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RP December 16th 2019

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User

Posted 31 Dec 2019 at 12:56

Do hope that you get seen soon and get some help.

User

Posted 31 Dec 2019 at 13:56

Thanks everyone for the kind words. Back home now after seeing the doctor. Who did a urine test. Good news he says I have a water infection so back on the same antibiotics I was on after the biopsies treatment were taken. So hopefully nothing to worry about and eased my concerns although still quite painfull. Especially after changing my white socks.

Some good news after drinking loads of water and waiting an hour and a half. I really put the inconvenience pants through their paces. I am amazed at how much water they hold and believe I have been throughing them away to early.

User

Posted 31 Dec 2019 at 15:57

Take it easy Dave! Hope the antibiotics kick in soon!

User

Posted 31 Dec 2019 at 16:08

Originally Posted by: Online Community Member

Take it easy Dave! Hope the antibiotics kick in soon!

Thanks. I hope so too. Doctor said it's quite common when your Urethra is shorter and with being incontinent. I have been very careful trying to keep myself clean and washing down below every time I change my pads/pants and showers twice daily. But still end up with an infection. Anyway good to hear you are doing so well and long may it continue.

User

Posted 31 Dec 2019 at 18:57

Take care Dave hope that the antibiotics kick in soon. . Hubby had infections after prostate biopsies just lucky not to have had a UTi after surgery. Sure you are going all the right things. Happy New Yesr.

User

Posted 31 Dec 2019 at 20:00

Thanks for the input Buckslady and happy new year.

User

Posted 01 Jan 2020 at 09:51

Originally Posted by: Online Community Member

Seems to me that you completely overdid things; going out 3 times in one day just two weeks after RP is bonkers.......You are at a significantly increased risk when you look at men here who have problems recovering their continence / erectile function they are often the ones who did too much in the early stages.

Maybe I would be enjoying rampant teenage erections again in what’s left of my penis if I hadn’t gone to the pub three times on my day of discharge from hospital, but somehow I doubt it.

I only did what I felt comfortable with post op, and I feel so grateful for my ten-day recuperation compared to the suffering and incontinence of others here.

Anyway, get well soon, and a Happy and Healthy New Year to all!

Cheers, John.

User

Posted 01 Jan 2020 at 11:14

Be honest, did you enjoy rampant teenage sex when you were a teenager????? 🤣🤣🤣

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 01 Jan 2020 at 15:51

Originally Posted by: Online Community Member

Be honest, did you enjoy rampant teenage sex when you were a teenager????? 🤣🤣🤣

Yes, with a lovely girl called Miss Palmer 😉

Cheers, John.

User

Posted 01 Jan 2020 at 22:52

Originally Posted by: Online Community Member

Maybe I would be enjoying rampant teenage erections again in what’s left of my penis if I hadn’t gone to the pub three times on my day of discharge from hospital, but somehow I doubt it.

I only did what I felt comfortable with post op, and I feel so grateful for my ten-day recuperation compared to the suffering and incontinence of others here.

Anyway, get well soon, and a Happy and Healthy New Year to all!

Cheers, John.

I love what you say about what's left of my penis..... this is definitely and visibly noticable for me. I knew it was a possibility give the fact that the urethra is pulled back after the prostate is removed to make the new join - I recon I've lost an inch at least 🤣🤣🤣🤣

User

Posted 01 Jan 2020 at 22:59

John

You knew her too... 🥴

User

Posted 01 Jan 2020 at 23:08

Hi BHP

i noticed a little less but not as much as I expected. One of the first things I checked post op as expected a press stud. Post catheter removal already ‘test drove’ it with the good lady and she said it’s at 70%. Started on tadalafil daily. Prescribed was 5mg to flatten the curve of usually dose. I’m actually taking 2.5mg (snapped in half) a day. From day 5 I got semi erection even though some nerves were taken to increase margin. At the moment things exceed expectations and are penetratively useful. Not like the old days buts it’s still early days.

I got a prescription for tadalafil but also bought privately as didn’t want to wait over Xmas period.

User

Posted 02 Jan 2020 at 09:46

Hi DaveBaxt

Thinking of you and hope infection dealt with infection and that you start feeling better.

Reading posts here of the complications, discomfort and difficulties some men have had, makes me realise just how incredibly fortunate I have been.

I am 5 weeks post RARP with none of the SE that I was worried about; apart from the shoulder pain and difficulty in getting a good nights sleep in the first week, I have had no incontinence issues at all and ED does not appear to be a problem either.

Best wishes for full recovery in 2020.

Grant60

User

Posted 02 Jan 2020 at 10:20

Third day on Antibiotics and 1 week since TWOC. Feeling much better,however I still have pain in my hip and top of my leg front. I noticed this the day after the operation and explained this tenderness to the surgeon who explained this was probably trapped gas where the robot has been inserted. The pain is somewhat worse since I picked up the infection. Its worse after sitting/ lying for long periods.Then getting up to walk around usually the pain eases when walking around for a bit.Hopefully this is nothing to worry about and will ease with time.

Regarding the Incontinence. I am still using 4 or 5 pads per day but drinking fluids right up to bedtime. My pad during the night remains fairly dry until the morning. However when I wake up its because I have slight pain to go to the toilet and have good clear flow when emptying my bladder. This happens once through the night as well.During the day the leaking issues are when getting up and down and walking about. Not sure if there is any improvement as I am allowing the Pants to fill right up. Almost too heavy to wear.Haha

User

Posted 02 Jan 2020 at 10:24

I was leaking just after my HDR brachytherapy. I weighed the pads new and after use, to work out how much I'd leaked (but as readers may recall, I measure just about everything).

Edited by member 02 Jan 2020 at 10:26 | Reason: Not specified

User

Posted 02 Jan 2020 at 16:26

I got in touch with the district nurse to arrange an incontinence assesment and she is calling around tomorow,

Apparently I can receive up to 4 pads per day depending upon how bad the incontinence is. Although I am only using pads inside the pants as they are easier to change and extra protection, any help with the cost will be appreciated.

User

Posted 04 Jan 2020 at 20:20

How are you getting on Dave?

User

Posted 05 Jan 2020 at 07:04

Just about finished the antibiotics and feeling much better no blood clots and pee clear. Unfortunately the antibiotics have made me constipated but doubled up on the laxative and eventually got going again. I still have some pain at the side of my stomach but suspect this is due to chronic back pain and sitting about more than usual. Getting out for a short walk each day which is helping. Regards the pads. The NHS are supplying 3 months worth at 4 per day so that is a big help. Hope you are still making progress so keep us posted.

User

Posted 08 Jan 2020 at 10:52

Finished the antibiotics a few days ago and all is well in the prostate area ie no pain and clear urine. Still preforming the PFE. I can even sit on harder surfaces for a while. Unfortunately I am still having pain issues in my left hip and the side where the wounds were.. I am now 3 and a 1/2 weeks post operation.Due to having complications with Cronic lower back pain I have started walking as this has always helped my back problem prior to the RARP .Yesterday I walked about 1/2 mile . The pains in my left side have returned with a vengence and once again wondered if I have over did things,although my last visit to the GP, he assured me I was not over doing things. I still have an issue with soft stools even though I have backed off the laxatives when I finished the antibiotics and only have a small glass of prune juice in the morning.I have tried several times to speak to someone in the urology department in the hope they confirm this is nothing to worry about and will settle down but not having any joy so far.

I am hoping that all these things will eventually settle down and appreciate I might take longer than most people due to lower back pain. However I do worry more than most people and believe I have a low pain threshold I do hope anyone reading this thread is not put off having RARP as I am sure for most people would not encounter this problem. Any comments would be greatly appreciated.Thank you .

User

Posted 08 Jan 2020 at 11:15

Hi Dave

Sounds like good progress thus far.

Lower back pain was a big flag for me too. I worked out a very light Pilates routine based on the NHS Pilates online video which helped quite a bit. Just some basic stretches etc but obviously going to be case specific.

Just keeping it flexible and mobile seems to help. I’m six weeks in today. Sitting at computer still painful so just remote access main system with laptop remotely from the sofa.

Things are settling so hang in there. Seems some big improvements in the last week in terms of no drips/leaks plus erections appear to be back to pre-op levels (taking tadalafil 2.5mg every 12 hours - I break tablet in half).

How is the continence progressing?

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