My husbands recent diagnosis of advanced prostate cancer

Thank you Ivan.

He’s been squeezing the tube slightly and that seems to have released some debris, he’s now emptied the bag 3 times in the hour. There were lots of little clots that’s came through it. Rob's urine seems to have been pretty pink for the start although he said he never saw it while in hospital! He hasn’t had any leakage from his penis so not using any pads at present.

It’s all just so worrying isn’t it….things have been pretty good so far but I know im inclined to panic. Doctor did say though if nothing is coming through it at all he must come in and not wait too long.

It was never mentioned about flushing the night bag with warm water. 

Elaine 

As a seasoned catheter wearer I have lots of things I do that I would not necessarily tell post RP surgery patients. I do the squeezing the catheter trick, I start where the catheter comes out of the body and work down to the bag. My catheters are made of clear material so it is easy to see if things are building up. I am guessing you perhaps have a tan coloured catheter. Of course you can't see what is happening inside the urethra. 

Ivan 

I asked about night bags on the facebook  site, out of 15 people 8 were given enough night bags to have a new one each night, 7 had to reuse a night bag for a maximum of 7days.  Some of the 8 had non reusable bags. There seems to be no consistently in NHS protocols.

Thanks Chris

Good that everything is back to "normal" Elaine and that you are multi-tasking. What women are good at!

Hopefully though you were not holding Rob's urine bag when holding the jug to make the gravy. Easy to get them mixed up and pour the wrong contents on the turkey.

As well as drinking copious amounts of water I was told to keep moving about and to walk around  as much as I can. I think over the last few days I have walked around my property more in those days than I had in the previous couple of years.

Have a good day

Ivan

Edited by member 26 Dec 2021 at 13:22  | Reason: Not specified

Other news….histology is in!

Still trying to get my head around all the terminology but from what I can gather and from surgeons response things look pretty good considering where we started.

50% nerves spared. Negative margins. And it was contained within the capsule so no seminal vesicle invasion or EPE etc. but PNI was noted.

1 out of 14 lymph nodes removed had some cancer cells in (which we already knew about) with no extra nodal extension….it was 7mm though so slightly smaller than first thought. Now it says no lymphovascular invasion identified, can anyone help with this? Just with it being N1 I thought there might be invasion.

New grading of T2 N1 (no letter after T2 (a,b,c) is there always? Gleason score upgraded to 4+5=9 not great I guess but someone posted recently about how HT could mislead and increase Gleason score so going to ask about this.

We have a meeting next week to discuss so will get all my questions ready for then.

Still working my way through trying to understand it all but any thoughts would be welcomed.

Thank you

Thanks Lyn. At the hospital they told him to walk as much as possible but don’t overdo it, also how it was a good time of year to explore London while it was quiet. It was just one day really that we walked a little too far, we did just meander with the dog but lesson learnt and certainly don’t want to risk a future hernia. 

Did you see my other post about the histology Lyn? Just wondered if you had any views on it? Your knowledge about any of this would be greatly appreciated. Thank you x

He would probably try Lyn if I let him 🤦🏻‍♀️😂

Thanks for your response on the histology. Atleast we’ll get to ask some questions soon. It was the No lymphovascular invasion that got me puzzled. I guess again I’m clutching at straws that when they took the lymph node then that’s it all gone! I think I’ve mentioned this before somewhere but my gran had breast cancer at 80, had mastectomy and they removed 3 lymph nodes (turned out 2 had cancer) she never had any other treatment and is now 95 and still doing fine. We will live in hope I guess. I’ll update next week when we’ve seen the consultant. 
Happy new year, and all the very best x

Thanks Gaz, yes things are better…catheter flowing well and not pink 🙏🏼 Only one more full day with the catheter all being well with TWOC and then post op consultation Wednesday. Busy week for us since we’ve been doing nothing for 2 weeks 😂

Hope all good with you 👍🏽