RP December 16th 2019

Hope you make progress rapidly. I am pretty much dry since yesterday. Been stress testing with some cider and not leaked yet. The pants give extra reassurance. Yesterday when I did an airport run for my father I wore tena 3 pad just to be sure as 40mins each way. All was fine but you never know. One thing to consider with pads is which side you sit. I tend to sit with penis to the left so when I started to wet myself on night of 19th December some leaked out into pants mainly as the pad was only just covering the end. Still pretty impressive as to how it managed the liquid update/absorption. I woke just as it happened and managed to intercept before any leaked onto the sheets. After that I used kitchen absorbent tissues stuffed either side of penis to act as a buffer to the pads and ensure I didn’t see out the sides too easily. Hope that helps a bit but hopefully you with be dryer soon. I did the same with pads as bought 20-30 of each tena 2 and 3 pads just for reassurance.

May be you did a bit much. Drink more and rest up. Agree with Kev re evening drinking.

Edited by member 31 Dec 2019 at 10:18  | Reason: Not specified

Hi Dave

4k is excellent therapy that’s for sure :-)

I found walking or sitting on a firm seat brought on bleeding for a few weeks. Keep sipping water to flush things even in the evening is my view as important to keep it diluted. I suspect it should settle with taking it easy and reclining non the sofa. Pelvic discomfort will remain for quite a while as it heals...keep popping the meds.

If you are feeling concerns I would call the medical team for reassurance. I was lucky as had most of mine on email so easier to communicate as they tend to be busy or on rounds so hard to catch them on phone.

TG

Edited by member 31 Dec 2019 at 10:22  | Reason: Not specified

Thanks guys. Should of listened a bit more. Decided to give 111 a call and now sitting in Urgent care centre which is about 5 miles away. Very sore after journey ii the car. Before setting off some relief standing but blood in urine cleared before leaving.

Thanks. I hope so too. Doctor said it's quite common when your Urethra is shorter and with being incontinent. I have been very careful trying to keep myself clean and washing down below every time I change my pads/pants and showers twice daily. But still end up with an infection. Anyway good to hear you are doing so well and long may it continue.

Thanks for the input Buckslady and happy new year.

Be honest, did you enjoy rampant teenage sex when you were a teenager????? 🤣🤣🤣

I love what you say about what's left of my penis..... this is definitely and visibly noticable for me. I knew it was a possibility give the fact that the urethra is pulled back after the prostate is removed to make the new join - I recon I've lost an inch at least 🤣🤣🤣🤣 

Third day on Antibiotics and 1 week since TWOC. Feeling much better,however I still have pain in my hip and top of my leg front. I noticed this the day after the operation and explained this tenderness to the surgeon who explained this was probably trapped gas where the robot has been inserted. The pain is somewhat worse since I picked up the infection. Its worse after sitting/ lying for long periods.Then getting up to walk around usually the pain eases when walking around for a bit.Hopefully this is nothing to worry about and will ease with time.

Regarding the Incontinence. I am still using 4 or 5 pads per day but drinking fluids right up to bedtime. My pad during the night remains fairly dry until the morning. However when I wake up its because I have slight pain to go to the toilet and have good clear flow when emptying my bladder. This happens once through the night as well.During the day the leaking issues are when getting up and down and walking about. Not sure if there is any improvement as I am allowing the Pants to fill right up. Almost too heavy to wear.Haha

I got in touch with the district nurse to arrange an incontinence assesment and she is calling around tomorow,

Apparently I can receive up to 4 pads per day depending upon how bad the incontinence is. Although I am only using pads inside the pants as they are easier to change and extra protection, any help with the cost will be appreciated.

Just about finished the antibiotics and feeling much better no blood clots and pee clear. Unfortunately the antibiotics have made me constipated but doubled up on the laxative and eventually got going again. I still have some pain at the side of my stomach but suspect this is due to chronic back pain and sitting about more than usual. Getting out for a short walk each day which is helping. Regards the pads. The NHS are supplying 3 months worth at 4 per day so that is a big help. Hope you are still making progress so keep us posted.

Hi Dave 

Sounds like good progress thus far.

Lower back pain was a big flag for me too. I worked out a very light Pilates routine based on the NHS Pilates online video which helped quite a bit. Just some basic stretches etc but obviously going to be case specific. 

Just keeping it flexible and mobile seems to help. I’m six weeks in today. Sitting at computer still painful so just remote access main system with laptop remotely from the sofa. 

Things are settling so hang in there. Seems some big improvements in the last week in terms of no drips/leaks plus erections appear to be back to pre-op levels (taking tadalafil 2.5mg every 12 hours - I break tablet in half). 

How is the continence progressing?

Just received some great news. I have just telephoned the specialist nurse to ask her about some of my symptoms and is it any thing to worry about. Also why do I need to wait until March for a follow up. She has confirmed there is a letter in the post regarding my results of my prostrate. Which is. All of the Cancer has been removed with negative margin.

She did not go into any more detail but that's good enough for me. Hopefully when I do go for my follow up I have a very low PSA and there are no stray cells.

Dave

Great news , really pleased for you, hope your recovery continues.

Thanks Chris

Update 5 weeks post op. Although still experiencing some pain . I think things are starting to improve.But still taking quite a few pain meds.I am still taking things very slowly and walking about 1/2 mile a day sometimes a bit further and pottering about the house a little bit more. Keeping up with the PF exercises but still on about 4 or 5 heavy pads per day. Generaly feeling a bit stronger but a way to go yet. Looking forward to buying some specialist trunks and go swimming again. As stated on an other thread just received news of 4 week PSA of 0.03 so another boost after finding out about a negative margin. I really feel like I am heading in the right direction.

Almost 7 weeks post op

        feeling much better this past week with minimal pain. Walking over 2 mile every day and feeling stronger.Not much improvement on the incontinent ,although I think there is some improvement compared to when I first removed the catheter. My question is regarding Urine storage systems . As I am a keen walker I can see a problem arising fairly soon and believe it wont be long before I can walk further than the pads will last. I am wondering if there is a product where I can empty a bag via a tube at the bottom of your trouser leg.Similar to the one attached to the Catheter. The ones I have seen are attached to your thigh and do not have a tube on the bottom to reach the bottom of your trousers. Also wondering is the thigh a better position when using a sheath? Rather than at the bottom of your leg. Any answers would be much appreciated.

Dave

Hope all goes well. 

TG

Great news Dave. :-)