I am 60 years and almost 18 months post op. Prior to the op had an active and satisfying sexual relationship with my wife who has continued to be supportive and active in my recovery throughout. We laugh a lot.
I have a question or two about ED but first need to give the background, so bear with me.
I have been using a pump regularly along with Viagra during this last year or so, as rehab therapy. Initially found the pump not very good for gaining a full erection as my old man tended to pivot at the base. When used with Viagra that helped. I found the side effects of Viagra were not nice mainly aching neck, blocked sinuses and headaches, but I persisted with it. I also found that I could get an erection enough for masturbation with Viagra but not sufficient for penetration I had to use the pump and rings for that. That worked reasonably well, but immediately after orgasm I had to get that damn ring off as it was so uncomfortable. I tried the SureRelease rings which were much better as they could be ripped off after orgasm and the discomfort went away immediately. By attaching a piece of string to the finger holes at the side of each ring my wife could easily pull the strings after orgasm and the ring ripped away easily. But of course there were only two of these rings provided with the kit and these specific rings are not provided on prescription. No problem, we can buy them privately.
Throughout this time the Uro nurse used the standard response "Well its early days". In fact I heard that expression so many times it became a joke between my wife and me.
Anyway after about 13 months I was referred to the ED clinic (can you believe I had never had an appointment with them up till then). The consultant said that the Viagra and pump had probably achieved all they are going to achieve in terms of rehab and recommended Caverject. An appointment was made with the ED nurse in another three months. I have to say I was pretty annoyed at this point as having been told that it was "early days" for the last 13 months, now suddenly it wasn't early days anymore!!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-yell.gif
So we had the appointment and have used Caverject 6 times now with the following results.
1. Afternoon. 10ug. Erection 2 hours. Painful ache.
2. Afternoon. 7.5ug. Erection 3.5 hours. Painful ache and panic setting in.
3. Morning. 2.5ug. Erection inadequate for satisfaction. Went away within 1 hour.
4. Morning. 5ug. Erection 95% adequate, not satisfying enough for my wife. lasted 1.5 hours
5. Morning 7.5ug Erection 1.5 hours. Good erection and satisfying
6. Afternoon 7.5ug Erection 2.5 hours Good erection and painful ache
My ED nurse said that they are trying to get approval for a new injection which results in less pain apparently. Waiting for that!
So my first question - has anyone else found that the length of erection time apart from being dependant on the dose also appears to be dependant on time of day? I wonder if it is down to the metabolism at different times of the day.
Second, does anyone know the name of this new injection and what the progress is within NICE for approval?
My main question - Having gone through the year or so of "early days" and now being told that the pump therapy and Viagra has "probably done all its going to do" so I am now on injections, are there any of you out there who have still regained almost total erection capability beyond 18 months post op. In other words is there still hope that I may get full recovery and is there anything I can or should do to help things along?
Thanks in advance for your input.