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At last, my penile implant

User
Posted 07 Nov 2022 at 12:38

Originally Posted by: Online Community Member

5 month update

...

My penis has lost some sensitivity.   

...

Thanks again for sharing with such brutal honesty! I am very glad it works well enough that you would do it again. On the question of penile sensitivity, I wanted to mention that I'm detecting a growing number of men who struggle with sensitivity over time, in my case Year 3 after radical prostatectomy.

I haven't had an implant but have some similar symptoms. Definitely get less exquisite pleasure when the glans part doesn't, as you said, "plump up" fully. And I don't fully understand why it is getting worse after 3 years. Maybe simply that I am getting older (only 64 and otherwise fit though) - or perhaps more likely that I am just not as easily aroused by the slightest sexual opportunity as I was when first recovering from RP and PCa.

User
Posted 08 Nov 2022 at 23:20

Hi,

I underwent a 3 piece implant around the same time, and will agree on the points that there are significant lifestyle changes that come with it.

You now have a completely lifeless appendage that does ‘show’ and have to think of containment, because it is uncomfortable and now un-natural for it to hang left or right (or upright). It does not shrink much from the pumped position. (Presumably it is not quite as bad as the malleable implant, which I discounted for that reason). 
As the Americans say, be proud and show it!

It is otherwise undetectable unless with intimate touching, and my wife says no different during sex, so happy days.
I was also not advised on how it would all feel but guess the surgeons don’t ask their patients as I have not had any direct contact since the operation and hopefully do not expect any.
There are many different pumping techniques/ instructions on use online, (1 or 2 handed, 1 or 2 thumb etc etc). More than one possible way works for me each time.

My pleasure has waned over the passing years, so no significant impact there.

Pleated, rather than fitted/regular trousers now hang in the wardrobe, as do spandex running shorts combined with longer tops. Totally different ‘separating’ underwear and new swimwear often described as gay interest and meaning more room in front! No hiding this package on the beach!

There really was not enough post op education or information from the teams involved on reflection, but I had researched comprehensively and am more than happy with the result, but it does matter how strongly prepared you are mentally, and able to accept and adapt with the results. Hopefully through more than one revision.

Either way, it’s dramatic losing your prostate or having significant ED and I consider myself lucky to have had the uneventful operation free, after being told my trust did not fund such operations. 

Mike

User
Posted 09 Jan 2023 at 00:48

Dear Ulsterman 

I think you really took one for the team. Your story really outlines the devastating effect of this disease and its impact on a man's very existence. I long for some longevity but accept that whatever the outcome quality of life will never be the same again.

A brave story that provides education and acts as a beacon of hope like the lighthouse of Blackhead Antrim.

Gabriel 

 

 

User
Posted 15 Jan 2023 at 20:15

HI I had a non nerve sparing RP three months ago, I had severe ED before, tried everything and was on the waiting list for a penile implant. I'm fairly continent but nothing happening at all concerning erections. Currently on Sildenfil every three days. Not sure when I'm likely to get the call but as with other posts I'm anxious about the possible results. The urologist said my penis will look like a marshmallow on a stick which doesn't actually sell it. Also, Ulsterman said he was told cycling was not recommended after the op, are there any things I should be aware of?

I'm interested to hear experiences, suggestions or advice.

User
Posted 15 Jan 2023 at 21:19

My doctors were most insistent about cycling.  I'm not to do it.  Horse riding is out, too, as are roller coasters.  Basically, you have a mechanical device in your scrotum and anything that could damage it is not recommended.  I used to do coasteering and enjoyed jumping off cliffs and waterfalls.  I think that's probably out, too.

 

As for your penis looking like a marshmallow on a stick.  An erect penis is better than one which doesn't get hard at all.  My penis has changed its appearance.  Being honest, I used to love my penis and was proud of it.  Now, I've got something that works.  That's all....it works.  I couldnt say I'm proud of it anymore. This disease is brutal.

 

Have you tried invicorp injections?

User
Posted 15 Jan 2023 at 21:23

Gabriel, I know not this lighthouse of which you speak.  Coming from the other side of Belfast Lough, I'm more familiar with the Donaghadee lighthouse, a painting of which hangs proudly in my hallway here in England.  I think our English friends are going to have a hard time figuring out how to say Donaghadee lol.

User
Posted 15 Jan 2023 at 21:26

An update.  The implant gives me very firm erections.  However, I've got a floppy glans/head.  Medication to improve that isn't great ..... alprostadil down the urethra.  The pain is reminiscent of the injections.  It looks like further surgery later this year to reposition the glans.  

Would I do it again?  To be honest, I think I would.  It's an imperfect solution.  But it is a solution.

User
Posted 15 Jan 2023 at 21:31

I thought 3mths post prostectomy was too soon to be thinking penile implants and looking to have an election?

User
Posted 15 Jan 2023 at 21:59

Good to know Ulsterman. I don't expect to have the implant anytime soon.  Before the op I was 60-80% sure about having it but now I feel I've got nothing to lose. Think I would definitely choose the three part implant. Also pretty depressed at the moment due to feeling emasculated. Tried various amounts of Caverject a couple of years ago without success, looking at a bathmate to improve the blood circulation instead of the sildenfil.

User
Posted 15 Jan 2023 at 22:57

Originally Posted by: Online Community Member

I thought 3mths post prostectomy was too soon to be thinking penile implants and looking to have an election?

You are correct but JDHD said he had pre-existing severe ED, so that will explain why he is already on the waiting list.

User
Posted 15 Jan 2023 at 23:05

JDHD, I don't understand why you are using sildenafil.  If you had non nerve sparing surgery, this will not work.  (That's what my urologist told me.)

I urge you to try invicorp injections whilst you are waiting for your implant surgery if you haven't already used them.  Many men have found invicorp worked for them when everything else had failed.  Make sure you're injecting technique is correct.

I don't know where you live, but all of my reading about the implant said to make sure you use a surgeon who really knows what they are doing.  I had mine done at UCLH which is one of the biggest providers of this surgery.

I got the AMS 700.  I think this is pretty standard.

User
Posted 16 Jan 2023 at 06:27

Hi Ulsterman, I haven't heard of Invicorp but like I said I have used caverject. I will ask about though. I'm in SW England. Apparently the Sildenfil is just to keep the blood circulation going and the penis able to become erect in the future, it's not to create an erection. I had an ultrasound and it showed a venus leak. 

User
Posted 16 Jan 2023 at 07:48

Invicorp is similar to caverject but made with different chemicals.    Many men have found success with it.

User
Posted 19 Jan 2023 at 17:16
Have decided to stop the Sildenfil, don't like the side effects. Going to try a Bathmate and see how that goes, Anyone tried it? Still a bit concerned about having an implant and reading some experiences on here make me hesitant. Nearly all the internet clips on Youtube show Americans giving a very positive spin on having a prosthesis.
User
Posted 19 Jan 2023 at 20:47

Never heard of a bathmate.

User
Posted 19 Jan 2023 at 21:01
It's basically a pump filled with water instead of air. Will ask about Invicorp.
User
Posted 21 Jan 2023 at 11:08

I'm told one of the Bathmate models is approved for supply on NHS prescription, but I've never come across anyone who got it that way. Also heard the SomaErect Response II accounts of 80% of NHS prescriptions (possibly because the iMedicare who supply it seem to run most of the pump clinics), and I suspect the Esteem Erectaid probably accounts for most of the remaining 20%.

User
Posted 21 Jan 2023 at 13:03
In our area, the Erecaid Esteem seems to be the default. On the forum a few years ago, the Farnhurst Elite was the most commonly prescribed. It is still on the NHS approved list although you hardly hear mention of it on the forum now. John had the Esteem but used Farnhurst rings with it as they seemed more effective.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 21 Jan 2023 at 14:36
I had real problems with the rings with the Soma, just couldn't seem to get the right size rings and getting them off was a real pain. I asked the urologist nurse about a pump but no reply, so have gone ahead and purchased the Bathmate as I want to get off the Sildenafil.
User
Posted 21 Jan 2023 at 14:51

Did you attend a pump clinic? The main rings used are the Surefit semi-transluscent silicone rings. They come in 3 sizes, X, Y, Z, with a Y being supplied with the pump and a pack of one of each usually also prescribed separately. You may need to use 2 rings (they'll tell you while they're demoing it on you). They should have shown you how to take the rings off, but in particular, you don't try to drag them off an erect penis which would likely do you some harm. It can be difficult to grip the tabs if there's lube on them, which there usually is by then.

 
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