Dad has been diagnosed

Hello Tracey and welcome to the site.

We have many on here with high Gleason but although dad's PSA is extremely high it isn't the highest on here (look up Trevor Booth 13,000) so I hope that gives you some encouragement.

Treatment choices are going to be limited for him but there will be treatment available.

If you go to Publications and download the Toolkit, you will see what I mean. It is full of information. There are also the nurses on this site who can and will give their help during their opening times.

There will be replies I'm sure so hang in there and try not to worry (easier said than done)

The Toolkit may well give you and your dad some ideas of questions to ask at his next appointment. Get him to write them down beforehand and try and write down the answers as there is a lot to take in at these meetings.

Best Wishes

Sandra

Hi my OH was diagnosed approx 13 months ago same Gleason 4+5 [9] but with a
PSA of 23 ,his treatment has been hormone therapy ,tablets first month then injections every 3 months .He didn't start any until all the scans results were in to make sure they got a true picture of spread ,which had gone into lymph nodes.
He then went on to have 6 sessions of chemo which were every 3 weeks .Gary was lucky that he had very few side effects and was able to work all the way through treatment ,just at a slower pace .his PSA Dropped to 0.001 undetectable in quite a short time ,he is now on the stampede trial arm j which has kept PSA low but he does feel a lot more fatigued .garys still working and we're enjoying our new / differant life .hopefully your dads treatment will be as effective .
Trust your doctors they will only want what's best but ask as many questions as you can ,
Good luck
Debby

Hi again ,Garys chemo was Docetaxel ,6 sessions 3 weeks apart . Quite straight forward ,put anti sickness drug through first then chemo and finally the flush ,usually only took about an hour and 15 mins . Gary was lucky as only had hair thinning on head but lost body hair ,another side effect was that a couple of days after he had muscle cramps that eased after a couple of days ( not every one gets that ) .he had to avoid certain foods eg eggs,steak and meats had to be well done .
Gary worked everyday apart from 1 day after session no6 ,again everyone has differant levels .
Hope all goes well and if you need any other info please ask
Debby