Focal Laser Ablation

User

Posted 09 Oct 2017 at 21:03

Hi Lola,

How are you guys getting on? I hope you had a great summer.

His 3 month PSA was 1.85 so all consultants happy at that point.

I have been v chilled until tonight when I am not!

Fear is a good description!

Best wishes to you

Clare

User

Posted 09 Oct 2017 at 21:05

So, trust the consultants! 👍

Don't be afraid.

User

Posted 16 Oct 2017 at 16:54

On train back from London (where the sky has changed to a strange 'grey but bright' twilight .. no rain yet but the storm seems to be getting close.

The consultation went very well with nothing suspicious showing - she described it as a clean scan.

She said there was clear evidence that he was still healing which was not a surprise to her given the size of the ablated area.

So big sigh of relief.. next PSA at 9 month point and MRI at 12 month point.

So no plan to return to the USA but have uploaded scan for second opinion from the US consultant who performed the FLA.

No incontinence
ED -mild with no tablets ( varies from 80%- 100% of pre procedure erection strength, but not as stable as prior to procedure) . Consultant said with size of ablation he is doing well in this respect and it will continue to improve.she prescribed levitra 10mg which sorts it completely!. Cialis gave him a rash and viagra ( amusingly and counter productively) gives him a headache!

So hoping that's it for next 3 months and US consultant agrees!

User

Posted 16 Oct 2017 at 17:01

Glad to read, Claret.
Now, relax. Everything is alright. Xx

OH will be having his checking in November. Crossed fingers.

Best wishes
Lola

User

Posted 16 Oct 2017 at 17:15

Great news Clare. Hoping things continue on the right track for you

User

Posted 16 Oct 2017 at 22:09

Thank you Lola and Chris, appreciate that.,
Let us know about Nov Lola and keep enjoying life.

Chris I continue to follow your story- you are an inspirational man in a very challenging circumstance.and your honesty with your experiences is really appreciated.

User

Posted 28 Jan 2018 at 17:51

Well Last Thursday A had his 9 month PSA test. He is 100% recovered from the procedure I've had in Florida March 2017 with regard to erection strength and stability so I have fingers crossed for a good number at our consult tomorrow morning.

We could have rung for the 'number' on Friday ( my preference) but he wanted it from the consultant directly. so won't know till tomorrow.

Feel the pain for all who have this regular monitoring situation .. it's not fun is it!

Best wishes to all

User

Posted 28 Jan 2018 at 20:42

Well I’ve got my fingers crossed x

User

Posted 28 Jan 2018 at 21:24

Good luck for tomorrow, I prefer to know my PSA before a meeting, it gives me time too clear my mind if it is bad news and focus on a plan.

Thanks Chris

User

Posted 28 Jan 2018 at 23:45

Thank you Chris and Chris,

I too would have preferred to know the number before the meeting tomorrow but I understand he feels the risk of getting bad news and having to wait over the weekend to discuss options is too much mentally.

I don't know if you guys get used to it...I just want to hold him tight and make it better.

User

Posted 29 Jan 2018 at 08:35

I also usually get my PSA result before appointments. I have a test about a week or so before appointments.

Like others I prefer to go in at least with that knowledge even if it isn’t a good result.

I don’t know about others but I still get stressed building up to each test and waiting for the result. I don’t think for me that is likely to change.

Hope all goes well today.

Ian

Ido4

User

Posted 29 Jan 2018 at 10:06

The score is in:

PSA 1.77

Phew.. I was starting to build a 'mental monster'

Trending down

Pre FLA 3.56
Post FLA 1.85
9 month post 1.77

So life back for a period ... next stop 12 month MpMRI and PSA

Thanks to the forum for being a safe place to 'worry' and for the kind wishes received.

Clare

User

Posted 29 Jan 2018 at 17:40

Clare, now relax, look after each other and push this PCa stuff into the background. Go and celebrate!

User

Posted 29 Jan 2018 at 18:05

Good news Clare.

Ido4

User

Posted 29 Jan 2018 at 18:11

Originally Posted by: Online Community Member

Clare, now relax, look after each other and push this PCa stuff into the background. Go and celebrate!

AC I think that is great advice , with my father in laws 6 years with advanced PCa, his death and then A's diagnosis a couple of months later, into the research and decision making, the treatment olanvand recovery from the treatment it has been omnipresent for too long.

Very happy today and feel a weight lifted. So pushing the PCa into a 'small box ' is a great plan. A goes on his dad's and sons ski trip on Wednesday so the timing is perfect.

I slept really badly last night and tonight I think will be much more peaceful.

The docs have been amazing and we are v grateful to all

Thanks AC

Clare

User

Posted 29 Jan 2018 at 18:15

Originally Posted by: Online Community Member

Good news Clare.

Yes indeed Ian, thank you . Next time I am insisting we get PSA test and consult on same day.. hopefully that will suit our different view on 'knowing the numbers!'

User

Posted 29 Jan 2018 at 18:19

Ooooo , all very different from what we are used to on here. I guess 1.77 isn’t low but it wasn’t high pre procedure. But at least it has dipped down and you have survived the dreaded ED and incontinence which is trademark of other procedures. Great news and keep us informed and best wishes. Oh , and open a bottle x

User

Posted 29 Jan 2018 at 18:34

Thanks so much Chris,

We are celebrating indeed . the consultant says as he still has his prostate anything under 2 is very good news and supports the 6 month MPMRI which showed nothing suspicious and as he is probably still healing the downward trend is fab. She has been super supportive of our non standard journey.

Thanks to you too as your positive words throughout have been much appreciated Chris.

Clare

User

Posted 31 Jan 2018 at 00:02

Hi Clare

Thanks for your note - your email blocked me as spam and your pm box on here is full.

Ian

User

Posted 31 Jan 2018 at 18:31

Hi Ian,

Ah I didn't realise my inbox was full - I have cleared down now. Checked my e mail 'spam' folder and some interesting finds..but nothing from you...

Regards

Clare

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