a marvellous invention which is serving me so well and might be helping with long term recovery. Pump and I meet every day if I can make time , and we are happy to use it together. In fact it is the only thing which produces consistent results !!
I didn't mean to deter anyone. Overcoming shyness and embarrassment is key after treatment. With an understanding partner this is truly possible
Chris

Edited by member 22 Nov 2015 at 19:13  | Reason: Not specified

If life gives you lemons , then make lemonade

User
Posted 23 Nov 2015 at 05:57

Morning Chris,

No need to apologise, you have cracked it, and you and El are dealing with it, which is great for you both.

There were times when I saw my Erica as a cruel heartless cold callous thing. But once I really got to know her? And read the instructions! I didn't. What a muppet.

Typical bloke, get something, open the box, use it or try to, it doesn't work, put it back in the box. Some time later, open the box again, and notice the instruction leaflet and DVD. Read the instructions and have a lightbulb moment.

The pump js supposed to stimulate blood flow to the penis, could this flow be enhanced by other physical activity? So, if you are generally stimulating blood flow around the body, walking briskly for example, would that enhance blood flow to the area where the pump is working any more? Or would it be counter productive, if blood is being called for throughout the body?

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 23 Nov 2015 at 07:11
Hi,

Still waiting for mine, February seems a long way off.

User
Posted 24 Nov 2015 at 18:12

Hi all,

Finally have my hands on some Viagra...........but that's all iv got my hands on!
Think the only thing it has given me is a headache, no movement at all down under.
I will keep on with them as i understand its all about blood circulation, suppose i can take an aspirin for my head.

Head...................i remember that, lol

Johny

User
Posted 12 Dec 2015 at 15:30

Seriously,three fit for purpose erections!

Preceded by Pistachio Nuts and only 5mg Ciallis.

Pablito

User
Posted 12 Dec 2015 at 16:52

Originally Posted by: Online Community Member

Seriously,three fit for purpose erections!

Preceded by Pistachio Nuts and only 5mg Ciallis.

Pablito



* Orders 1 tonne of pistachios * http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

Great news Pablito!

Luther

User
Posted 12 Dec 2015 at 16:52

Originally Posted by: Online Community Member

Seriously,three fit for purpose erections!

Preceded by Pistachio Nuts and only 5mg Ciallis.

Pablito

What?  

At the same time, side by side?  THAT is the image that sprang into my mind.

Off to get me some nuts...........................!

atb pablito, really pleased for you.

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 12 Dec 2015 at 18:39

Pablito I hate you !! Seriously !! I'm not even joking.
Made worse by me trying 20mg Cialis the other day -- nothing !
And a bowl of Pistachios last night as its a regular treat -- nothing !
In fact nothing once :-((
But in all honesty I'm DELIGHTED for you. Good news is so welcome to others
Chris

If life gives you lemons , then make lemonade

User
Posted 12 Dec 2015 at 19:33
P

Well done to you and your surgical team. What brand of nuts ?

Thanks Chris

User
Posted 12 Dec 2015 at 22:17
Pablito

Wow three in a row, same week, same day? ...whatever... I just hope you used them to max effect.

Best wishes

Xx

Mo

User
Posted 13 Dec 2015 at 22:17

Thanks for all of your brilliant responses, many made me laugh a lot!

I buy the unsalted pistachio nuts at Lidl.

I haven't had the opportunity to put it to good use, but it's a great way to wake up!

The 5mg of daily Cialis is enabling me to wake with a "semi" most mornings now, so my confidence is growing that I'll make a full(ish) recovery with my ED.

I also use a pump most days too!

Thanks guys, keep the faith and eat the nuts!

Pablo

User
Posted 14 Dec 2015 at 14:01

Hi all
I had my third ED clinic today. It went well as ever - they seem intent on helping me out being a relative youngster at 48 !! On Friday I tried my last Caverject and despite varying results it worked really well. Very rapid 80% erection that lasted around 90 mins. It was probably just enough for penetration but unfortunately I was on my own ( I wanted to use the last one before clinic ).
Anyway for those interested , the fancy self-mixing pen version of Caverject is still widely unavailable. The mixing kit I have is a weeks wait. My nurse went off and spoke to consultant and came back both having decided I qualified for Viridal Duo 40mg. Same drug but they reckon I obviously need more than 20mg to get a proper satisfactory erection. I have to return to clinic after Xmas ( Boooo ) to learn how to use it and will then be prescribed it. He says its relatively new to Southampton but has better results than the Caverject. He admitted there were problems with incorrect storage , length of storage etc affecting it's quality. We ran through a normal injection again and he's happy I'm doing it right.
He insisted I shouldn't worry about zero natural erections at this stage , and to not compare myself to others on here seemingly doing much better. He said daily Cialis is still a firm No at Southampton. To be honest if I cud get Viridal to give me a firm erection just twice a month that would be great , along with the guaranteed action with the pump.
Anyway best wishes to all on their journeys.
Chris

If life gives you lemons , then make lemonade

User
Posted 14 Dec 2015 at 14:29

Hey Chris,

Thanks for the update!

Do you know why is daily Cialis a firm "no" at your hospital?

Pablo

Edited by member 14 Dec 2015 at 14:39  | Reason: Not specified

User
Posted 14 Dec 2015 at 15:52

Yes I do Pablo !
In their belief daily Cialis 5mg offers no greater benefit than a daily pump erection in terms of recovery , and that all I would see are more artificial erections instead of natural ones , but with all the side-effects and expense. I did bring it up again but he simply assured me there was insufficient evidence. I'm utterly fine with that as I don't want any more medications. They have thrown treatment and prescriptions at me so it's not a money thing.
I bet your thumb nails are getting really strong shelling those nuts :-))
Chris

If life gives you lemons , then make lemonade

User
Posted 14 Dec 2015 at 19:53
Chris

In whose opinion? Can you not find literature to support the facts? I think I did this- the team on the helpline got it for me. I probably still have it- if you want it, send me a message.

Alternatively, you could get a private prescription? Although it's not cheap, it's not horribly expensive. Oh is taking it along with the viridal injections. The ed nurse says that his positive reaction to a low dose might be because of the combination of the two.

He does have side effects- mainly digestive ones/ but the GP has given him tablets to combat this. I think his GP is trying to make up for the fact that he didn't pick the high psa up first time.

Of course, if you don't want to take them then it doesn't matter, but even on a short term basis, it might help. They wouldn't be licensed if they hadn't been proven to work

L x

 
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