The million dollar question

User

Posted 06 Sep 2022 at 13:58

Hi Phil,

Hope all continues in a positive manner. A positive attitude helps, although we sometimes have to give in to the low moods as they are often related to the hormone treatment. You ever need a chat PM me.

All the very best

Cole.

User

Posted 22 Sep 2022 at 19:02

Hi all

Will results in from 2nd oncology appointment are in PSA down to 0.502!!!!! from over 2100 that's amazing news bone density looking good,liver and kidney function normal,alas double nephrostomy tubes not coming out yet until ct scans are carried out and results are in,oh well i can understand the oncologist and urologist being cautious in removing them but it's frustrating for me as I feel that I'm peeing more naturally than I have in the last 6 months.

Best wishes to everyone regards Phil

User

Posted 23 Sep 2022 at 06:09

Excellent news. Such a boost isn’t it! Rob had his latest PSA about 10 days ago and like you his numbers are dropping well.

Latest is .52.

We landed in Aus today with two boxes of Enzalutimide in tow. He’s still upbeat but even more so now we are visiting our daughter for a nice long holiday. The Enzalutimide has made such a difference to him, long may it continue to do the business, for you also.

Merilyn

User

Posted 23 Sep 2022 at 09:25

That’s great news Phil.

Ido4

User

Posted 23 Sep 2022 at 09:51

That's a brilliant response to the HT!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 27 Sep 2022 at 09:49

Brilliant fall in PSA Phil hope you are doing well. Mine is a bit more stubborn but I’ll get there too at some point I hope. Take care

User

Posted 27 Sep 2022 at 11:45

Really great news Phil, so glad you are responding so well to treatment 👍

User

Posted 27 Sep 2022 at 19:30

Hi all

Thanks for all your messages of support.

Could anybody recommend a good travel insurance provider for metastatic prostrate cancer?I contacted my provider who is linked to my bank and surprise surprise they won't cover,they have told me of a website called moneyhelper and I also rang Mcmillan and they mentioned the same people,I'm hoping to get away a few times next year so any input would be helpful.

Regards Phil

User

Posted 27 Sep 2022 at 22:53

Hi Phil have you tried Insurewith dot com. They seem ok. I suspect with your diagnosis the will want to speak to you once you do the screening questions. Worth a try

Cheers

Michael

User

Posted 11 Oct 2022 at 16:04

10th October 2022 latest CT scan no lymph node involvement,looks like enzalutamide has put the lid on the box for now on the flip side 10 weeks in to enza I feel more side effects (hot flushes to die for during the night,feel more fatigue)also bone ache to shoulders and neck but I'll pay that price for the lid to be shut.

User

Posted 11 Oct 2022 at 17:59

Great news. My PSA is down to. 47.However like you the hot flushes can be off the scale. On a positive note saves on the heating bills in these tough economic times. Keep on fighting!

User

Posted 18 Oct 2022 at 19:27

Hi all

Great news with the PSA count Cole may it continue,good news for me today after over 5 months with pipes coming out me kidneys they have now been removed but the burning feeling when I pee is a bit to bare,hopefully it's a 24/48hr thing and it will pass if anybody has any experience please let me know,had a blood test today so will let you know of latest PSA reading when I know in a few days.

Stay strong everyone and kee on fighting 💪

User

Posted 21 Oct 2022 at 17:02

Hi Phil, I think you mentioned shoulder aches, I've had them for a few years now I believe it's part of the cancer. something that helps me is getting the wife to massage my shoulders, spine and lower ribs, with a heat rub it does give me relief, just for a laugh one day we tried cannabis cream, another day we tried baby oil and to our surprise it didn't matter what we used so it must be the massage that does the job?

Hope this helps

airy

User

Posted 21 Oct 2022 at 18:03

good news Phil glad things are better good luck going forward 👍

User

Posted 21 Oct 2022 at 18:09

Many thanks for the suggestion I will give it a try,my wife did do it before diagnosis and it did help and it did cross my mind.

While I'm on latest bloodtest is no change across the board so PSA 0.5 also had my 2nd 3 monthly prostap injection.

I'd also like to put out there my issue with peeing every say 2hrs since I've had my nephrostomy tubes out a few days ago,I'm trying a few things like only drinking water before and during mealtime and not drinking after 8pm,any feedback on this would be helpful.

Cheers Phil and all stay strong 💪

User

Posted 11 Nov 2022 at 18:17

Hi all

Hope you are all doing the best you can and being the best you can be.

Is it right the news I'm hearing today that Andy Taylor from Duran Duran has been diagnosed with stage 4 prostrate cancer?

I shall be monitoring his progress to see if money can buy you more time.

Stay strong everyone 💪 and keep fighting the fight.

User

Posted 11 Nov 2022 at 18:25

Yes it's correct I'm afraid. It was said he was receiving ground breaking treatment. However a recent set back had prevented his attendance at the induction of Duran Duran in the Rock n Roll Hall of Fame.

User

Posted 11 Nov 2022 at 20:16

good to hear from you Phil glad you are doing ok seen where Andy is having treatment hope he and everyone else can keep battling away good luck to all battling this awful desease 👍 gaz

User

Posted 11 Nov 2022 at 21:52

Money doesn't tend to improve outcomes - famous men who have died of prostate cancer despite treatment include Roger Moore, William Hurt, Bob Monkhouse, Bill Turnbull and olympian Andy Ripley. Andy was a member of this forum and wrote about his treatments, his progress into palliative care and end of life issues. You should still be able to find his threads on here and for a few years, PCUK sold a t-shirt with his by-line on it.

Sadly, being a leading urologist doesn't necessarily protect a man either - a few years ago, four of the top UK urologists were diagnosed with prostate cancer, 3 of them advanced. John Anderson died a couple of months after this film was made. Sean Vesey died in 2015, 4 years after he was diagnosed. Professor Kirby is retired and currently the president of the RSM. I think Damian Hanbury is still practising.

https://www.youtube.com/watch?v=OvmKcsDlOq0

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 12 Nov 2022 at 22:41

Hi Phil

You recently sent me private message, apologies for not replying, unfortunately the private message function is not available to me because I have not yet participated in a sufficient number of public discussions. I have contacted the system administrator however they are unable to override.

regards

Joaquín

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