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User

Posted 07 Jun 2016 at 18:05

Disappointing is not a good enough word but I can't think of a better one at the moment. Hang on in there.

Thinking of you

Rosy

User

Posted 07 Jun 2016 at 18:12

Sorry to hear this Steve

Keep your chin up mate

Don't deny the diagnosis; try to defy the verdict

User

Posted 07 Jun 2016 at 21:31

Hi Steve

What is the rise? Glad you are having the scans, it will give the oncologist the information needed to make the right decisions.

Sorry to hear this news Steve, maybe it's lucky you had the twelve week injection of HT after all.

Take care

Allison xx

User

Posted 07 Jun 2016 at 22:29

Steve,

Sorry to hear your PSA is up, hopefully the scans are just a precaution.

All the best,

Arthur

User

Posted 08 Jun 2016 at 06:19

Steve,

Sorry to hear your news but wish you all the best for the scans.

John

User

Posted 08 Jun 2016 at 08:31

Hi Steve,

Sorry to hear this latest news... good luck with the scans

KRO...

User

Posted 08 Jun 2016 at 08:39

Hi Steve

Every time you are up, it seems there's a sledgehammer to knock you down again. Hope the scans results go OK and the PSA rise was due to the injection.

Paul

Stay Calm And Carry On.

User

Posted 08 Jun 2016 at 10:24

Originally Posted by: Online Community Member

Hi,

To be honest, I haven't thought too much about it until now becauseI've beenso busy over the last few days with the work I've been doing for PCUK, photographing the London to Amsterdam Cycle Ride. It was a great event, so many heroes taking part to raise money to help us all in our fight against PCa. I was so pleased they asked me to take on this role, I finally got chance to see the city I've wanted to visit for ages. I justhope they like the stuff I shot.

Well, I'll try and post my results tomorrow evening.

Steve

[/quote

Just a thought Steve - is it possible that your PSA has gone up because of being busy with the cycle ride?

Arthur

Edited by member 08 Jun 2016 at 10:26 | Reason: Not specified

User

Posted 08 Jun 2016 at 12:11

Thanks everyone for your messages of support,

Arthur, I made sure I had the test on Thursday before I left for the trip so that couldn't have affected the results.

My PSA in December was 0.027, April 14th. it was 0.043 and the most recent one was 0.054. Not high but my Oncologist is concerned that it's on the rise and has doubled since I was last reviewed. That, in addition to my decline in physical condition and wellbeing in recent months has raised her concerns about what's actually going on.

If it turns out that the radiotherapy I had in October, 2014 hasn't worked, I have lost my chance of a cure.

Steve

Edited by member 08 Jun 2016 at 12:36 | Reason: Not specified

User

Posted 08 Jun 2016 at 12:27

Steve,

Thanks for posting your results. Hopefully it is just a blip but I can understand your concerns. I'm 17 months past RT now and my levels have remained at 0.2 for the last two tests. I'm dreading my next Onco visit next month. I sincerely wish you well.

John

User

Posted 08 Jun 2016 at 12:29

Check out Ray's profile to remind and reassure yourself how the PSA can vary when you still have a prostate, of which healthy cells can repair over time.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 08 Jun 2016 at 13:56

Steve

Not the news you wanted and having a slowly rising PSA myself I know how you must feel. Try to stay positive, not that I always do.

Take care.

Thanks Chris

User

Posted 08 Jun 2016 at 19:31

Try to keep upbeat mate....some sound advice from Lynn..

Bri

User

Posted 08 Jun 2016 at 20:15

not a high number Steve it may still level off so all is not lost mate fingers crossed Andy

User

Posted 09 Jun 2016 at 21:11

Hi,

The hospital rang me this afternoon to arrange my bone scan: next Tuesday 10am injection, 1pm scan. More concerned this time than I was two years ago.

It's so weird, two years ago this week I was diagnosed. It was sunny, warm and the World Cup was just starting. This week I feel as if I have stepped back in time, similar weather and Euro 2016 is just starting and wondering what my future will be.

I really need to talk to someone.

User

Posted 09 Jun 2016 at 21:34

hope it is good news next week for you Steve wishing you all the best Andy

Edited by member 09 Jun 2016 at 21:35 | Reason: Not specified

User

Posted 09 Jun 2016 at 23:33

Steve,

I too was dx'd 2 years ago this week. Good luck for the bone scan, at least you know what to expect. I recall having that scan too.

John

User

Posted 10 Jun 2016 at 15:44

Hi Steve

You must feel like your whole life has been on 'hold' for 2 years.

I think we all probably have had that feeling, scared to plan anything, dreading blood tests, worrying and wondering what will happen next.

I hope that the scans will show that there is nothing to worry about, it is good news that you are getting these scans, so either way, action can be taken ( or not as the case may be). Another difficult wait though, both for them and the results.

My OH is due the full set of tests again in October and the test times seem to come around so fast.

Is there any support in the area, people you can chat to face to face?

Of course you always have us lot!

Alison

User

Posted 10 Jun 2016 at 18:18

Hi Steve
Don't worry , my psa goes up and down but has remained under 0.1 over the last 15 months. I don't worry too much about increases in the 0.0x range but then I'm an engineer.

Sounds like your photography sessions are great, they must give you great pleasure and motivation. Concentrate on the plusses Steve.

I'm thinking of you

Paul

User

Posted 10 Jun 2016 at 19:29

Hello Steve,
Have just started to pick up posts having been away again camping.
Sorry that you appear to have stepped back in time.

No point in saying "Don't worry" because you will eh ! Natural after all.

Next Tuesday will seem like a very long time to wait. I really really really hope that the scan can show reasons for the rise. Thinking of you as usual.
Best Wishes
Sandra

We can't control the winds - but we can adjust our sails

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