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Next Treatment Please

User
Posted 03 Jul 2019 at 07:58

Thinking of you both, love Janet, x 

User
Posted 06 Jul 2019 at 20:41

DM

Sorry to hear you are both having a difficult time. Love and hugs to you both.

Thanks Chris

User
Posted 07 Jul 2019 at 11:49

thinking of you both.

Gordon ..  

 

Edited by member 07 Jul 2019 at 15:01  | Reason: Not specified

User
Posted 17 Jul 2019 at 21:10

Just a quick update, it’s our 43rd wedding anniversary today and I managed to get John to eat something nice, which was great as his appetite is poor and his tastes have changed so much recently. His pain levels are not nice, he’s now on 30mg of morphine every four hours and a 50ml fentanyl patch plus amitryptillin for nerve pain. The hospice and OT have been out thankfully offering help and guidance. We see the oncologist on Monday(can’t come soon enough as I prefer to know what’s actually happening rather than speculate). It’s a waiting game as usual, I’m hoping they might be able to do some RT, but it will depend on the calculation of what he’s already had. Other than that, I don’t know.

I will let you know what happens after Monday.

love Devonmaid 

Edited by member 17 Jul 2019 at 21:10  | Reason: Not specified

User
Posted 17 Jul 2019 at 21:24
Happy anniversary 🥂

Really hope he can have the RT. Good luck Monday

Bri xx

User
Posted 17 Jul 2019 at 21:53
As usual, you are managing to find the positives and blessings although I know that seeing J in so much pain is exhausting and distressing; sometimes, I don't know how you keep it all together as well as you do. Comfort blanket must be on its way to you, I think.

PS. Loved seeing your wedding photos on FB today xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 Jul 2019 at 22:02

DM

Happy anniversary to you both. Love and hugs. Chris

User
Posted 17 Jul 2019 at 22:55

Congratulations on your wedding anniversary and I am glad you enjoyed a nice meal. Wishing you all the best on Monday and hoping there will be something that can be done.

User
Posted 18 Jul 2019 at 07:42
I just want to echo what others have said. So pleased that you enjoyed a nice meal for your wedding anniversary. But I really do hope they can come up with something to help with the pain.
User
Posted 18 Jul 2019 at 09:03

Thank you kind friends, every day is special at the moment xxxx

User
Posted 18 Jul 2019 at 09:06
Happy Anniversary Devonmaid. Just wanted to let you know that I am thinking of you both. There is nothing I can do or say that helps really, but did want you to know that I think of you often, and check in quite regularly to see how you are going. Watching the pain is so hard, isn't it. And the wait until appointments sometimes seems interminable.

Crossing fingers and toes that they come up with something to help.

User
Posted 18 Jul 2019 at 11:28

Happy anniversary Devonmaid. Hopefully some RT can be used to reduce pain.

 

Ido4

User
Posted 19 Jul 2019 at 15:35
Happy anniversary and good luck for Monday. xxxx

barbara

User
Posted 19 Jul 2019 at 15:54

We went to get bloods done today, ready for Monday, it was so difficult as John seems really poorly and is suffering from sickness and can’t eat much. I called my lovely hospice nurse and she said that this could be down to too much calcium in the blood and recommended he take some of the anti sickness drug we had left from chemo (which has helped a bit). I am quite fearful at the moment, looking at his colour and general health. I’m off to Bradford again on Monday right after the oncologist visit (why have I done that to myself?), unless things are really bad, in which case I won’t go. I’m hoping for a plan but am very down hearted today, as are our daughters. In fact, all of us including John, have had tears today. It’s very hard watching someone you love suffer and be unable to do much about it.

not one of my best days, just letting off a bit of steam here as I do need to man up and carry on somehow, please bear with me.

love Devonmaid xxx

User
Posted 19 Jul 2019 at 16:31
Lots of love at this very difficult time. Just hope someone can come up with something on Monday.
User
Posted 19 Jul 2019 at 16:36
It must be so hard for you. Thinking of you. X
User
Posted 19 Jul 2019 at 17:00
As always sending hope and strength xx
User
Posted 19 Jul 2019 at 17:03

Sending love  to you both.

User
Posted 19 Jul 2019 at 18:43
It cant be easy for you both,

Hugs

Barryxx

User
Posted 19 Jul 2019 at 19:28

DM

Sorry to hear this, Love and hugs to you all.

Thanks Chris

 
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