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A New Chapter

User
Posted 10 Feb 2020 at 01:37

Hi, 


I have my PSA checked every two months and my oncologist told me that she expected my results to continue to rise as long as I was on my present treatment (Zoladex).  


When I was tested in November I was pleasantly surprised that my figure had fallen to 2.50 from 3.20 in the previous test (in September).


My latest PSA results, two weeks ago showed a rise to 4.10, quite a jump from 2.50, two months before. 


I been trying to figure out why the November result would have been so much lower than expected and what may have caused it. The rate of rise has been fairly consistent in the two years since restarting treatment. 


I think I may have discovered why. 


A week before I took the November test I'd spent the night in hospital because my blood oxygen level had fallen to 84% causing me to be very breathless.  After 6 hours on oxygen I was sent home with a 5 day supply of steroid tables to take.


It was only the other day when I was reading possible treatments for advanced prostate cancer that it mentioned that steroids are sometimes given to slow down the progression of cancer. 


Could this be why the lower result occurred?  If so, should I be on steroids now rather than having than treatment at a later stage as it seems to have worked better than Zoladex alone?


In reality, I would be very reluctant to take steroids on a regular basis because of the side effects that I know can occur. My wife has been prescribed them for another condition and she is now diabetic as a result. 


I'd be interested to hear if anyone has any thoughts on my idea that it may have been the steroids that caused the unexpected fall in PSA.


Thanks. 


Steve 

User
Posted 10 Feb 2020 at 08:46

Steve,


I don't know if the steroids have anything to do with your psa score. What I will say though is even after my recent change in treatment due to the PC spreading. I am still on steroids, even though I have stopped Abiraterone and gone onto chemo. I must ask my onco why he has continued even though the abi has failed.  The benefits in the past have outwayed the side effects for me anyway so maybe they would in your case ?


Chris.

User
Posted 10 Feb 2020 at 09:55

Steve,


Steroids do seem to have a positive effect in keeping PCa at bay...........


Steroids can be used to try to shrink the tumour and stop it growing. The most effective steroid treatment is dexamethasone (https://www.nhs.uk/conditions/prostate-cancer/treatment/)


So certainly worth raising it with your consultant.


Best


Flexi

User
Posted 23 Mar 2020 at 02:05

Hi, 


Over the last few months my wife and I have had quite a few changes in our lives.  The biggest probably, moving to a bungalow after living at our old house for 36 years.  That was our family home but with none of our four children still living at home, it seemed the right time to downsize.  


The place we moved to needed complete modernisation including a new kitchen and bathroom, which all takes time.  We've only been there just over two months but my wife is unhappy that we haven't managed to get more done.


The new kitchen is due to be fitted starting this week but now she's convinced that it won't happen because of the coronavirus.


This is the problem.  She's always been a "glass half empty" type of person who believes that everyone else is having a wonderful life and the bad things only happen to us, not anyone else.


Now the coronavirus is here, she's convinced that we are bound to be the ones that will die from it because of our health conditions. 


I have always tried to be positive in my outlook in life but I'm finding it harder to live with a person who sees doom and gloom around every corner. 


We are self isolating, even though we have no symptoms, but it's becoming difficult even after two or three days.


Is anyone else having these problems. 


Steve 

User
Posted 23 Mar 2020 at 07:34
Had 2 new velux fitted on Friday, I was convinced they wouldn't show up but they did. Bigger issue - they didn't bring enough slates, but my wondert neighbour sorted me some out and all was well!
User
Posted 23 Mar 2020 at 09:31

Steve,


Tell be about it!  Trying to be reassuring I'm finding is in itself can be pretty draining too.  It's important to look after your own mental health. For me its pottering in the garden and listening to repeats of Gardener's Question Time! (and not thinking that we're supposed to be moving house in two weeks!).


Flexi


 

User
Posted 23 Mar 2020 at 14:40

All ok this in but being tech I’m kinda used to a computer screen. It’s like an extended lock down since surgery as I went offline 10 days before surgery. Then took it easy post RRAP albeit it a weekly social and daily walks. Now messing about with tech/tv plus a bit of Pilates and some afternoon sun in the garden. After this 12 weeks will have done about 6 months in semi lockdown. I’m ready for MarsOne 🤖🤪🤓

User
Posted 23 Mar 2020 at 15:14

 Steve, I do feel for you, living with someone who finds it difficult to find positives in every day living can be hard, especially at times like this. Moving house can be stressful, and doing house alterations hard going. Whilst David was having his treatments I was project managing our house extension, with a builder who turned out to be rather useless and quite dim.🤓we lived in brick dust and chaos for nearly a year. I was cutting veg one lunch time and the said builder’s boys had gone home as he’d not paid them.... I had paid him thou! I chased after him with large kitchen knife in hand, forgetting to put it down, he was horrified, scared and somewhat more compliant after. Though still a cr*p builder. 😊


Thankfully like you I’m quite positive, and hopefully resilient emotionally and physically. David can get a bit on the doom and gloom side, but he manages this with my help, and sometimes he’s right to be fed up.


I hope you manage to get the kitchen and bathroom completed, but not having it done might prevent you both from being exposed to this virus. 


I do also feel for your wife, I’m sure she feels vulnerable, this might add to her glass half empty feeling. Remind her when the work is being done, cutting veggies and getting frustrated with your worker can have results, but to


 


put the knife down first. This is not a post  about PCa, but I hope it gives you a smile.🗡🗡Leila 


 


scare the living daylights out of them. 


 


 


 

Edited by member 23 Mar 2020 at 17:20  | Reason: Not specified

 
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