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A New Chapter

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User
Posted 29 Nov 2016 at 08:15

Hi Steve,
sorry to hear of your recent issues.

Regarding your PSA, as you may remember I too came off HT at the same time as you and see my Onco in December.
I managed to sweet talk the surgery and had a PSA test last month which shows both PSA and Testosterone still on the floor.
I would guess yours will probably be the same as the HT takes some time to flush from the system.

Keep well matey,

Kevin

User
Posted 29 Nov 2016 at 19:45
Steve - hope all is well with your PSA test - Walter
User
Posted 09 Dec 2016 at 17:18

Hi,

Really sorry for not posting my latest PSA results earlier, I have been working all the time since I saw the oncologist on Tuesday (at least 18 hours a day!).

Well, I think I'm happy with the results.  My PSA increased from 0.070 at the end of August to 0.136 on the 1st. December. 

I was expecting it to rise when I'd finished Hormone Therapy (August) because I was told it would but I wasn't sure by how much.  The oncologist said the situation might be a bit clearer in sixth months time (June) when the HT was out of my system a bit more but at the moment, she was quite happy with the situation.  At least it hadn't risen dramatically.

I will have another PSA test at the start of March, just to see how things are going. 

Have a good weekend everyone.

Steve

 

Edited by member 09 Dec 2016 at 17:20  | Reason: Not specified

User
Posted 09 Dec 2016 at 17:48

Glad that you and the doc are happy Steve. Always a worry.

Working 18 hour days is a bit of a mixed blessing eh. Money for Christmas but too tired to enjoy it?

We can't control the winds - but we can adjust our sails
User
Posted 10 Dec 2016 at 02:10
Steve

Glad the doctor happy for the time being and hoping they bring the PSA under control.

Walter

User
Posted 10 Dec 2016 at 09:16

Sounds good to me Steve. Now you have a good run before your next test.
I hope you will continue to feel better without the HT, let me know when you are jogging/running again. Good luck mate

Paul

Edited by member 10 Dec 2016 at 09:17  | Reason: Not specified

User
Posted 20 Jan 2017 at 22:04

Hi,

Looking forward to taking part in a bucket collection for Macmillan Cancer Care tomorrow at our local Argos store. Only problem is that I have to work too so I will be calling back at different times of the day.

It's happening nationwide so if you visit an Argos store tomorrow, please donate a bit of cash. Every little helps. Thanks.

Have a good weekend.

Steve

User
Posted 20 Jan 2017 at 22:53

Good luck tomorrow Steve

We can't control the winds - but we can adjust our sails
User
Posted 17 Feb 2017 at 01:53
Hi,

Not what I wanted just now. I've just been admitted into the Cardiac Care Unit again after suffering chest pains for most of the day. Hopefully, I may be out again very soon. I have too much to do.

Steve

User
Posted 17 Feb 2017 at 07:47
Hard luck!

Rest, and cancel some of those things.

User
Posted 17 Feb 2017 at 08:13
Wishing you well Steve.

Arthur

User
Posted 17 Feb 2017 at 09:08
Steve

Hope it is nothing serious, take it easy.

Thanks Chris

User
Posted 17 Feb 2017 at 09:43

Trying to fit it all in Steve, it was bound to take it's toll. Hope you feel better soon

We can't control the winds - but we can adjust our sails
User
Posted 17 Feb 2017 at 09:47

Hope it is sorted quickly Steve

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 Feb 2017 at 10:30
All the best, Steve
User
Posted 17 Feb 2017 at 13:33
Hi,

Many thanks for your kind messages.

Have seen the Cardiac Consultant who has done all the work on my heart in the past and he wants me to do a treatmill test before he's prepared to discharge me.

The chest pains have settled down now and if I do well in the test, I'm a free man!

Also, if I do well, he'll approve me doing next month's Reading Half Marathon. So I'm hoping for a successful test.

Steve

User
Posted 17 Feb 2017 at 23:36

Hi,

Finally discharged from hospital this evening.

I did the Treadmill Test this afternoon.  I beat my previous best times. 11 minutes 25 seconds, during a difficult test where the speed and inclination of the treadmill increases every three minutes. You're not allowed to run, only walk, so it really pushes your heart rate to it's limits.

I was really pleased with how I did but when the results were reviewed by the consultant, he decided that they showed I did have a problem with my right coronary artery. It may be starting to block again (for the third time!). It's minor at the moment but he wants to see me again in two months time to decide if I need another operation. 

The good news was that he did give me the go ahead to do the half marathon.

It's good to be home.

Steve

User
Posted 23 Feb 2017 at 00:54

Hi,

Wow. A very special day today (Wednesday).

At lunchtime my eldest daughter gave birth to her second child, our third grandchild (all boys, we're halfway to a six-a-side football team !).

We feel so proud to be grandparents again and so excited about going to see them both in hospital tomorrow afternoon. A wonderful reason to visit the hospital rather than my experience last week.

Steve

User
Posted 23 Feb 2017 at 06:04
Congratulations, granddad!

Walter

User
Posted 23 Feb 2017 at 06:21
Good for you!

Pleased to read!

Bravo!!

As we the Spanish would say, ¡enhorabuena!

User
Posted 23 Feb 2017 at 08:55

Congratulations Steve and Mrs Steve. Some good news at last

Enjoy your hospital visit this time!!

We can't control the winds - but we can adjust our sails
User
Posted 06 Mar 2017 at 19:47
Hi,

Just had my results from a PSA test done last week. I'm really pleased, they have increased but not by as much as I suspected they would.

The figure has risen to 0.21 from 0.136 three months ago.

I'm happy with that.

Steve

User
Posted 06 Mar 2017 at 22:40

Good news :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Mar 2017 at 00:48

Hi Steve,

Good news, you deserve a break.

:)

Dave

User
Posted 07 Mar 2017 at 08:16

Happy for you, Steve

User
Posted 17 Mar 2017 at 05:06
Hi,

Two days to go before I take part in the Reading Half Marathon.

Hopefully trying to raise funds for Prostate Cancer UK.

Steve

User
Posted 17 Mar 2017 at 09:39

Good luck :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 Mar 2017 at 10:29
Steve

Good luck with the run. Any links to a sponsorship site ?

Thanks Chris

User
Posted 17 Mar 2017 at 15:25
Good luck Steve. Don't forget to listen to your body.

Arthur

User
Posted 17 Mar 2017 at 18:37

Hi,

Thanks for your "Good Luck" messages.

If anyone is able to spare any money for a donation, I'd be very grateful.

https://www.justgiving.com/fundraising/Nikon-Steve

Thank you for your help.

Steve

User
Posted 17 Mar 2017 at 19:41

Well proud of you giving this a go Steve. Take it easy and good luck

User
Posted 17 Mar 2017 at 19:58
Brilliant Steve keep going and good luck.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 19 Mar 2017 at 22:17
Hi Steve,

I've seen the results- on the Reading half marathon website - you did it - well done!

Hope your post race recovery goes well

All the best

Arthur

Edited by member 19 Mar 2017 at 22:20  | Reason: Not specified

User
Posted 21 Mar 2017 at 01:04
Hi,

So pleased to have completed the Reading Half Marathon on Sunday, the first one I've competed in for over 30 years. A very slow time (3hrs 14mins 06secs) but the only thing that mattered was finishing ok and not taking any chances with my heart.

It brought back memories of why I used to do these, it's so much fun.

I'm suffering now with aching muscles and the worst blister I've ever had, on my ankle, but doing it was so worthwhile, in spite of the pain.

There were times, after my heart attack, when I thought I would never be able to do one of these again. But this proves to me that everything's possible, if you want it enough.

Thanks everyone, especially my wife, for the support you have given me throughout everything.

Steve

Edited by member 21 Mar 2017 at 01:07  | Reason: Not specified

User
Posted 21 Mar 2017 at 08:31

I was so pleased to see you did it Steve, just getting to the starting line took some guts.

I hope you raised the money you hoped to raise.

We can't control the winds - but we can adjust our sails
User
Posted 21 Mar 2017 at 08:31
Fantastic achievement Steve - very well done. The blisters will fade but not the buzz.
User
Posted 21 Mar 2017 at 08:40

Bravo!!

Incredible guy!!

User
Posted 21 Mar 2017 at 09:04
Steve

Well done, great achievement.

Thanks Chris

User
Posted 22 Mar 2017 at 19:43
Well done Steve...

Hope all going well with you.

KRO...

User
Posted 22 Mar 2017 at 21:09
Fantastic news Steve.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 17 Apr 2017 at 11:52

Hi Steve,

as always I'm late. Well done on completing the marathon - I could never do that!

Never mind on your time, that shows that you didn't over-work your heart.  Great news on completing your treadmill test, the other day. I'm afraid I didn't complete mine last year. So I will be reviewed in a couple years time.

 

Frank.

User
Posted 14 Jun 2017 at 02:07

Hi,

Today (Tuesday) I had my 6 month review with my oncologist.  She was satisfied with my progress as my PSA had only risen to 0.356 from 0.136, when I last saw her in December.  The disappointing news was that she thought the effects of my Hormone Treatment (stopped last August) may last for anything up to another 18 months, as a recent testosterone test showed my levels were only 0.3, when the normal range is anything between 7 and 31. 

The side effects of the HT are still very much still with me and I'm sure it's the reason why I lack the motivation to do things sometimes.  Having said that, I would still recommend RT and HT as a treatment option as some seem to have much greater problems following surgery.

At least I'm still here and have a lot to be grateful for.

Steve

Edited by member 14 Jun 2017 at 02:14  | Reason: Not specified

User
Posted 14 Jun 2017 at 08:35

As you say Steve, you're still here.

Long may it continue (with improvement of course!)

We can't control the winds - but we can adjust our sails
User
Posted 15 Jun 2017 at 12:37

Thank you for sharing your news - good luck for the future

User
Posted 16 Jun 2017 at 20:47

Hi Steve I have not had ht and have the feeling of do i really have to do things at times so your not on your own chin up mate all the best Andy

User
Posted 08 Sep 2017 at 02:25

Hi,

I have not posted for a while but wanted to update my situation.

I had my latest PSA results this week and was a little shocked by the increase in the figures. 

I usually have the test done every three months and have found that the figure has risen in every test since my low point of 0.027 in December 2015.  It has been a gradual rise, with the figure reaching 0.356 in June this year.  With this test, I expected the figure to be around 0.5 but was shocked to learn that the figure has gone up to 0.910 this time.  At that rate of rise, the figure could be close to 1.50 by the time I see my oncologist in December.  She did say in June that she would consider restarting hormone treatment if the figure went over 2.10 as it probably meant that the curative treatment may have failed if that happened.

I feel as if, all of a sudden, I might soon be facing the prospect of the cancer being incurable.  I feel very uncertain about my future survival, in much the same way as I did when I was first diagnosed just over three years old.

Steve

Edited by member 08 Sep 2017 at 15:09  | Reason: Not specified

User
Posted 08 Sep 2017 at 08:18
Hi Steve,

Sorry to hear your PSA readings have risen, hopefully your Oncologist will have something to be able to reverse this.

Best wishes as always,

Arthur

User
Posted 08 Sep 2017 at 12:34
Thanks, Arthur.

I was feeling really good but it just shows how things can change so quickly.

Steve

User
Posted 08 Sep 2017 at 15:20

As someone once said to me,  "There's probably light at the end of the tunnel, but with my luck, it would probably be an oncoming train!"

User
Posted 08 Sep 2017 at 16:58

Hi Steve, Sorry your readings are rising like this. Are you now going to arrange seeing your oncologist or a specialist nurse before December?

As Arthur has said I am sure the oncologists will have a treatment plan in mind. Hopefully whatever they decide to do will knock your PSA back into submission. On another note thank you for your reply to the message I sent you a few weeks ago. It was very much appreciated and helpful. I did reply but was told your private message inbox was full!

All best wishes, Ian. 

Ido4

 
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