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Focal Laser Ablation

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User

Posted 31 Jan 2018 at 19:41

Hi Clare hope all goes well, I am in exactly the same situation with Gleason 6 on both sides and currently on AS, nearly 2 years now. Very interested in how things turnout.
Keithyboy.

User

Posted 01 Feb 2018 at 00:04

Hi Keithyboy,

Thank you so much for your kind words.

I had a quick read of your posts and yes you and my husband have got a lot in common both age wise and being diagnosed via a company medical. Main difference is he didn't have symptoms but it sounds like yours may be something different.. fingers crossed you get that sorted.

We would have opted for the AS as per yourself ( it was offered but all consultants said due to its size this left side tumour would need treatment within 5 years so before he was 60).

So the 15mm core was the biggest but the agreement was all the 15 positive cores on the left were from one tumour.. like you his dad had PCa and that's what brought us to the FLA path.

The radical options offered just seemed like an overtreatment for a low risk diagnosis and the side effects .., well we couldn't quite get our heads around the quality of life impact.

Anyway all going well at the 9 month post stage...

Good luck with your AS ... long may it continue and you know we have taken a very positive spin on it all in realising life is fragile and so 'the small stuff' has never been so unimportant as in this last year and never has it been so clear that you need to get on with living life to the full,.. it has been strangely life enhancing!

Clare

User

Posted 06 Feb 2018 at 21:04

Hi Clare , thanks for the reply. Glad things are going not too bad for your husband 9 months on ,all things considered. It's very reassuring speaking to people on the site that are going through the same sort of dilemma and havIng to make possible life changing decisions and you don't feel you are on your own. I agree that your outlook on life changes somewhat when this sort of thing hits you in your mid fifties! I read a quote from someone on the site many months ago who said,..... "Don't dwell on the past as it has gone , don't worry about the future as it hasn't happened yet , but live in the present and make it beautiful " How I would love to put this into practice all the time, and as time passes it's becoming more and more relevant! Latest blood results this Friday for me , so we'll see what happens after that.
Hope all continues to improve with your husband.
Thanks again for your words.
Keithyboy

User

Posted 23 Apr 2018 at 15:16

Well one year MpMRI scan, PSA test and consultation today.

All good news pre FLA A was PIRADS 4 and diagnosed with a low risk high volume Gleason 3+3 tumour.

Today there is no sign of cancer and he is rated at PIRADS 2.

Today’s PSA was 1.87.

She considers he is now fully healed from the FLA and is moving him to 4 monthly PSA monitoring with an annual MpMRI

Gosh anxiety kicks inthe few days before the testing!

User

Posted 23 Apr 2018 at 15:59

That's great news for you both.☺ I know exactly what you mean about the anxiety around testing time. I suffer badly from that.Let's hope it improves as time goes by.

Best Wishes.

User

Posted 23 Apr 2018 at 17:23

Great result for you both. All the best

User

Posted 23 Apr 2018 at 17:31

Thank you Anne and Chris

User

Posted 23 Apr 2018 at 18:10

Fantastic result for you both.
Best wishes, Ian.

Ido4

User

Posted 23 Apr 2018 at 18:27

Thank you Ian.

User

Posted 24 Apr 2018 at 09:31

Claret - hard to believe a year has passed already - glad to read of these encouraging results.

Ulsterman

User

Posted 24 Apr 2018 at 09:37

I know Ulsterman the year has gone quickly.

Still got my fingers crossed for the discovery of a nice vaccine solution for the next generation .

With all best wishes

Clare

User

Posted 02 Aug 2018 at 16:45

Gosh these PSA tests come round quickly and I think each one is harder To go through than the last.

4 month testing is where we are at and 16 months post FLA treatment A’s PSA is 1.44

Phew.. it is easy to create all scenarios in the few days before the test but clearly we are thrilled.

Claret

User

Posted 02 Aug 2018 at 16:57

Just looking in.

Long may it continue

really chuffed for you both

Barry

User

Posted 02 Aug 2018 at 17:10

Thank you Barry.. I beat myself up in the days running up with ‘what ifs’ ..

still got my hopes on the vaccine for the next generation!

1.44 is lowest yet so couldn’t be more relieved!

User

Posted 02 Aug 2018 at 17:15

Really pleased for you both.

User

Posted 02 Aug 2018 at 18:09

Good news.

Ido4

User

Posted 02 Aug 2018 at 23:08

As I believe A's FLA was the only way his PCa was radically treated and he still has a Prostate ,1.44 after successive falls seems very good. This is much better than my latest PSA of 1.35 following successive rises following HIFU as salvage treatment for failed radiotherapy, my Prostate having been more severely damaged by the two forms of treatment. I doubt FLA would be appropriate for me now so maybe more HIFU or Cryotherapy. Let's hope Andy does not need any further treatment.

Barry

User

Posted 02 Aug 2018 at 23:13

Thank you Chris and Ian .. appreciate that

Clare

User

Posted 03 Aug 2018 at 12:06

Very interesting story.

Had never heard of FLA before, which is a bit annoying as I would maybe have been a good candidate. But too late now having gone the radical route. Don't suppose it would have been financially practical either as suspect AXA PPP would have considered it a "lifestyle choice" too.

Anyway, very happy to hear it's worked for you.

Nick

User

Posted 03 Aug 2018 at 23:16

Originally Posted by: Online Community Member

rhank you Barry, your posts and pioneering spirit continue to inspire and i appreciate your support.,

Clare

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