a few things have happened (I've mentioned on other threads but wanted to keep it here too). John is now very comfortable on a syringe driver at home, his brother arrived a couple of days ago from Sweden, I called him on advice from the district nurse at 11pm his time and he arrived in the UK at 9.30 am. I don’t want him to miss time with his only brother as he missed his mum by a day and that hurt for years. Since then we have had lovely night sitters to allow me to have some rest, they aren’t in the least intrusive and I’m deeply grateful for their help. I did have a right old chase around yesterday to get some morphine ampoules as our pharmacy (usually excellent) were not good and my phone conversation went like this “the district nurses ask me to check if the morphine will be delivered before two so they can update the syringe driver, my husband is at end of life and needs this” “we only for the script yesterday” “ok, but this is urgent and he’s at end of life” “we only got the script yesterday and it won’t be in until four” “right, what have you got available and can I collect as I need two ampoules for the driver, we have four here” “you can collect the morphine but not the cyclosine” “ok, I’m on my way” phone put down. No, sorry to hear that, we will do our best, nothing. I popped into the GP surgery and mentioned it to them and they swing into action, taken into a room, cuddled, tissues, sit there, we will sort it all out, don’t worry, and they did. I did have to go to another pharmacy rather then the attached one, but two hours later I had enough supplies to last a few days. So far, that is my only encounter with a faceless, unkind person, I think they need an empathy transplant!
John was asleep most of the day yesterday but ok and managed to eat something in the latter part of the day, he’s out of pain at long last and comfortable. I wish for nothing but peace now.
with love Devonmaid (for those that don’t know I’m also Allison) xxxx