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User
Posted 11 Jan 2020 at 12:04

Hi All, I have been recently diagnosed with chronic prostatitis, I believe the non bacterial form. Symptoms started approx 4 months ago and I therefore went to see my GP, who examined me and conducted a DRE. Following a course of antibiotics over 6 weeks with only minor improvement in symptoms I then went to see a urologist, who again examined me and conducted a DRE, they also requested urine and semen cultures both of which came back clear. At present I am therefore waiting to hear back from urologist on potential treatment programme.


I would therefore like to hear back from other sufferers on what treatment they have found that works. Currently feeling a bit down and low as symptoms have been playing up over the last few days where as previously they've been ok.


Thanks in advance

User
Posted 11 Jan 2020 at 16:02

One of the resident consultant urologists at The FOPS prostate support group went through the treatment for this at our last meeting in November. (It involves prostate massage, but medical by a urologist, not porn style.) If you are anywhere around Chorleywood/M25 J18, the next meeting is on Wednesday 16th January, and he would be very happy to talk with you I'm sure.

User
Posted 11 Jan 2020 at 16:12

Hi I do live nearby so will try and come along on Wednesday,w is the surname of the urologist ?

User
Posted 11 Jan 2020 at 20:34
I posted reference to Prostate Massage some years back but we had a retired GP on the forum at the time and he said it was a waste of time even if done by practitioners and did not recommend it. It requires knowledge and care if you do it yourself. (From memory his name was Conner or possibly O'Conner and he only posted for a few months). I believe the idea is to help excrete stale fluid.
Barry
User
Posted 11 Jan 2020 at 22:01
Cormac - (Lordinchiquin) Hasn't posted for a long time but was still a serving GP I think when he was diagnosed, he was quite young. The forum misses that kind of expert inside knowledge. Maybe he retired after the PCa diagnosis?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 11 Jan 2020 at 23:19
Now you write the name Lyn I remember it, also that he was dismissive of some of the posts on the forum but agree having the import of a GP or even a Consult occasionally, would be beneficial. I know having the views of an oncologist and answering at our questions at the Leicester meeting (Jamie? i'me not so good with names now) was greatly appreciated but of course such people are already overloaded. It also has to be admitted that not all professionals agree on everything medical and some, particularly GP's are rather behind in some of their views. This is not altogether surprising as medicine is such a wide subject with ongoing refinements and innovations and even conflicting findings in some cases.
Barry
User
Posted 11 Jan 2020 at 23:38

Originally Posted by: Online Community Member


Hi I do live nearby so will try and come along on Wednesday,w is the surname of the urologist ?



Lester, we can't name consultants in this forum.


He is the first named consultant in the Facebook event for Wednesday's support meeting.


 

User
Posted 12 Jan 2020 at 00:12
You can name medics who are speaking at events, or when quoting things that are in the public domain; research, articles, etc.

It's just our own nurses, doctors and consultants that can't be identified, dissed or recommended. Technically, the forum rules also prevent us from naming our hospital / GP practice but everyone seems rather laid back about the hospital-naming stuff.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 12 Jan 2020 at 00:15
Yes, it was Jamie who spoke so brilliantly at Leicester events.

Cormac had a rough ride from a couple of the big personalities and I think it hurt him. It must be a few years since his RT now - hopefully in full remission and living his best life!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 12 Jan 2020 at 08:47

Thanks Andy62


And FOPS is open for all prostate issues is including benign aspect like Prostatitis ?

User
Posted 12 Jan 2020 at 10:47

Yes, not just prostate cancer. The meetings discuss all male urology issues.

 
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