Erecting the Erection - Medication

Chris, wracking my brains trying to think who on here is doing better than you? Apart from one person who has had some kind of miracle, and a new member who is getting semi-hard-ons only weeks post op (although quickly getting semis is no indicator of whether there will ever be 100%ers sadly) I can't think of anyone doing amazingly better than you.

Sometimes, we only fix on the negatives - if you have convinced yourself that you are not doing as well as others, perhaps you could do with re-reading some profiles!

Hi Dave
Thanks for taking the time to reply. I totally understand the reasoning and from the start have wondered why I haven't been offered daily Cialis. However at the same time who am I to dispute the findings of one of the largest NHS trusts in the country ? And it's obviously not a funding thing , me being very rapidly progressed on the ED recovery course with professional pump fitting , spare rings , Viagra , Spedra and of course instant access to injection therapy !
I think if the pump wasn't working ( which it obviously doesn't for many men ) then I would seriously be banging doors down. I'll sit tight for a max of 2 more months ( 8 months total ) depending on how the new injections go and then see my GP . I'm sure he would prescribe it for me happily but wants to go with clinic advice. Are you suggesting by the way that the pump can damage the penis with overuse ? I try not to Google stuff anymore as it worries me !
Thanks all
Chris

Edited by member 15 Dec 2015 at 07:58  | Reason: Not specified

My GP would not prescribe Cialis 5mg daily...... I was only given a months prescription of 5mg daily by my consultant immediately after catheter removal.... 

Ironically my GP does prescribe me 8 x Cialis 20 mg per month..... but only after a letter was sent to him from my consultant ( I am copied in all correspondence ) 

My GP also needed a kick up the butt from the consultant to prescribe me Vitaros cream..... 

I distinctly get the feeling that that I'm not getting the help from my local practice that I should be?

I've never been refereed to an ED clinic or an incontinence clinic...... I will be asking some questions about this when I attend my local hospital for my 6 monthly PSA results and review  in Feb....

Luther

To bring a little light relief to the situation (pardon the pun)

I have to envisage what Lyn has just said, imagine opening the door to the postman in the morning and saying 'Hi just exercising my todger" or popping into Aldi to pick up your pistachios, getting to the checkout and saying "its the nuts that make me do it"

Be very careful if being Santa on Xmas eve, getting stuck in the chimney with a huge appendage might be difficult to explain to the firemen let alone the children!

xxx

Mo (having very naughty thoughts!!!)

Ladies , Ladies
Especially you Mo ! I think the air-miles have gone to your head. But great to hear MoJo is back ;-))
There is nothing fun about the pump I can assure you , but great use of the time whilst shaving especially if your sink is the right height. X

Edited by member 16 Dec 2015 at 17:48  | Reason: Not specified

I find it awful that Johny at 48 has had to wait 7 months for an ED appt. It's shocking !! In an ideal world a pump would be delivered to your house at 10 wks post op. Use it or lose it is one of the best things I learnt from the forum. I have nothing natural going on but great daily results easily with the pump. Keep at it

Hi,

A pump sounds useful if you can get one!

I first discussed this with my GP last July.  Had to wait until October to see the consultant at the ED Clinic.  Referred to the Pump Clinic who have given me an appointment for February and even then there's no guarantee I will be prescribed one.  I wouldn't be able to afford to pay for one myself and the thought of not getting one really gets me down.

I'm not allowed to take Viagra or similar due to my heart meds so there's not much I can do.

The reason why I see the pump as being necessary is because I'm concerned that if I don't use it, I'll will loose it, as others have said.  Everytime I read that, I stress out that I might have left things too long.

Steve

Edited by member 07 Jan 2016 at 23:37  | Reason: Not specified

Trying to send you pm but your box is full..?

HI All,

Quick update on my experience with Viagra,

Been taking 50mg 3 times a week for the past couple of weeks and as of today we had lift off, of sorts.

Something is certainly going on, at one point with a lot of encouragement id say 50-60% of what it should be.

Not bad considering my consultant had all but written me off only a matter of weeks ago.

Cant say its risen from the dead just yet but with time who knows

Johny

Chris, thanks for that

Hopefully i should be joining the pumping crew in the next couple of weeks,

Got an appt on the 1st, finally get to stick it in something lol

Johny

Hi Sanders
Whilst I fully empathise with you , leave the poor fella alone until the next consultation. That is the ideal time to express your desire to resume as full a sex-life as you can manage , as soon as possible. Make it quite clear you want serious help with this. Tablets are unlikely to work for you , but when it is safe regular use of a pump will keep your penis and its workings healthy. Alprostadil will be your drug probably which is Muse pellets or Vitaros cream placed inside the urethra , or the injectable version Caverject which is not as scary as it sounds mate. In the meantime keep him warm and massage him ( not in public preferably ) to keep as much blood in the area as possible. I remember Mr Wriggly looking very forlorn and feeling ice cold for ages. He looks so much better 7 months on. The feelings are there but the blinds are shut at the moment.
All the best. I know how you are feeling. It's awful. Take care
Chris

Hi Sanders, 

I have no experience of non nerve sparing surgery, so can not advise whether you will get movement or development in due course?

But I understand and believe that it is important to maintain blood flow to the area somehow.  That can be achieved in a number of ways, all involving manipulation of some sort.  The most effective way to get blood going to the extremity of the region is to twirl it, I kid you not.  Simple physics, and centrifugal force will move blood to the outside of the circle that you twirl.  Imagine a dancers nipple tassels, not sure if "nipple tassles" will pass the censorship bot, so just to be sure tassles that you see on the end of an exotic (strippers) dancers breasts pointy bits, that should get through.

Grasp the base of your penis and twirl.  Clockwise or anti clockwise, or should that be cockwise?  What a dreadful pun.  You should find that blood will flow to the end and it will colour up and become fuller.

I hear from a friend that this technique worked well for me! http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif  Needs to be done regularly as you can.  I was doing this pretty much as soon as my catheter was removed.  Sorry "MY FRIEND" was doing this pretty much as soon as my catheter was removed.  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif

atb

dave

Edited by member 20 Jan 2016 at 22:20  | Reason: Not specified

Asked the better half to see if she was up for it and she went into a bout of laughter when she read your post.

But yeah will give it a go.

Sandy

Chris - depending on your particular circumstances, it may be that side to side oscillation is sufficient and adequate to stimulate blood to flow to the nether ends?  

Sanders - the more weight you get at the end of your parts, the better.  Weighted tassles?  OR, your OH holding on and swinging from the end?  Could she/he dress up Tarzan style and do the "WHOOOOAARRRR AARROOAAHH OOOHHHARRR" a bit like Tarzan did when swinging through the jungle on the always conveniently placed vines?

JAT http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

dave

;-)

Did not occur to me Louise.

dave

Gave it a go also, certainly got bigger and I even managed an orgasm, albeit it was soft but strange that nothing came out either. Doctor gave me some Viagra to try but to no avail as we believe that no nerves were spared. Find that out on the 16th.

Anyway one plus point is that I do not need any pads as totally dry except for a wee squirter when I fart but working on that.

Everyday is an adventure.

Take care mate and keep twerling.

Sandy.

I was diagnosed last year from annual PSA as my father and grandfather both had prostate cancer and my father at nearly 81 has survived 21 years post surgery although forgoing the ability to get an errectiin after his first injection left him with severe stomach cramps for several hours!

Myself at 48 despite a fairly early diagnosis had surgery 6 and a half months ago with no nerve sparing as recommended by the surgeon with my scores. My treatment and help all the way has been fantastic it has to be said. I had the pump demo with the very same lovely lass as someone else here several months back and whilst it plays a very important role in rehab and maintenance for me has not been successful in use with my partner. It does enable some fun and dry orgasms but after hearing about it here have also tried with success the same in a flacid state.

I am currently building my way up on cavajet injections which despite increased doses can have varying success or nothing at all. First dose of 5 mg had a half reaction and yet my last dose of 20 mg had no affect other than aching balls for 2 hours. Errections or the discomfort whatever their state tend to last for between 2 and 2.5 hours. I get the odd woosy feeling when I inject but think this is more sociological than anything to do with the injection lol.

Even using the pump has its issues and had to have a larger sized cylinder to accommodate things adequately and find I need to build things gradually when I use it and pull down on my scrotum farly hard to prevent everything else being sucked in which is not comfortable to say the least! The lass who went through the operation of it was truly fantastic but it can take a while to find a way that works for you. Apparently in normal life us guys get up to 16 or more detections daily (mostly while we sleep) and this is how the body naturally maintains the muscle tone down there lol.

I bought a cheap version to start with but it's totally inferior to the prescription version as well as being a bit on the narrow side for me! The problem I have with the pump is that once you get to your full size and slip on the ring (makes you sinse first time and shaved is definitely the way to go!) It's only hard from the ring up. My partner Who I must say has been the most supportive I could ever have wished for, how do I put this has a very snug fit when everything worked previously and now this causes issues with achieving penetration. I am hopeful that the injections will eventually resolve the problem despite the drawbacks but either way it will not stop us having intimate time even if it is restricted. I fully intend getting out there and leading my life to its full.

One thing that is very apparent from reading everyone's individual cases here is that we are all very different in how we react and deal with stuff. My dad was dry from day 1 when they removed his catheter and I am still working on it but mostly dry after 6 months. Last year was not one of my best with this, my mother passing away and going (still am) through a divorce,selling and moving house in the next month all has an effect but I will not be knocked back and will do whatever I can to make the most of my life.

In some ways I see this as a blessing to give me that much needed boot up the back side and get on with my dreams!

Hi all

Saw doctor 2 weeks ago who prescribed Viagra, told to take half of a 50mg tablet more than twice a week to start with.

Well I am afraid it isn't making any difference to the old fella but I was told that may be the case as there were no nerves spared, in fact I don't think there was much left down there.

Had a meet up with consultant last Tuesday who informed me that the cancer was pretty wide spread in the pelvic area but thankfully no intrusion into my bones. Prostate was 80% cancerous, 7 out of 16 lymph nodes cancerous and seminal vesicles also badly affected, which were also removed.

Bad news was the 1.5mm spot at the bladder which they said could not be operated on due to the chance of severe damage to the bladder, so RT is being organised to try and get this destroyed. This was not really a surprise as I was told that RT would probably be required anyway.

Good news is continence has returned to normal with no more leaks whilst farting/sneezing.

Need to really get going on the ED side of things now as the consultant just said that he would speak to someone shortly but gave no indication of when and who. I have had a couple of dry orgasms, which were totally strange, although these were delivered with a very soft wee fella. Viagra at present making no difference so may have to invest in a pump as going with other guys comments it seems to take a lifetime to get one. Other option would be an injection but again was not given any indication when I would meet someone to discuss this.

Ready to get back to work too, I have a meeting with the company's medical team next week. Cannot wait to get back to work as starting to get cabin fever now.

Take care everyone.

Sandy

Sanders, instead of wondering when someone will sort it out for you, why not just ask your GP to make a referral to the ED nurse or andrology clinic in your area? If the GP says it is the consultant's responsibility, phone the consultant's secretary and ask him/her to arrange it. Push for the injections or pellets or even the gel. As you have had non nerve-sparing, it is a waste of valuable time to hang around trying viagra or other tablets :-(

I would avoid buying a pump if you possibly can get it on prescription. The proper ones cost around £350 but are available free on the NHS in most CCG areas. The sex-toy kind that you get from Amazon or Ann Summers are nothing like the proper ones.

Spoke to GP who put me on Viagra, told him about non nerve sparing but he told me to try them anyway.

He knew I had an appointment with consultant so probably left it for him but I will be making enquiries soon to try and get something done.

Your correct in the fact that tablets aren't doing any good and I am easting my time.

As regards the pump Lloyd pharmacy do them but you need a doctor's prescription. I cannot wait for one on Yhe NHS if it going to take months. Or even to get Yhe injections.

Thanks for the advice.

Sandy