The million dollar question

Great news. My PSA is down to. 47.However like you the hot flushes can be off the scale. On a positive note saves on the heating bills in these tough economic times. Keep on fighting!

Hope this helps

airy

Hi

Many thanks for the suggestion I will give it a try,my wife did do it before diagnosis and it did help and it did cross my mind.

While I'm on latest bloodtest is no change across the board so PSA 0.5 also had my 2nd 3 monthly prostap injection.

I'd also like to put out there my issue with peeing every say 2hrs since I've had my nephrostomy tubes out a few days ago,I'm trying a few things like only drinking water before and during mealtime and not drinking after 8pm,any feedback on this would be helpful.

Cheers Phil and all stay strong 💪 

Yes it's correct I'm afraid. It was said he was receiving ground breaking treatment. However a recent set back had prevented his attendance at the induction of Duran Duran in the Rock n Roll Hall of Fame.

Hi all 

Hope you are all doing well.

Update new from 3rd 3 monthly oncology appointment PSA down again from 0.5 to 0.478 excellent partial response with significant reduction in the pelvic side-wall adenopathy,individual conglomerate mass of lymph nodes now measure 11mm previously to 25mm in short axis dimensions,the improvement extends superiorly towards the retroperitoneum.

Normal appearance of the solid abdominal organs aside from a tiny cyst on the liver,no thoracic adenopathy no concerning lung parenchymal features.

So all in all not a bad day at the office,alas the view of my oncologist has not changed ,40mins late called in then rushed out with questions write down but wasn't asked,if only I could get rid of the nausea feeling I get I would be ok,but I have got stage 4 cancer so I suppose I have to expect such things.

Stay strong 💪 everyone and keep fighting the fight.

good news Phil keep battling my mate 👍 gaz

Edited by member 18 Nov 2022 at 22:08  | Reason: Mistake

Hi Phil, I think I would go with the cancer chemist at the moment and not worry too much about the slight rise in PSA.  Still well within normal limits.  When is you next PSA test?  Hopefully that will reassure you that the enza is still doing an excellent job for you. 

Good news on your quality of life too, keep enjoying every day as much as you can. Sounds like you are doing all you can to stay healthy so that’s all you can do at the end of the day. 

Cheers 

M 

Hi Phil I got a similar response re scan albeit the opposite reason as in we know it is spreading all over so no need to have another scan to tell us something we already know.  I think there is a massive demand on the one scanner they have here which I totally understand.  The NHS have been, as I am sure they have with you, outstanding with me.  

Look after yourself and fingers crossed for 7 weeks time for you 

Michael 

Hi

Thanks for feedback guys will take it all on board.

Regards Phil 

Peter

Hi All 

Not posted for a bit but do come on the forum everyday to read your thoughts and threads.Heres a quick re-cap of my journey Diagnosed April 22,stage 4,PSA 2104,4+4,N1 M1                                             May 22 PSA 3.58                                           Aug 22 PSA 2.6                                               Sept 22 PSA 0.502                                         Oct 22 PSA 0.5                                               Nov 22 PSA 0.478                                         Jan 23 PSA 0.826                                           Had over the phone consultation with oncologist today(because of snow)PSA up again to 1.01,slight concern from oncologist who is booking me in for urgent scans and perhaps radiotherapy and even chemo was mentioned,its knocked me and the wife back a bit as I thought I was ticking a long nicely with my QOL being not to bad,to be honest im feeling better now than i did 12 months ago it has been a rough 6/8 months after diagnosis physically,mentally and financially but I thought I would have a couple of good years on enza,I have holiday insurance in place for this year and have already booked up 3 hols with the first one being in a few weeks,I'm hoping that my oncologist is just being cautious and having the scans to back up the PSA readings,your feedback on this would be helpful.

Regards phil  

On my last appointment a couple of months ago I was asking for scans to back up PSA readings and was declined and yet when they are giving me scans a feel wary,there's no pleasing me.

Thanks phil

Hopefully it's a blip good luck Phil you deserve some gaz 👍

When my husbands psa stared to rise he had to have new scans done they came back insignificant change so hopefully this will be the same for you, fingers crossed.

Take care

ann

That’s reassuring Phil. Phew. Keep doing what you’re doing. Rooting for you. 

Hi all,hope you are doing as best as you can.

Well good news first PSA down a tad to 0.9..bad news 2 kidney stones found in left kidney after intense pain in back and fever after visiting A&E Friday 7th April kidney output down to 30% so single nephrostomy tube to be fitted ASAP before surgery and before further infection and possible sepsis....Good news at least its not the cancer causing the issue,at least its only a single nephrostomy(I had a double nephrostomy fitted for 5 months last year)and hopefully the tube want be fitted for to long,stay as well as you can all.

Regards Phil 

So good to hear you have had a lowered PSA Phil.  Sorry about the kidney problems but as you say it’s not the cancer and can be dealt with.  Hope you are ok and good luck to you 

cheers

Michael 

Good news Phil on psa front long may it continue all the best gaz 👍

Just shows you how well the Enza is working for you Phil.  Good to hear you are able to start it again and I trust they will kick in and bring you back down to Low levels again. 

Best wishes

Michael 

Hi all

Not been on for a while but have been reading your threads everyday,here's my latest update from oncology appointment today and and any advice you could give on kidney stents.                  Latest PSA reading is 2.4 that's gone up from 1.4 last month when I was diagnosed with kidney stones and a had a single nephrostomy tube fitted while waiting for stent to be put in place,I'm hoping that the rise over the last 2 months is down to stones and 1 week off enza,my oncologist is hard work and she has told me to prepare myself for chemo and has mentioned the PSA of 20 for this to begin,so I probably have a couple of 3 months to turn this around else it's bye bye enza,I'm still clinging onto the hope that the stones have had something to do with this rise we will wait and see.

Has anybody had the experience of a kidney stent??my procedure has been cancelled twice I'm booked in for next Wednesday I'm booked on a cruise for the Saturday after,some people say I shouldn't go some people say you'll be fine,I'm telling myself I'll only know until I've had it fitted but I'll only have 48hrs to make that decision,any thoughts you have would be grateful.this could be my last big trip away I've paid over 1000 pound for holiday insurance,it will be my 54th birthday while on board and I'm going with friends,me and my wife are going round in circles if we should go or not go.

Regards Phil