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User
Posted 03 Nov 2015 at 19:30
Hi finally got my diagnosis

24 samples taken

7 positive right side 6 positive left side-all low grade

Gleason 3+3= 6

Contained in prostate

Asked about T score-told not got one - moderate benign feeling prostate-didnt know what that meant-told when had DRE exam couldnt feel anything

Took this all as a positive

Specialist nurse says will probably be offered treatment as cancer is in both sides

Meeting to discuss probably 2 week today

User
Posted 04 Nov 2015 at 01:03
Garry

All very positive indeed.

Take your time to consider all the options. With that diagnosis there will be several including active surveillance a sort of "do nothing" option. It will involve regular monitoring and testing.

More posts from experienced people will follow.

Xx

Mo

User
Posted 04 Nov 2015 at 06:56

Just great news Garry in many ways . You have the time to think for sure . At least 2 weeks to thoroughly absorb the toolkit publications , so that you are up to speed with what they are telling you
Chris

User
Posted 04 Nov 2015 at 07:09

good news indeed, so know its time to chill and then look at your options

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 04 Nov 2015 at 07:22

Great that it's contained. Presuming you've had an MRI for them to determine that. Strange that there saying there isn't a t staging.

Bri

User
Posted 04 Nov 2015 at 19:32

Hi Garry, sorry that you have been diagnosed PCa but now that you have you can get it sorted.

I was diagnosed in Feb this year with cancer contained but aggressive, I have been on hormone therapy and radiotherapy(last one tomorrow) so would imagine that may be offered along with other treatment choices as well.

Others on here will ask questions to be able to guide you through what may be offered, they are all good with advice and some are very well informed so I am sure you will be well equipped to make decisions when you need to, unfortunately only you can make the decision that takes you on the treatment path but being in possession of as much information as possible will help you make it.

Best wishes, Chris/Woody

Life seems different upside down, take another viewpoint

Edited by member 04 Nov 2015 at 19:42  | Reason: Not specified

User
Posted 04 Nov 2015 at 21:14

I only ever really got a proper T figure until the histology post-op.
I saw the same 2 consultants until things got " really " serious , and then it was just the one. It's very un-nerving isn't it to feel bandied about. I hope things go well for you. Write things down to ask each meeting , take a partner or record the consult if you can. This way you can leave each appt feeling satisfied.
Chris

User
Posted 04 Nov 2015 at 21:20

I think it is just about the use of language - someone has misunderstood what you were asking or something like that. If you have been diagnosed but there was nothing to detect on DRE and the scan hasn't showed a developed cancer then it would usually be described as T1 until and unless it is found to be something else.

My husband was originally thought to be T1 - it was only changed when the pathology came back after the op.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 05 Nov 2015 at 00:37

Hi Garry,

I initially went to my GP, who imediately gave me a DRE, and then took blood for a PSA test.

At some stage in the proceedings she turned away to do something or other, allowing me to 'shoulder surf' and look at what she had written on her computer, I saw that she had recorded my DRE as 'smooth' and I took solace from that as I had read smooth prostates are more frequently benign than malignant.

Incidentally the PSA then came back as 30.1

The next step, back in 2007, was to have a TRUS biopsy, which came back as Gleason 9, T stage 2a.

Now the problem is that the TRUS biopsy does a fair bit of damage to the prostate, as most of us know the TRUS is followed by days often weeks of blood in urine and semen, God knows what is actually going on inside us.

So in those days they had to let things settle for 4 - 6 weeks before doing an MRI, as if they did it too soon all of the internal bleeding would cloud the scan.  I've heard it likened to ariel photography in wartime, if they take pictures too soon after bombing the smoke obscures the target and they can't see what was hit?

So in my case when the MRI was finally done, about 4 weeks later, I was upgraded to T3b.

Now I often wonder, and probablly will never really know, were those gradings accurate and had my tumour really grown from T2 to T3 in those intervening weeks, or were they anxious to get the MRI scan done too soon and was it internal bleeding/bruising or 'bomb damage' that they were looking at when they upgraded the 'T' score? 

So, sorry to ramble, these days they try and get over these difficulties by doing MRI tests before the TRUS, but even then with the best will in the world, all of these tests, DRI, PSA, TRUS, MRI etc are each imperfect in their own way, and the competent Consultant uses their knowledge and experience to take all test results into account before giving a final score.

Incidentally when I then went back last year for 'salvage' template biopsy, I asked about the Gleason score, T stage etc and was told none of that applies to irradiated prostates, which are well ravaged bomb sites, they just went back and gave further radiation to whatever looked like cancer, no numbers were quoted whatsoever.

In the final analysis there are really two main categories of results that you get from these tests, either the cancer is contained within the capsule and treatable on a curative basis, or it has already escaped and you are left with a paliative alternative, so far it looks good for you?  

:)

Dave

Show Most Thanked Posts
User
Posted 04 Nov 2015 at 01:03
Garry

All very positive indeed.

Take your time to consider all the options. With that diagnosis there will be several including active surveillance a sort of "do nothing" option. It will involve regular monitoring and testing.

More posts from experienced people will follow.

Xx

Mo

User
Posted 04 Nov 2015 at 06:56

Just great news Garry in many ways . You have the time to think for sure . At least 2 weeks to thoroughly absorb the toolkit publications , so that you are up to speed with what they are telling you
Chris

User
Posted 04 Nov 2015 at 07:09

good news indeed, so know its time to chill and then look at your options

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 04 Nov 2015 at 07:22

Great that it's contained. Presuming you've had an MRI for them to determine that. Strange that there saying there isn't a t staging.

Bri

User
Posted 04 Nov 2015 at 19:32

Hi Garry, sorry that you have been diagnosed PCa but now that you have you can get it sorted.

I was diagnosed in Feb this year with cancer contained but aggressive, I have been on hormone therapy and radiotherapy(last one tomorrow) so would imagine that may be offered along with other treatment choices as well.

Others on here will ask questions to be able to guide you through what may be offered, they are all good with advice and some are very well informed so I am sure you will be well equipped to make decisions when you need to, unfortunately only you can make the decision that takes you on the treatment path but being in possession of as much information as possible will help you make it.

Best wishes, Chris/Woody

Life seems different upside down, take another viewpoint

Edited by member 04 Nov 2015 at 19:42  | Reason: Not specified

User
Posted 04 Nov 2015 at 20:21

Thanks everyone

Did have MRI before biopsy which show it is contained.

I too thought it was very strange no T figure was given but specialist nurse said not been given one.This due to being unable to detect anything by a DRE.Don't know if this correct will query with consultant at next meeting.

Has anyone else come across this?

Have now started looking at various treatments.But will know more what is being offered after meeting consultant
Is it normal to see a different consultant as this will be my third?

User
Posted 04 Nov 2015 at 21:14

I only ever really got a proper T figure until the histology post-op.
I saw the same 2 consultants until things got " really " serious , and then it was just the one. It's very un-nerving isn't it to feel bandied about. I hope things go well for you. Write things down to ask each meeting , take a partner or record the consult if you can. This way you can leave each appt feeling satisfied.
Chris

User
Posted 04 Nov 2015 at 21:20

I think it is just about the use of language - someone has misunderstood what you were asking or something like that. If you have been diagnosed but there was nothing to detect on DRE and the scan hasn't showed a developed cancer then it would usually be described as T1 until and unless it is found to be something else.

My husband was originally thought to be T1 - it was only changed when the pathology came back after the op.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 Nov 2015 at 21:49

Lynne had 2 DRE doctor couldn't feel anything then consultant had a real good feel around said he couldn't detect anything
Had MRI due to family history
MRI came back showing large gland 52cc a small abnormal area in right peripheral zone and larger more significant lesion in right central zone
Did think the mri would give me a Tscore

Chris been told will be 2 more consultants at least and another different hospital to attend if any treatment needed:-)

Edited by member 04 Nov 2015 at 21:56  | Reason: Not specified

User
Posted 05 Nov 2015 at 00:37

Hi Garry,

I initially went to my GP, who imediately gave me a DRE, and then took blood for a PSA test.

At some stage in the proceedings she turned away to do something or other, allowing me to 'shoulder surf' and look at what she had written on her computer, I saw that she had recorded my DRE as 'smooth' and I took solace from that as I had read smooth prostates are more frequently benign than malignant.

Incidentally the PSA then came back as 30.1

The next step, back in 2007, was to have a TRUS biopsy, which came back as Gleason 9, T stage 2a.

Now the problem is that the TRUS biopsy does a fair bit of damage to the prostate, as most of us know the TRUS is followed by days often weeks of blood in urine and semen, God knows what is actually going on inside us.

So in those days they had to let things settle for 4 - 6 weeks before doing an MRI, as if they did it too soon all of the internal bleeding would cloud the scan.  I've heard it likened to ariel photography in wartime, if they take pictures too soon after bombing the smoke obscures the target and they can't see what was hit?

So in my case when the MRI was finally done, about 4 weeks later, I was upgraded to T3b.

Now I often wonder, and probablly will never really know, were those gradings accurate and had my tumour really grown from T2 to T3 in those intervening weeks, or were they anxious to get the MRI scan done too soon and was it internal bleeding/bruising or 'bomb damage' that they were looking at when they upgraded the 'T' score? 

So, sorry to ramble, these days they try and get over these difficulties by doing MRI tests before the TRUS, but even then with the best will in the world, all of these tests, DRI, PSA, TRUS, MRI etc are each imperfect in their own way, and the competent Consultant uses their knowledge and experience to take all test results into account before giving a final score.

Incidentally when I then went back last year for 'salvage' template biopsy, I asked about the Gleason score, T stage etc and was told none of that applies to irradiated prostates, which are well ravaged bomb sites, they just went back and gave further radiation to whatever looked like cancer, no numbers were quoted whatsoever.

In the final analysis there are really two main categories of results that you get from these tests, either the cancer is contained within the capsule and treatable on a curative basis, or it has already escaped and you are left with a paliative alternative, so far it looks good for you?  

:)

Dave

 
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