Next Treatment Please

Hi everyone

a few things have happened (I've mentioned on other threads but wanted to keep it here too). John is now very comfortable on a syringe driver at home, his brother arrived a couple of days ago from Sweden, I called him on advice from the district nurse at 11pm his time and he arrived in the UK at 9.30 am. I don’t want him to miss time with his only brother as he missed his mum by a day and that hurt for years. Since then we have had lovely night sitters to allow me to have some rest, they aren’t in the least intrusive and I’m deeply grateful for their help. I did have a right old chase around yesterday to get some morphine ampoules as our pharmacy (usually excellent) were not good and my phone conversation went like this “the district nurses ask me to check if the morphine will be delivered before two so they can update the syringe driver, my husband is at end of life and needs this” “we only for the script yesterday” “ok, but this is urgent and he’s at end of life” “we only got the script yesterday and it won’t be in until four” “right, what have you got available and can I collect as I need two ampoules for the driver, we have four here” “you can collect the morphine but not the cyclosine” “ok, I’m on my way” phone put down. No, sorry to hear that, we will do our best, nothing. I popped into the GP surgery and mentioned it to them and they swing into action, taken into a room, cuddled, tissues, sit there, we will sort it all out, don’t worry, and they did. I did have to go to another pharmacy rather then the attached one, but two hours later I had enough supplies to last a few days. So far, that is my only encounter with a faceless, unkind person, I think they need an empathy transplant! 

John was asleep most of the day yesterday but ok and managed to eat something in the latter part of the day, he’s out of pain at long last and comfortable. I wish for nothing but peace now.

with love Devonmaid (for those that don’t know I’m also Allison) xxxx

DM

So pleased to hear things have settled down a little. Lots of hugs to you all.

Thanks Chris.

Like others have said Alison my love goes out to all of you , it reminds me so much of Trevor’s last few days .

i Remember how hard it was and how utterly exhausting watching but unable to do anything like John Trevor’s agitation and confusion  was awful and the deepest part of me was willing him to let go but also not wanting that finale moment .

i am thinking of you all xxx

BFN

Julie xxx

Things have quietened down now, John is less responsive and sleeping nearly all the time, it’s much better than the extreme agitation. Last night was spent with hiccups but I had a brainwave this morning and gave him some lorazepam and it’s stopped it so he can rest again now. I’m grateful for the carers coming in, it’s nice to see him washed and clean, much better than I managed it and safer for him. They always ask him if he wants to get out of bed but he never does. It was my birthday (and our little granddaughter’s) yesterday, so he got past the family birthdays thank goodness, no one wanted to have the sadness of him leaving us in those days, least of all John. He can barely speak now, reading up on the signs of dying, he is close now but much more settled and peaceful. I ask for nothing more.

with love Allison xxx

Hello Devonmaid

So glad John is more peaceful now and that He got through yours and your Granddaughter's birthday. 

Thinking of you all

Barbara xxxx