Erecting the Erection - Medication

Hi Chris,

Re the debate of whether or not to issue Cialis, I would consider approaching your NHS trust with a compelling case for the prescription, and this could, be backed up by your own trial if you felt that way inclined?

The suggestion that Cialis is no better than a daily use of the pump is demonstrably inaccurate.

You use the pump. The penis expands to fill the space created by the vacuum in the chamber. The flesh does not burst but fills the space, and is filled with blood and you probably get a somewhat purple appendage. Maybe to use the pump for 10 minutes or 20? While you are using the pump, blood is encouraged to flow to the penis, because that flesh is creating space for blood. Even though the blood vessels to that area nay be damaged because you are actively encouraging blood there it gets there? Maybe. The theory seems good to me. You stop using the pump, blood is no longer encouraged to flow to the penis, it just floats about wherever it is easiest to get to. The damaged vessels that had been calling for blood when you were pumping are no longer getting engorged, as the heart pumps blood and the blood flows taking the route of least resistance, the open undamaged vessels.

You take a Cialis pill, the drug works by encouraging blood flow and recirculation throughout the body. 24/7. Not just for 10 or 20 minutes, all day every day, while you are asleep. Combine this with a pump and you have a double edged sword attacking the problem and supplying blood to the damaged vessels.

When I bought my first lot of Cialis before I was prescribed, I think they cost me about £30 for 28 tablets.

If you buy a months supply, combine a daily tablet with regular use of the pump, and, IF this produces beneficial results for you, you could go back to your GP with a business case for obtaining them on prescription?

May be worth a punt?

You are still doing well young man.

atb

dave

the thread you started seems to have become the place to talk about ED medications and aids, I hope you are doing well and are able to get some benefit from this ongoing conversation,

Chris, I think you are doing amazingly well given all the circumstances. The thing that would worry me about your NHS trust making a blanket decision on Cialis is, that as far as I am aware, there has been no regional study to back up their thinking. The drug was trialled extensively worldwide the benefits it promotes were proven by these trials and it was deemed safe, hence its licence. From a swift internet search it does exactly what Dave has described. From what I have gleaned the perceived advantage over other PDE5 inhibitors like viagra and Levitra is that they are "event" drugs and hit harder with potentially more serious side effects. Cialis is more of an enabler, primarily because it is constantly in your sysytem. It is not 100% for every Man but then nothing is. I hate to be cynical but it does sound like this is a cost based issue fancied up to be something that attracts less criticism.

I know your ED clinic is stepping up to the plate and giving you as much help as they think they can but they could be missing the one treatment that might actually enable some of their ideas to work...maybe?

If there is no conflict with any of the drugs you are prescribed for both physical or mental wellbeing, then maybe you should at least try Cialis as others have suggested.

I know how much you want to play things by the book if you can, so maybe ask your GP for their professional opinion and see what he/she says about you using the drug privately for a month or two?

If you find it works then your GP or the NHS trust would find it very hard to refuse to prescribe it going forwards.

All the very best

xx

Mo

Luther see Johnny's opening post.  

This is one of the most irritating and potentially optimum recovery wrecking aspects of the whole recuperative process, the fact that unless you ask you probably will not get.  And even if you ask, that initial request may be met with what appears to be a reasonably based denial based on conjecture, musing and hearsay or at worst for reasons of budgetary restraint.

So many men appear here asking about what might be available, in some cases, some time after they would have been getting potential benefits.  You got to ask, put that request in writing with a good case for it being granted.  Make it difficult for anyone to say no to you.  My GP was very supportive, gave me what I asked for, but, he did say does it/will it work, can you show it's worth to you.  All understandable in this money limited day and age.  Being presented with a sound business case, IE their financial output likely to give a worthwhile recuperative outcome to me, I got what I asked for.  I was very fortunate indeed.

Go for it, ASK.  Worst case scenario, they say no, and with a really good reason.  But you are no worse off than you are now.

The subject of what can you/ should you ask for, should be a sticky here.  Similarly what you can do to aid recovery after an op, regarding rubbing, tugging and yanking at the penis considering that your urethra has been detached and re-attached. 

rant over.  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-yell.gif

atb

dave 

Johny

"He also said because iv not had a natural erection up to now its highly unlikely the Viagra will help, what do you think have i lost my window of recovery in the willy department?"

I got some stirrings and at about 11 months post op was put on 100mg daily sildenafil , it did have some effect but not full erections, as time went on the effect seemed to diminish. 15 months post op I stopped talking the because on the stricture issues, 3 months later I started taking them again and at first it had some effect, now again the effect seems to be diminishing.

The use of the pump has also been erratic, again because of the stricture but I can still get a 100 per cent of the pre-op size.  "Use it or lose it" is very good advice, but for those who were slow of the mark do not think it is too late to start now.

I use Muse with a fair amount of success.

All the best for your recovering.

Thanks Chris.