Yesterday was a pretty boring day, just the kind we like ๐ no temperatures, no catheter blockages, nothing medical of any note.
The kids brought in KFC for dinner and N munched his way through 3 pieces! He is on a ward of 4 but there was a little period last night where there was only him and one other left on the ward, it gave us and the kids room to spread and we had a good giggle. A lovely couple of hours.
Yesterday's gloomy moment was when the consultant came on the rounds, he is the chap who N was under originally. He talked about the possibility of the nephrostomies staying or perhaps going to the hospice for a couple of weeks and then seeing if they could try again with clamping them off. Nothing new there. But his response to the oncologist having booked a bone scan and arranged the radiotherapy and offered enzalutimide was "well that's very optimistic of him, I don't think you should have any more treatment, you are very poorly and perhaps should be just getting ready to go back to the hospice." OMFG, the man has absolutely no bedside manner at all. N is aware that he may not be well enough to start Enzo, he knows he may not manage without the nephrostomies, however, having a glimmer of hope, no matter how small, is what encourages him to try. Why would you take that away?!! Consultant seemed to be oblivious to how he was making N feel, he also said "oncologists like to order these scans every 3 months and they often treat beyond when is realistic" how unprofessional. I pointed out N has not had a comprehensive staging/spread review since summer last year but he said he didn't think it was necessary as it won't change treatment. Aaaarrrrrrgggghhhh, I want to get off the merry-go-round.
It took me all morning to soothe N back into a more positive state of mind, he was ready to cancel today's bone scan and just leave the nephrostomies and go back to the hospice and call it a day. It was awful.
Please excuse the moan, I just needed to vent.
This morning they are going to try clamping the tubes and he is going for a scan. And we will see what happens next.xx