Hi there, sorry to post on Christmas Eve. I will not be expecting any replies for the next few days!
My husband (59) has just been diagnosed with Stage 4 Prostate Cancer that has spread to his spine, hips, pelvis and ribs - and also lymph nodes.
He had been suffering bad back pain for most of the year but has a history of back pain and so decided to soldier on until the pain became pretty much unbearable and walking became difficult. His GP referred him for an MRI which showed the pain was due to ’deposits’ on the spine which had travelled from the prostate. He had blood tests which showed PSA of 1429.
He was referred to the local hospital for a bone scan and subsequent meeting with urologist as an outpatient - but two days before the day of the bone scan he slipped over outside and was taken to A&E in severe pain (to put it lightly). An X-ray showed a fractured hip which, it turned out, had been weakened by the cancer.
He had to wait over a week for the hip to be operated on due to various complications. (He had to have two blood transfusions due to low haemoglobin). Most of this time he was in a state of terrifying delirium due to being ’morphine naive’, also I suspect due to shock, pain, fear and disorientation.
During this time he had CT scans, bone scans and was given first injection of Deregalix (I’ll have to check the spelling of that).
He then had a full hip replacement and is back home. He has to give himself daily injections to prevent blood clotting.
I forgot to say that as well as it having spread to the bones it also appears to be on the liver (or something is). This sounds particularly worrying to me but the nurse said they will not be investigating this as if it is cancer on the liver it will be shrunk by the hormone therapy which treats the cancer wherever it is in the body.
He will have his second injection of Deregalix on 27th December.
We are trying to adjust to a new reality but not sure what that reality is. We are told that it is very treatable (we know it is not curable). We are due to see consultant in the New Year and the idea is to start chemotherapy in due course.
Needless to say, it’s a difficult time and we’re scared.
I would be very grateful to hear any thoughts. How bad is this? I know it is bad but dont know what may lie ahead. What questions should we be asking?
Good wishes to you all and thanks for reading.