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A New Chapter

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User
Posted 25 May 2016 at 10:29

Hi,

I managed to speak very briefly to the cardiologist who wanted me to have my Cardiac MRI. 

The good news was that I do not need any further treatment just at the moment and  she ok'd the Amsterdam trip. 

Not so good was that she said the MRI showed my heart has been damaged as a result of the heart attack and other operations I've had and unfortunately it can't be repaired.  So it looks like things may not improve.  I'll have to live with it. 

 

At least I'm alive.

Steve

Edited by member 25 May 2016 at 10:30  | Reason: Not specified

User
Posted 25 May 2016 at 11:32
Steve

Not the best news, but as you say you are still alive. Still being here always gives a hope of improvement. Enjoy the Amsterdam trip and don't do anything silly.

Take care.

Chris and Dawn

User
Posted 25 May 2016 at 11:46

hi steve
not the best of news, but you are still going to Amsterdam, stay off the wacky bakkie

regards
nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 25 May 2016 at 12:32
Steve,

After all you've been through you still have the green light for your Amsterdam trip. Shame about the other news though but as you say you're still with us.

John

User
Posted 25 May 2016 at 13:24

Sorry it wasn't better news Steve but forewarned is forearmed.

It presumably explains your constant tiredness?

Enjoy that Amsterdam trip

We can't control the winds - but we can adjust our sails
User
Posted 25 May 2016 at 13:31

Sorry the news was not the best.

Enjoy your trip to Amsterdam.

 

KRO...

User
Posted 25 May 2016 at 14:31

I guess at least you know where you are now and can plan accordingly. Hope you really enjoy your trip.

Best wishes

Rosy

User
Posted 02 Jun 2016 at 01:23

Hi,

Just had my last (hopefully) Zoladex hormone implant at 5.40pm today (Wednesday).  I really look forward to feeling a little better over the next few months.

Steve

 

User
Posted 02 Jun 2016 at 06:55
Steve,

The word 'envious' comes to my mind, I'm really pleased for you that you've had your last jab. Hopefully the side effects from the last 2 years will wear off for you soonest.

John

User
Posted 02 Jun 2016 at 07:39

Good news for you Steve.

Now it's just finding patience!!

We can't control the winds - but we can adjust our sails
User
Posted 02 Jun 2016 at 09:24
That's good Steve, I had my last HT injection last November and am feeling stronger and more alert than when I was having the injections. Hoping for the same for you asap.

Arthur

User
Posted 02 Jun 2016 at 11:35
Hi,

Just waiting in a very long queue at the hospital to have a PSA test done before my six month checkup with the oncologist next Tuesday.

Steve

User
Posted 02 Jun 2016 at 12:01

I'm very envious about having the last HT jab and look fwd to hearing of your psa result.
Paul

User
Posted 06 Jun 2016 at 15:41
Hi Steve

Hoping and praying for a great result for you tomorrow

Arthur

User
Posted 06 Jun 2016 at 16:46
Steve

Looking forward to hearing your good news tomorrow.

Thanks Chris

User
Posted 06 Jun 2016 at 17:28

Hello Steve,

Good luck tomorrow..

KRO...

User
Posted 06 Jun 2016 at 23:37

Hi,

Thanks for your kind messages. 

Well tomorrow (Tuesday) is my big day, my appointment with the oncologist where I find out if my PSA results indicate that I can come off my HT.  I hope everything is ok and that I end the treatment as planned. 

To be honest, I haven't thought too much about it until now because I've been so busy over the last few days with the work I've been doing for PCUK, photographing the London to Amsterdam Cycle Ride.  It was a great event, so many heroes taking part to raise money to help us all in our fight against PCa.  I was so pleased they asked me to take on this role, I finally got chance to see the city I've wanted to visit for ages.  I just hope they like the stuff I shot.

Well, I'll try and post my results tomorrow evening.

Steve

 

 

User
Posted 07 Jun 2016 at 12:39

Feeling sick.

I've just rung my GPs to check that I was actually given the 4 week dose of Zoladex last Tuesday as when I was leaving the GP's room I noticed that the box he took the stuff from said the dose was 10.8mg.  It's been playing on my mind since then so I rang to check this morning.  Couldn't speak to the GP who performed the act but spoke to another and he confirmed that it was the twelve week dose I was given so instead the treatment ending at the end of June, I'll have to wait until late August.  I told the GP twice before he gave me the jab that it should be the smaller four week dose.  He should have told me what he was doing.

I can't tell you how fed up I feel.  The HT has been wearing me down so much in recent months that I'm just tired of being on so many meds (15 a day, including my cardiac meds).  I can see why some decide to stop taking them.

Steve

User
Posted 07 Jun 2016 at 17:43
Hi,

Oncologist appointment not good news I'm afraid. PSA up again. Bone Scan and CT Scan to be arranged as soon as possible.

Some days just get worse.

Steve

User
Posted 07 Jun 2016 at 18:05

Oh dear - how much has it risen by? Hopefully, it is simply that the GP who gave the wrong dose also injected it incorrectly or the practice has been storing it badly

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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