Erecting the Erection - Medication - - Page 3Sex and relationships

User

Posted 14 Dec 2015 at 21:33

Chris, wracking my brains trying to think who on here is doing better than you? Apart from one person who has had some kind of miracle, and a new member who is getting semi-hard-ons only weeks post op (although quickly getting semis is no indicator of whether there will ever be 100%ers sadly) I can't think of anyone doing amazingly better than you.

Sometimes, we only fix on the negatives - if you have convinced yourself that you are not doing as well as others, perhaps you could do with re-reading some profiles!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Dec 2015 at 22:17

Hi Chris,

Re the debate of whether or not to issue Cialis, I would consider approaching your NHS trust with a compelling case for the prescription, and this could, be backed up by your own trial if you felt that way inclined?

The suggestion that Cialis is no better than a daily use of the pump is demonstrably inaccurate.

You use the pump. The penis expands to fill the space created by the vacuum in the chamber. The flesh does not burst but fills the space, and is filled with blood and you probably get a somewhat purple appendage. Maybe to use the pump for 10 minutes or 20? While you are using the pump, blood is encouraged to flow to the penis, because that flesh is creating space for blood. Even though the blood vessels to that area nay be damaged because you are actively encouraging blood there it gets there? Maybe. The theory seems good to me. You stop using the pump, blood is no longer encouraged to flow to the penis, it just floats about wherever it is easiest to get to. The damaged vessels that had been calling for blood when you were pumping are no longer getting engorged, as the heart pumps blood and the blood flows taking the route of least resistance, the open undamaged vessels.

You take a Cialis pill, the drug works by encouraging blood flow and recirculation throughout the body. 24/7. Not just for 10 or 20 minutes, all day every day, while you are asleep. Combine this with a pump and you have a double edged sword attacking the problem and supplying blood to the damaged vessels.

When I bought my first lot of Cialis before I was prescribed, I think they cost me about £30 for 28 tablets.

If you buy a months supply, combine a daily tablet with regular use of the pump, and, IF this produces beneficial results for you, you could go back to your GP with a business case for obtaining them on prescription?

May be worth a punt?

You are still doing well young man.

atb

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User

Posted 15 Dec 2015 at 07:47

Hi Dave
Thanks for taking the time to reply. I totally understand the reasoning and from the start have wondered why I haven't been offered daily Cialis. However at the same time who am I to dispute the findings of one of the largest NHS trusts in the country ? And it's obviously not a funding thing , me being very rapidly progressed on the ED recovery course with professional pump fitting , spare rings , Viagra , Spedra and of course instant access to injection therapy !
I think if the pump wasn't working ( which it obviously doesn't for many men ) then I would seriously be banging doors down. I'll sit tight for a max of 2 more months ( 8 months total ) depending on how the new injections go and then see my GP . I'm sure he would prescribe it for me happily but wants to go with clinic advice. Are you suggesting by the way that the pump can damage the penis with overuse ? I try not to Google stuff anymore as it worries me !
Thanks all
Chris

Edited by member 15 Dec 2015 at 07:58 | Reason: Not specified

User

Posted 15 Dec 2015 at 10:48

Hi Johny
the thread you started seems to have become the place to talk about ED medications and aids, I hope you are doing well and are able to get some benefit from this ongoing conversation,

Chris, I think you are doing amazingly well given all the circumstances. The thing that would worry me about your NHS trust making a blanket decision on Cialis is, that as far as I am aware, there has been no regional study to back up their thinking. The drug was trialled extensively worldwide the benefits it promotes were proven by these trials and it was deemed safe, hence its licence. From a swift internet search it does exactly what Dave has described. From what I have gleaned the perceived advantage over other PDE5 inhibitors like viagra and Levitra is that they are "event" drugs and hit harder with potentially more serious side effects. Cialis is more of an enabler, primarily because it is constantly in your sysytem. It is not 100% for every Man but then nothing is. I hate to be cynical but it does sound like this is a cost based issue fancied up to be something that attracts less criticism.

I know your ED clinic is stepping up to the plate and giving you as much help as they think they can but they could be missing the one treatment that might actually enable some of their ideas to work...maybe?

If there is no conflict with any of the drugs you are prescribed for both physical or mental wellbeing, then maybe you should at least try Cialis as others have suggested.

I know how much you want to play things by the book if you can, so maybe ask your GP for their professional opinion and see what he/she says about you using the drug privately for a month or two?

If you find it works then your GP or the NHS trust would find it very hard to refuse to prescribe it going forwards.

All the very best

xx
Mo

User

Posted 15 Dec 2015 at 15:35

Originally Posted by: Online Community Member

Are you suggesting by the way that the pump can damage the penis with overuse ? No, Chris, not at your stage post op.

I try not to Google stuff anymore as it worries me ! A very sensible attitude mate.

Thanks all
Chris

Edited to add, that although your NHS trust may say they have no evidence that Cialis works or may provide extra benefits, there are probably some here, me for one, who would vouch for it working very well, thank you.

atb

dave

Edited by member 15 Dec 2015 at 15:37 | Reason: Not specified

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User

Posted 15 Dec 2015 at 15:50

Thanks guys
I've decided to talk this through with family GP after Xmas. I agree with you all academically.
Chris

User

Posted 15 Dec 2015 at 16:34

My GP would not prescribe Cialis 5mg daily...... I was only given a months prescription of 5mg daily by my consultant immediately after catheter removal....

Ironically my GP does prescribe me 8 x Cialis 20 mg per month..... but only after a letter was sent to him from my consultant ( I am copied in all correspondence )

My GP also needed a kick up the butt from the consultant to prescribe me Vitaros cream.....

I distinctly get the feeling that that I'm not getting the help from my local practice that I should be?

I've never been refereed to an ED clinic or an incontinence clinic...... I will be asking some questions about this when I attend my local hospital for my 6 monthly PSA results and review in Feb....

Luther

User

Posted 15 Dec 2015 at 17:23

Luther see Johnny's opening post.

Originally Posted by: Online Community Member

Hi all

Im 12 weeks post op,

Q. is it to soon to start asking the doc for medication with regard to helping with erections?

Thanks,

Johny

This is one of the most irritating and potentially optimum recovery wrecking aspects of the whole recuperative process, the fact that unless you ask you probably will not get. And even if you ask, that initial request may be met with what appears to be a reasonably based denial based on conjecture, musing and hearsay or at worst for reasons of budgetary restraint.

So many men appear here asking about what might be available, in some cases, some time after they would have been getting potential benefits. You got to ask, put that request in writing with a good case for it being granted. Make it difficult for anyone to say no to you. My GP was very supportive, gave me what I asked for, but, he did say does it/will it work, can you show it's worth to you. All understandable in this money limited day and age. Being presented with a sound business case, IE their financial output likely to give a worthwhile recuperative outcome to me, I got what I asked for. I was very fortunate indeed.

Go for it, ASK. Worst case scenario, they say no, and with a really good reason. But you are no worse off than you are now.

The subject of what can you/ should you ask for, should be a sticky here. Similarly what you can do to aid recovery after an op, regarding rubbing, tugging and yanking at the penis considering that your urethra has been detached and re-attached.

rant over. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-yell.gif

atb

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User

Posted 15 Dec 2015 at 18:02

Originally Posted by: Online Community Member

Luther see Johnny's opening post.

Originally Posted by: Online Community Member

Hi all

Im 12 weeks post op,

Q. is it to soon to start asking the doc for medication with regard to helping with erections?

Thanks,

Johny

Go for it, ASK. Worst case scenario, they say no, and with a really good reason. But you are no worse off than you are now.

rant over. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-yell.gif

atb

dave

Yep! Thanks Dave...

Any help I've had has been instigated by me ( mainly from info gleaned from this forum )... If I had not asked the relevant questions no one would have volunteered any info whatsoever ...
I dread to think how some sufferers are kept informed if they are either not proactive or able to understand what it is they need to be focussed on ...

User

Posted 16 Dec 2015 at 08:35

re overuse of the pump - John was advised to use it 5 times, three times a day. That is, to get to fully engorged and then release x 5 times, each morning, teatime and bedtime. Overuse would therefore have to be walking around with it all day :-0

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 16 Dec 2015 at 13:54

Originally Posted by: Online Community Member

. Overuse would therefore have to be walking around with it all day :-0

To bring a little light relief to the situation (pardon the pun)

I have to envisage what Lyn has just said, imagine opening the door to the postman in the morning and saying 'Hi just exercising my todger" or popping into Aldi to pick up your pistachios, getting to the checkout and saying "its the nuts that make me do it"

Be very careful if being Santa on Xmas eve, getting stuck in the chimney with a huge appendage might be difficult to explain to the firemen let alone the children!

xxx
Mo (having very naughty thoughts!!!)

User

Posted 16 Dec 2015 at 15:00

Good Lord Mo. I've taken to doing the following to Lyn and now you too.

http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif (The last one is the postman - better yet the postwoman)

Edited by member 16 Dec 2015 at 15:01 | Reason: Not specified

We can't control the winds - but we can adjust our sails

User

Posted 16 Dec 2015 at 16:59

Ladies , Ladies
Especially you Mo ! I think the air-miles have gone to your head. But great to hear MoJo is back ;-))
There is nothing fun about the pump I can assure you , but great use of the time whilst shaving especially if your sink is the right height. X

Edited by member 16 Dec 2015 at 17:48 | Reason: Not specified

User

Posted 06 Jan 2016 at 17:39

Johny here,

Great to see this post is still going well, great info by all.

Well today after what seamed an age of waiting i got to see a consultant at the ED clinic ....7 months post op.

He asked me if id been taking and tablets, i have but explained to him my doc and the hospital disagreed about what i should be given and as a result i only started taking them 3 weeks ago.

He also said because iv not had a natural erection up to now its highly unlikely the Viagra will help, what do you think have i lost my window of recovery in the willy department?

He offered me a pump or injections as an alternative, iv gone for the pump...........at least i get to stick it in something lol

Any way im looking positively forward and hopefully upward for 2016

User

Posted 06 Jan 2016 at 17:47

Originally Posted by: Online Community Member

Johny here,

He offered me a pump or injections as an alternative, iv gone for the pump...........at least i get to stick it in something lol

Haha!...... That made me laugh.....http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

User

Posted 07 Jan 2016 at 17:41

Johny

"He also said because iv not had a natural erection up to now its highly unlikely the Viagra will help, what do you think have i lost my window of recovery in the willy department?"

I got some stirrings and at about 11 months post op was put on 100mg daily sildenafil , it did have some effect but not full erections, as time went on the effect seemed to diminish. 15 months post op I stopped talking the because on the stricture issues, 3 months later I started taking them again and at first it had some effect, now again the effect seems to be diminishing.

The use of the pump has also been erratic, again because of the stricture but I can still get a 100 per cent of the pre-op size. "Use it or lose it" is very good advice, but for those who were slow of the mark do not think it is too late to start now.

I use Muse with a fair amount of success.

All the best for your recovering.

Thanks Chris.

User

Posted 07 Jan 2016 at 18:24

I find it awful that Johny at 48 has had to wait 7 months for an ED appt. It's shocking !! In an ideal world a pump would be delivered to your house at 10 wks post op. Use it or lose it is one of the best things I learnt from the forum. I have nothing natural going on but great daily results easily with the pump. Keep at it

User

Posted 07 Jan 2016 at 18:32

We were provided with a pump at6 weeks.

User

Posted 07 Jan 2016 at 23:36

Hi,

A pump sounds useful if you can get one!

I first discussed this with my GP last July. Had to wait until October to see the consultant at the ED Clinic. Referred to the Pump Clinic who have given me an appointment for February and even then there's no guarantee I will be prescribed one. I wouldn't be able to afford to pay for one myself and the thought of not getting one really gets me down.

I'm not allowed to take Viagra or similar due to my heart meds so there's not much I can do.

The reason why I see the pump as being necessary is because I'm concerned that if I don't use it, I'll will loose it, as others have said. Everytime I read that, I stress out that I might have left things too long.

Steve

Edited by member 07 Jan 2016 at 23:37 | Reason: Not specified

User

Posted 08 Jan 2016 at 15:59

It is indeed sad. Whereas we had an appointment with the ed clinic six weeks post op, a pump was lent to us that day with instruction to use it for exercise while we waited for ours to be delivered. It arrived after eight weeks.

As I understand it, you are entitled to one on the nhs if you've had prostate cancer?

User

Posted 08 Jan 2016 at 16:01

Steve

Trying to send you pm but your box is full..?

User

Posted 09 Jan 2016 at 15:29

Hiya

i have a few questions with peoples experience with Viagra.

I am 7 Months post op, only just managed to see the ED clinic.

I have been told to take 50mg 3 times a week, although the consultant said if nothing has happened now this long after the op nothing will,( very dismissive) i insisted!!!!

Any views on this going on past personal experience anyone?

Do you have to take it for weeks months? Has anyone upped the dosage and had success?

Im asking on here as i find with the clinics your just another number, feel a bit let down post op to be honest

Johny

User

Posted 09 Jan 2016 at 16:07

One thing I would say to anyone on here , and I have before , is that if you feel your treatment of ED is lousy then you need to take control . If you are fortunate enough to have a spare £150 in your pocket then see your surgeon privately and stamp your feet very loudly . A guy your age should definitely be getting thorough help with this .
I'm 7 months nearly mate . At 8 weeks my surgeon said the tablets wouldn't help ( any of them ) despite double nerve sparing. I've tried them all and they make me very uncomfortable symptom wise with ZERO results . The pump is awesome . Its called SOMAerect . Again if the NHS is non-complying then bl***dy buy one if you can and get pumping . I can give you the website . I think its about £160 . I was allowed to start on Injections straight away and have had average success and we are still working on the dose. I'm so lucky in my area that I am getting awesome help. I even have Pump Nurse , ED nurse , and Prostate nurse mobile numbers and they always reply to texts .
Having said all that mate , I'm not getting anything natural happening at all either but I'm damn well not giving up , even though I'm on HT now and have RT ahead.
Johny you have to drive forward if you want recovery . If you sit back then they will happily let you . I'm really polite to everyone I speak to , but I'm needling them and getting results .
All the best
Chris

User

Posted 09 Jan 2016 at 17:40

Johny

Just to add something to my previous post, not sure how Viagra or sildeafil work with a fully nerved complete male but in our situation you may need some serious stimulation to get it working. It can also take several hours to take effect, I would sometimes be 12 hours before it had the feeling of an effect, then I could get a reasonable result.

I think CB gives a good description of the amount of work required.

CJ,love your reply.

Thanks Chris

User

Posted 19 Jan 2016 at 16:36

HI All,

Quick update on my experience with Viagra,

Been taking 50mg 3 times a week for the past couple of weeks and as of today we had lift off, of sorts.

Something is certainly going on, at one point with a lot of encouragement id say 50-60% of what it should be.

Not bad considering my consultant had all but written me off only a matter of weeks ago.

Cant say its risen from the dead just yet but with time who knows

Johny

User

Posted 19 Jan 2016 at 17:20

Really chuffed mate. Just persevere. Like the lottery , you have to be in it to win it. I've decided to not use tablets at all till after HT/RT. But Gud talk with home GP the other day and he said he will happily put me on 5mg daily Cialis when I want.
So I continue with the pump daily and he looking good ( my perspective ) , and Caverject No6 used the other day. Whilst clearly " not himself " he was man enough !! That'll do me. May all your attempts be fruitful mate
Chris

User

Posted 19 Jan 2016 at 18:45

Chris, thanks for that

Hopefully i should be joining the pumping crew in the next couple of weeks,

Got an appt on the 1st, finally get to stick it in something lol

Johny

User

Posted 20 Jan 2016 at 19:44

Hi Guys
Just wondering what and when I should ask for some kind of aid/help with ED post surgery. I know that the surgery was non nerve saving and everything in that area was removed.
After getting the catheter removed I went for a shower and decided to have a wee play with the old fella but it was a sad sight with no response.
Anyway just wondering if I should be asking for something now as I have been reading a few posts here stating that some guys have been prescribed some kind of aid straight after their surgery.
I am now 6 weeks post and I have my consultation on the 16th Feb and was going to wait until then but would like to try something just now, I know that nerves have not been spared but still willing to try anything that might waking up the wee fella again.
Cheers

User

Posted 20 Jan 2016 at 20:06

Hi Sanders
Whilst I fully empathise with you , leave the poor fella alone until the next consultation. That is the ideal time to express your desire to resume as full a sex-life as you can manage , as soon as possible. Make it quite clear you want serious help with this. Tablets are unlikely to work for you , but when it is safe regular use of a pump will keep your penis and its workings healthy. Alprostadil will be your drug probably which is Muse pellets or Vitaros cream placed inside the urethra , or the injectable version Caverject which is not as scary as it sounds mate. In the meantime keep him warm and massage him ( not in public preferably ) to keep as much blood in the area as possible. I remember Mr Wriggly looking very forlorn and feeling ice cold for ages. He looks so much better 7 months on. The feelings are there but the blinds are shut at the moment.
All the best. I know how you are feeling. It's awful. Take care
Chris

User

Posted 20 Jan 2016 at 20:11

Thanks Chris
That put a smile on my face.
Cheers mate for the advice once again.
Sandy

User

Posted 20 Jan 2016 at 20:12

Hi Sanders,

I have no experience of non nerve sparing surgery, so can not advise whether you will get movement or development in due course?

But I understand and believe that it is important to maintain blood flow to the area somehow. That can be achieved in a number of ways, all involving manipulation of some sort. The most effective way to get blood going to the extremity of the region is to twirl it, I kid you not. Simple physics, and centrifugal force will move blood to the outside of the circle that you twirl. Imagine a dancers nipple tassels, not sure if "nipple tassles" will pass the censorship bot, so just to be sure tassles that you see on the end of an exotic (strippers) dancers breasts pointy bits, that should get through.

Grasp the base of your penis and twirl. Clockwise or anti clockwise, or should that be cockwise? What a dreadful pun. You should find that blood will flow to the end and it will colour up and become fuller.

I hear from a friend that this technique worked well for me! http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif Needs to be done regularly as you can. I was doing this pretty much as soon as my catheter was removed. Sorry "MY FRIEND" was doing this pretty much as soon as my catheter was removed. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif

atb

dave

Edited by member 20 Jan 2016 at 22:20 | Reason: Not specified

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User

Posted 20 Jan 2016 at 20:39

Is a simple side-to-side ok Dave? I don't know what you're handling but I'm struggling with a swirl :-))

User

Posted 20 Jan 2016 at 20:44

Cheers Dave
Asked the better half to see if she was up for it and she went into a bout of laughter when she read your post.
But yeah will give it a go.
Sandy

User

Posted 20 Jan 2016 at 20:54

I know what you mean Chris, I'm strugging to put the tassle on.
Sandy

User

Posted 20 Jan 2016 at 22:28

Originally Posted by: Online Community Member

Cheers Dave
Asked the better half to see if she was up for it and she went into a bout of laughter when she read your post.
But yeah will give it a go.
Sandy

Chris - depending on your particular circumstances, it may be that side to side oscillation is sufficient and adequate to stimulate blood to flow to the nether ends?

Sanders - the more weight you get at the end of your parts, the better. Weighted tassles? OR, your OH holding on and swinging from the end? Could she/he dress up Tarzan style and do the "WHOOOOAARRRR AARROOAAHH OOOHHHARRR" a bit like Tarzan did when swinging through the jungle on the always conveniently placed vines?

JAT http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User

Posted 20 Jan 2016 at 22:35

Sanders

Chris J and Dave have given very good advice. As regards the tablets there is no harm in asking, I was "supposedly" non nerve sparring, at six weeks I got sildeafil from my ED guy the surgeon said it was a waste of time but at around 11 months post op and numerous stirrings the surgeon put me on daily sildeafil saying some nerves may have survived. At first the results were encouraging but the effects seem to be diminishing.

I use muse with good results.

All the best for your recovery.

Thanks Chris

User

Posted 20 Jan 2016 at 22:36

Separate out the issue of penile health and erections from the issue of learning to orgasm again. At 6 weeks post-op with no nerves spared, the best you can do is follow the advice above re encouraging blood flow into the penis - not particularly for the blood but for the oxygen it carries. But that doesn't mean you can't have any fun. John had his first orgasm on the day the catheter was removed - oral sex does not need an erect penis to produce a climax and hand masturbation is perfectly possible if you use loads of lube.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Jan 2016 at 13:44

Originally Posted by: Online Community Member

Hi Sanders,

Simple physics, and centrifugal force will move blood to the outside of the circle that you twirl. Imagine a dancers nipple tassels, not sure if "nipple tassles" will pass the censorship bot, so just to be sure tassles that you see on the end of an exotic (strippers) dancers breasts pointy bits, that should get through.

Grasp the base of your penis and twirl. Clockwise or anti clockwise, or should that be cockwise? What a dreadful pun. You should find that blood will flow to the end and it will colour up and become fuller.

I hear from a friend that this technique worked well for me![img=http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif]

Needs to be done regularly as you can. I was doing this pretty much as soon as my catheter was removed. Sorry "MY FRIEND" was doing this pretty much as soon as my catheter was removed. [img=http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif]

atb

dave

Dave- this made my day. Only on the prostate cancer website forum would you find someone worried about whether 'nipple tassels' might pass censorship, but be completely unconcerned about 'twirling your penis cockwise'....

Edited by member 21 Jan 2016 at 13:46 | Reason: Not specified

User

Posted 21 Jan 2016 at 15:12

;-)

Did not occur to me Louise.

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User

Posted 31 Jan 2016 at 14:08

Twerling update.,

As mentioned above i thought id give it a go but be careful, if you are still suffering incontinence you may have to repaint the bathroom ceiling!!!!!!

It does work with the blood rush to a degree combined with a Viagra im getting better results for sure, but i am considering apply for a pilot licence as i swear my feet left the ground at some point.

Thanks for that,

Johny

User

Posted 31 Jan 2016 at 14:29

Steady Johny you'll be joining the mile high club at that rate.
Gave it a go also, certainly got bigger and I even managed an orgasm, albeit it was soft but strange that nothing came out either. Doctor gave me some Viagra to try but to no avail as we believe that no nerves were spared. Find that out on the 16th.
Anyway one plus point is that I do not need any pads as totally dry except for a wee squirter when I fart but working on that.
Everyday is an adventure.
Take care mate and keep twerling.
Sandy.

User

Posted 31 Jan 2016 at 16:38

Gents
I probably should not but I do chuckle at some of your posts, the fact that you can find humour out of what for many must be a quite distressing situation is commendable. The visions the twirling , swirling and spraying portray will probably stay with me forever.
Johny to preserve your bathroom ceiling maaybe you should practice your swirling wearing "a little something for the weekend" and having peed beforehand (pardon the pun)
More seriously you are all proof that this once ridiculed , free and simple self help treatment does aid recovery.

Sanders, I believe that dry orgasms take a bit of getting used to but it is good news that you are getting there at all.

I wish all of you all the very best
xx
Mo

User

Posted 19 Feb 2016 at 12:42

Hi all, not posted before but have read posts with interest and thought it about time to take the plung!
I was diagnosed last year from annual PSA as my father and grandfather both had prostate cancer and my father at nearly 81 has survived 21 years post surgery although forgoing the ability to get an errectiin after his first injection left him with severe stomach cramps for several hours!
Myself at 48 despite a fairly early diagnosis had surgery 6 and a half months ago with no nerve sparing as recommended by the surgeon with my scores. My treatment and help all the way has been fantastic it has to be said. I had the pump demo with the very same lovely lass as someone else here several months back and whilst it plays a very important role in rehab and maintenance for me has not been successful in use with my partner. It does enable some fun and dry orgasms but after hearing about it here have also tried with success the same in a flacid state.
I am currently building my way up on cavajet injections which despite increased doses can have varying success or nothing at all. First dose of 5 mg had a half reaction and yet my last dose of 20 mg had no affect other than aching balls for 2 hours. Errections or the discomfort whatever their state tend to last for between 2 and 2.5 hours. I get the odd woosy feeling when I inject but think this is more sociological than anything to do with the injection lol.
Even using the pump has its issues and had to have a larger sized cylinder to accommodate things adequately and find I need to build things gradually when I use it and pull down on my scrotum farly hard to prevent everything else being sucked in which is not comfortable to say the least! The lass who went through the operation of it was truly fantastic but it can take a while to find a way that works for you. Apparently in normal life us guys get up to 16 or more detections daily (mostly while we sleep) and this is how the body naturally maintains the muscle tone down there lol.
I bought a cheap version to start with but it's totally inferior to the prescription version as well as being a bit on the narrow side for me! The problem I have with the pump is that once you get to your full size and slip on the ring (makes you sinse first time and shaved is definitely the way to go!) It's only hard from the ring up. My partner Who I must say has been the most supportive I could ever have wished for, how do I put this has a very snug fit when everything worked previously and now this causes issues with achieving penetration. I am hopeful that the injections will eventually resolve the problem despite the drawbacks but either way it will not stop us having intimate time even if it is restricted. I fully intend getting out there and leading my life to its full.
One thing that is very apparent from reading everyone's individual cases here is that we are all very different in how we react and deal with stuff. My dad was dry from day 1 when they removed his catheter and I am still working on it but mostly dry after 6 months. Last year was not one of my best with this, my mother passing away and going (still am) through a divorce,selling and moving house in the next month all has an effect but I will not be knocked back and will do whatever I can to make the most of my life.
In some ways I see this as a blessing to give me that much needed boot up the back side and get on with my dreams!

User

Posted 19 Feb 2016 at 16:03

Hello Chris p and welcome to the site.

I'm sure your comments will echo what some of our men also feel or go through and hopefully some of them may be able to offer practical advice.

What are dads (and dreams !) for except to boot us up the backside occasionally to get us to act.

I was sorry to hear that you lost your mum and that you have other things going on that don't help on the stress front but I like your positive attitude to getting on and beating it all.

All the best

Sandra

We can't control the winds - but we can adjust our sails

User

Posted 19 Feb 2016 at 19:41

Hi all

Saw doctor 2 weeks ago who prescribed Viagra, told to take half of a 50mg tablet more than twice a week to start with.

Well I am afraid it isn't making any difference to the old fella but I was told that may be the case as there were no nerves spared, in fact I don't think there was much left down there.

Had a meet up with consultant last Tuesday who informed me that the cancer was pretty wide spread in the pelvic area but thankfully no intrusion into my bones. Prostate was 80% cancerous, 7 out of 16 lymph nodes cancerous and seminal vesicles also badly affected, which were also removed.

Bad news was the 1.5mm spot at the bladder which they said could not be operated on due to the chance of severe damage to the bladder, so RT is being organised to try and get this destroyed. This was not really a surprise as I was told that RT would probably be required anyway.

Good news is continence has returned to normal with no more leaks whilst farting/sneezing.

Need to really get going on the ED side of things now as the consultant just said that he would speak to someone shortly but gave no indication of when and who. I have had a couple of dry orgasms, which were totally strange, although these were delivered with a very soft wee fella. Viagra at present making no difference so may have to invest in a pump as going with other guys comments it seems to take a lifetime to get one. Other option would be an injection but again was not given any indication when I would meet someone to discuss this.

Ready to get back to work too, I have a meeting with the company's medical team next week. Cannot wait to get back to work as starting to get cabin fever now.

Take care everyone.

Sandy

User

Posted 19 Feb 2016 at 19:52

Its me again.

Can anyone tell me the best place to buy a Somarect vacuum pump. had a look online and there seems to be loads of different types on the market.

Don't want to waste money on cheap stuff and would like the proper thing.

Cheers.
Sandy.

User

Posted 19 Feb 2016 at 19:56

Sanders, instead of wondering when someone will sort it out for you, why not just ask your GP to make a referral to the ED nurse or andrology clinic in your area? If the GP says it is the consultant's responsibility, phone the consultant's secretary and ask him/her to arrange it. Push for the injections or pellets or even the gel. As you have had non nerve-sparing, it is a waste of valuable time to hang around trying viagra or other tablets :-(

I would avoid buying a pump if you possibly can get it on prescription. The proper ones cost around £350 but are available free on the NHS in most CCG areas. The sex-toy kind that you get from Amazon or Ann Summers are nothing like the proper ones.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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