Just a brief update from me. So we’ve now done our DNR form and have also said that John will no longer have any acute admissions to hospital or IV antibiotics. He is getting weaker by the day, although the steroids are helping with some energy, at least he isn’t asleep all day. I’d say the pain is increasing and spreading but isn’t yet unmanageable, I’m hoping it stays that way. I don’t think he will go out again very much as it’s too difficult now, though we have booked a family meal next Sunday, I hope we can make it. It’s been a rather traumatic week but my adult children (girls) have been magnificent, tearful but very helpful to us both. We’ve all been tearful of course, but somehow our military black humour often surfaces and it helps. I went off to Bradford for work and yet again it took seven hours to get home to Swindon, why oh why, it’s mean to take three and a half but I’ve yet to make it under seven by car. It was a good thing really, our daughter looked after her dad and they wept together and talked and laughed and I had a couple of days away from it all and it was strangely an altogether good thing. The weirdest thing is I have now worked seven straight days, fourteen hours a day the last five (from home), the longest stint I’ve worked since 2010. Why now I wonder? It’s been quite helpful to me really as it certainly stops me dwelling on it all.
The hospice nurse has explained many things to me and I’m grateful for their care, the GP has said he will come out to visit us (shock!) so I know that we are in the final stage, even if I didn’t know already.
I'm rambling, so I will sign off now. Just wanted to let you all know we are all currently ok, if sad but as always (well nearly) wondering how lucky we have been to have for nearly nine years out of this bloody disease.