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PSA 7.3 - referred to urologist

User
Posted 29 Dec 2018 at 15:50

Oh, Janet, not condescending at all. It was a combination of things that seem to have 'settled' me. Chris' post, everyone's posts, walking in the woods with a son who needed me more than I knew and some mysterious pill which my wife has hidden somewhere. I can't really take much credit at all tbh. I think the waiting has been the worst part of all this process (although being told I have Pca won't be party time either). I have no idea other than the reasons stated why I am more mentally 'prepared' now, but I think I am and I am prepared to go on with this now to the end.


H

User
Posted 29 Dec 2018 at 15:51

Chris - I know helping me has not helped you, but for what it is worth, you are a major inspiration to not only me but I am certain everyone on here.


H

User
Posted 31 Dec 2018 at 21:01

Happy New Year to you Chris and to EVERYONE who has helped me through to this point.


H

User
Posted 01 Jan 2019 at 11:53
H,

I am very pleased that you now appear to have achieved a certain level of serenity, albeit chemically induced.

I am sure we will have plenty to talk about next week, preferably ‘Bugger off elsewhere, you hypochondriac, there was nowt wrong with you all along’, but whatever the outcome the people here will be around for advice.

Happy New Year.

Cheers, John.
User
Posted 01 Jan 2019 at 12:14

Thanks John, yes the chemically-induced whatever, has helped; however, I have reduced the dosage and still have this strange newfangled mindset, with occasional wobbles. I think my mental state had hit the s*** or bust point & I have decided to face up to the s*** rather than go bust. If it was all clear (although I am not really allowing this as a potential outcome), I remember the urologist talk of a 3 month wait and further PSA etc. I'll be honest, John, I would be sorely tempted to say no thanks at that point and just take my chances on a clear targeted biopsy. Counter-intuitive, perhaps, but still. More realistically, I am just now hoping for a low or lowish Gleason and then get on with the treatment as soon as I can.


What I shan't ask for is a chest x-ray. I have smoked liked an idiot for these past 6 weeks, having only been an occasional smoker in the past.


Thanks as always.


H

User
Posted 02 Jan 2019 at 20:59

Evening John,


My urologist phoned me today, although my date for results was to be at the hospital on the 8th. He had been tipped off by anxiety issues from GP and he told me that my biopsy had proved to be negative. He said that I could pick up my macroscopic description report from my GP. This is what it read:        


1. Right Apex: The four core biopsies contain benign prostatic glands which are set within fibromuscular stroma. There is minimal focal chronic inflammation. There is no sign of malignancy.

2. Right Base: The four core biopsies contain benign prostatic glands which are set within fibromuscular stroma. There is focal chronic inflammation. There is no sign of malignancy.

3. Left Apex: The four core biopsies contain benign prostatic glands which are set within fibromuscular stroma. There is minimal focal chronic inflammation. There is no sign of malignancy.

4. Left Base: The three core biopsies contain benign prostatic glands which are set within fibromuscular stroma. There is moderate focal chronic inflammation. There is no sign of malignancy.

Summary: 1-4 Prostate Core Biopsies From Right Apex, Right Base, Left Apex, Left Base - Benign. Minimal Focal Chronic Inflammation.


Initially, I was stunned and elated, but (& forgive me for this), I have somehow now become fixated on "false negatives" & the urologist said on the phone that we would re-test the PSA in 3 months time to see if it is on the rise. I don't think I can imagine going back down that PSA route all over again.


I still have vague urinary issues (never at night) during the day when I might need 4 pees in 4 hours during the afternoon, which may be stressed related, but being the eternal pessimist, I still think the worst.


Sorry to bring this news to people on here who just wish me away, but there it is.


H


 

User
Posted 02 Jan 2019 at 21:13

C'est la vie. Now you can get on with it.

User
Posted 02 Jan 2019 at 21:17
That is fab news.. so pleased for you and how great they let know early.

What a great way to start a new year!
User
Posted 02 Jan 2019 at 21:24
Haig...... only 4 p***** in four hours ?? What a lightweight. I suggest you try to drop this for now and stampede on with living! My brother is a fully qualified doctor and won’t even have a psa despite my diagnosis. Happy New Year
User
Posted 02 Jan 2019 at 21:26

Thanks Claret. I don't think you know how much of a pain I have been on this forum of amazing humans though. Yes, great news, but having prepared myself so definitively for bad news, I cannot process what I have heard today. To now harp on about my fears of false negatives probably means people would want to reach through their laptops and punch me squarely on the nose.


I had somehow found myself after a horrendous 5 weeks of waiting for PSA and MRI results (as all surely have to varying degrees) in a better state of mind (largely chemically induced). I cannot rationalise this, but I almost feel like I am now unable to see that urologist again for a follow-up PSA. Right now, I want to call it quits and just take my chances and never see him or another PSA/Biopsy needles again. Counter-intuitive and clinically poor decision, I know.


H


 


 

User
Posted 02 Jan 2019 at 21:27

Hi Chris, funny you should say that. I have a GP friend too (he's 52) and he said he does not know or intend knowing his PSA. Weird how the medical profession seem divided on the whole issue.


H

User
Posted 02 Jan 2019 at 21:37

Wow, amazing results! honestly fantastic, hope you are celebrating


love Devonmaid

User
Posted 02 Jan 2019 at 21:42

Your genuine thanks is simply humbling; I cannot properly celebrate an unfinished diagnosis though. 


H

User
Posted 02 Jan 2019 at 22:10
H.

Fantastic results glad to hear they are all negative now bugger off and get on with your life 😊😊😊😊

Bob
User
Posted 02 Jan 2019 at 22:12

Bob. You star. 


H

User
Posted 03 Jan 2019 at 03:18

It seems like Dr Google fucked up! Maybe you have grounds for a medical negligence claim, against yourself?


I hope I have helped you a little bit through this traumatic time, and have not shouted at you too much. Sometimes you have to be cruel to be kind.


You are a lucky man, so now bugger off (and keep taking the tablets) and cut out those death sticks otherwise you might get a cancer to REALLY worry about!


All the best for the future, and Happy New Year.


Cheers, John.

Edited by member 03 Jan 2019 at 04:54  | Reason: Not specified

User
Posted 03 Jan 2019 at 04:26

Really pleased for you, Haig.  Still think we should meet - none of your pupils have ever transferred to us, and that can’t be right!  Happy New Year.


Ulsterman

User
Posted 03 Jan 2019 at 09:24

I'll be in touch. 

User
Posted 03 Jan 2019 at 09:27

Helped a bit? You're joking right? Massively, more like it. Still don't know why anyone isn't addressing the false-negative question - I mean I've read (don't kill me!) that it can happen even after biopsies performed with guidance from MRI.


H

User
Posted 03 Jan 2019 at 09:35
Perhaps there was a mix-up with your biopsy samples? Some one else got your results and vice-versa and you are really G5+5=10.....😉

Cheers, John.
 
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