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RP December 16th 2019

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User
Posted 08 Jan 2020 at 11:28

I think you are making great progress Dave - stick with it!!!

I also walked down to town and back yesterday for the first time - about 3/4 mile there and back. I knew it when I got back, but a few ibruprofen sorted that, although my tummy was sore on both sides when I went to bed.  Like you I can sit for longer now, and I'm about 90% back to normal on the bladder front - although still have a bit of stress incontinence, so padded up (level 1 from today).  PFE still continue and I can feel that deep inside things begining to ease as well.  Onwards ever upwards!!

User
Posted 08 Jan 2020 at 11:31

Originally Posted by: Online Community Member

Hi Dave 

Sounds like good progress thus far.

Lower back pain was a big flag for me too. I worked out a very light Pilates routine based on the NHS Pilates online video which helped quite a bit. Just some basic stretches etc but obviously going to be case specific. 

Just keeping it flexible and mobile seems to help. I’m six weeks in today. Sitting at computer still painful so just remote access main system with laptop remotely from the sofa. 

Things are settling so hang in there. Seems some big improvements in the last week in terms of no drips/leaks plus erections appear to be back to pre-op levels (taking tadalafil 2.5mg every 12 hours - I break tablet in half). 

How is the continence progressing?

 

I am still using 4 pads per day but changing them more often rather than waiting until they are to heavy, Some days are better than others depending on activity and whether or not a forget to clench when getting up and going to the toilet. I have started measuring how much water as I was drinking more than usual whilst taking antibiotics. I am now drinking between 1.5 and 2 ltrs of water per day.

User
Posted 08 Jan 2020 at 11:34

Originally Posted by: Online Community Member

I think you are making great progress Dave - stick with it!!!

I also walked down to town and back yesterday for the first time - about 3/4 mile there and back. I knew it when I got back, but a few ibruprofen sorted that, although my tummy was sore on both sides when I went to bed.  Like you I can sit for longer now, and I'm about 90% back to normal on the bladder front - although still have a bit of stress incontinence, so padded up (level 1 from today).  PFE still continue and I can feel that deep inside things begining to ease as well.  Onwards ever upwards!!

Sounds like you are doing great especially on the incontinence front. Long may it continue.

User
Posted 08 Jan 2020 at 16:16

Just received some great news. I have just telephoned the specialist nurse to ask her about some of my symptoms and is it any thing to worry about. Also why do I need to wait until March for a follow up. She has confirmed there is a letter in the post regarding my results of my prostrate. Which is. All of the Cancer has been removed with negative margin.

She did not go into any more detail but that's good enough for me. Hopefully when I do go for my follow up I have a very low PSA and there are no stray cells.

User
Posted 08 Jan 2020 at 16:26

Dave

Fantastic news! Massive positive step in the right direction. 

A good excuse to open a bottle of bubbly and have a nice meal 🙂

TG

User
Posted 08 Jan 2020 at 16:28

Originally Posted by: Online Community Member

Dave

Fantastic news! Massive positive step in the right direction. 

A good excuse to open a bottle of bubbly and have a nice meal 🙂

TG

Sound like a good idea

User
Posted 08 Jan 2020 at 18:52

Brilliant news Dave.

Ido4

User
Posted 08 Jan 2020 at 19:14

Dave

Great news , really pleased for you, hope your recovery continues.

Thanks Chris

User
Posted 08 Jan 2020 at 20:17

Thanks for everyones kind words.

User
Posted 14 Jan 2020 at 21:43

So chuffed to read your good news!

I too had the result of my 6 week post op PSA reading today; 0.02 and confirmation of negative margin in the tissue removed with the prostate.  Next PSA blood test in 4 months when I hope the reading will be undetected.

User
Posted 14 Jan 2020 at 22:25

Cheers Grant. Good news for you too. As mentioned on another thread I am waiting for a PSA result after 4 weeks and will get to know shortly. Fingers crossed. Bit soon for my liking but hopefully PSA level has had time to drop to very low level.

User
Posted 20 Jan 2020 at 17:28

Update 5 weeks post op. Although still experiencing some pain . I think things are starting to improve.But still taking quite a few pain meds.I am still taking things very slowly and walking about 1/2 mile a day sometimes a bit further and pottering about the house a little bit more. Keeping up with the PF exercises but still on about 4 or 5 heavy pads per day. Generaly feeling a bit stronger but a way to go yet. Looking forward to buying some specialist trunks and go swimming again. As stated on an other thread just received news of 4 week PSA of 0.03 so another boost after finding out about a negative margin. I really feel like I am heading in the right direction.

User
Posted 20 Jan 2020 at 21:10

Hi DaveBaxt

Good news on the PSA reading.

Sorry to read you're still experiencing pain and having to use pads etc but as you say, one day at a time, onwards and upwards!  

Cheers

Grant 

User
Posted 20 Jan 2020 at 22:02
Thanks for that Grant. Yes one day at a time sounds like the way forward and mainly positive going forward.
User
Posted 21 Jan 2020 at 16:29

You are doing good for 6 weeks. One day at a time is progress. All the best in your recovery.

User
Posted 30 Jan 2020 at 16:53

Almost 7 weeks post op

        feeling much better this past week with minimal pain. Walking over 2 mile every day and feeling stronger.Not much improvement on the incontinent ,although I think there is some improvement compared to when I first removed the catheter. My question is regarding Urine storage systems . As I am a keen walker I can see a problem arising fairly soon and believe it wont be long before I can walk further than the pads will last. I am wondering if there is a product where I can empty a bag via a tube at the bottom of your trouser leg.Similar to the one attached to the Catheter. The ones I have seen are attached to your thigh and do not have a tube on the bottom to reach the bottom of your trousers. Also wondering is the thigh a better position when using a sheath? Rather than at the bottom of your leg. Any answers would be much appreciated.

User
Posted 29 Feb 2020 at 12:53

 Update 11 weeks post RARP.

Just received appointment for follow up appointment 3 months post op. A long time to wait to see Surgeon but most of the initial proplems with operation itself are gone. Almost back to where I was before the operation. Still at 50% where I was with incontinence after TWOC. So slow signs of improvement with this. I am still doing PFE daily and coping very well with using a combination of Conveen system and pads. All supplied free of charge.

Still no improvement with ED but to be expected as had to use viagra before surgery. This is to be discussed at the follow up appointment. I am also having another PSA test on Monday and hoping there will be a slight improvement on the one taken only 4 weeks post op which was 0.037. Fingers crossed

User
Posted 29 Feb 2020 at 13:28

Dave

Hope all goes well. 

TG

User
Posted 04 Mar 2020 at 15:16

Just received my latest PSA result 11 weeks post RARP for follow up appointment. 0.007 so well pleased with that. Long may the low level continue.

User
Posted 04 Mar 2020 at 15:17

Great news Dave. :-)

 
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