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My Journey through HT and RT

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User

Posted 31 Jul 2023 at 20:28

Thanks Ian, the support of everyone on this website means everything to me. If there’s one thing that can help take my mind off the forthcoming BIG tests, it’s my 2 wonderful grandsons!

User

Posted 13 Aug 2023 at 11:49

Big week for me coming up…I’m just so glad I have been chilling in the sun until yesterday, although chilling may be the wrong word as it was 40 degrees when we left Fuerteventura…not good for the hot flushes🥵

I was lucky to get an appointment with the ED nurse today who was very informative and empathetic. The appointment came a lot sooner than expected which is a little disappointing as I could have saved myself a lot of cash going privately to diagnose Peyronie’s…she was very knowledgeable on the subject and I could have had exactly the same outcome without the cost of going private😟
Anyway she took a lot of time to explain how to use the device..and she also confirmed that many men need the extra large cylinder, which is not supplied with the SomaCorrect, you only get small, medium and large. She said VERY few men use the smallest cylinder. So, a useful tip would be if you’re being supplied with a SomaCorrect, insist that they provide an extra large cylinder instead of the small one.
She’s also writing to my GP to prescribe me a 12 week course of Tadalafil to see if I get on ok with it.
So, all in all, a very good meeting and she’s left me her number to contact her.

Tomorrow is first PSA test 3 months after RT and I can feel the anxiety building…thank god for Sertraline which is keeping me on an even keel.

Ive been attending a ‘Living with PCa’ course run by Maggies over 6 weeks which has been excellent but which would have been even more use if I had been able to attend following diagnosis. On Tuesday there’s a follow up with the wives/partners…the men go off for coffee for an hour and the wives have a chat, and then the men come in for the last half hour. I think this is a great idea as it will give my wife a chance to talk about her feelings with others in the same boat. We’re a,l going out for lunch together after the meeting. Maggies really has been a great help to me.

Friday I hope to get the results of my PSA and I know I will be really uptight about it. Fortunately, it’s the monthly PCa support Group at Maggies in the afternoon so whatever the outcome I know I will be able to get some support from the others in the Group.

Then meeting with the Onco on the 23rd and not looking forward to this…I will need to go in WELL prepared with any questions….. for which I will get a VERY direct answer.

Finally, since finishing RT I have managed to put on 8kg, was doing fine before this. My son is a nutritionist and distributor for Herbalife products, so I’m going on a course of using the products to see how I get on. We already use the shakes and snack bars which are really good,but we maybe don’t take it seriously enough. So, this time it’s serious and I’m going to stop alcohol as well and get exercising. My current readings on the magic scales are:

Weight 99.3kg😟😟
BMI 27.2😟
body Fat 24.5%👍
Muscle Mass: 71.35kg
Muscle Quality: 58😊 (apparently I’m muscular🤷🏼‍♂️)
Body Type: 5👍
Bone Mass:3.7Kg😊
Visceral Fat: 14 😟😟
BMR: 2.192kcal
Metabolic Age: 52 😊 (I’m just a young thing😉)
Body Water: 46.1%😟

So, there you go, I’ve gone public now and will report back before my next Maggies meeting on the 15th September. I have no excuses for not making a difference, especially with weight and Visceral Fat!

Edited by member 13 Aug 2023 at 11:51 | Reason: Not specified

User

Posted 13 Aug 2023 at 12:57

It sounds like you have a very good support centre at your Maggies.

User

Posted 13 Aug 2023 at 17:36

Originally Posted by: Online Community Member

It sounds like you have a very good support centre at your Maggies.

Andy, Maggies has been a saviour to me…I just wish I had not been so stubborn and gone along earlier. I thought(as I’m sure many do) that it’s ‘not for me’. How wrong I was!

User

Posted 14 Aug 2023 at 18:04

Everything crossed for good PSA results 🤞

User

Posted 15 Aug 2023 at 01:22

Best of luck Derek for your PSA test and appointment.

The Maggie’s you go to sounds great. I’m not sure they’re all as good. I don’t think the one near us has specific groups for prostate cancer.

Elaine

User

Posted 15 Aug 2023 at 08:51

Hi Derek

Good luck with the PSA results. I am sure they will be fine. Don't have a Maggies near us unfortunately but do have a local cancer support group which meets monthly.

Envy your hot sunshine!

Peternigel

User

Posted 17 Aug 2023 at 18:05

PSA result just in. 0.3 which I think is pretty good considering my starting point of 36 at diagnosis.

Been on a very short fuse this week waiting on the result but much happier now😊 Fortunately I have a VERY understanding wife❤️

Onwards and Downwards🤞🤞🤞

User

Posted 17 Aug 2023 at 18:18

Great result.

Dave

User

Posted 17 Aug 2023 at 18:53

That's great, Decho. Now for some fun...

Best wishes,

JedSee.

User

Posted 23 Aug 2023 at 21:13

Great result Derek.. just read all your posts on your RT journey.. well done for sharing this with us it was excellent and very informative.

I am in a dilemma.. I’m 55 with a Gleason if 5+4 t3b N0M0 so far although paying for a PSMA pet scan hopefully within a week to confirm this.
I have spoken to two urologists regarding treatment. The first has recommended a radical prostectomy and the second seems to be steering me to RT as he said that I will Probably need SRT after the surgery anyway!

Could I ask if anyone could give me the pros and cons to both.. like everyone I am hoping to beat the horrible disease but wanted followers opinion on both treatment..

thank you and best of luck to you Derek and everyone

Mark

User

Posted 23 Aug 2023 at 22:37

Hi Mark,

Thanks for your kind words, it’s much appreciated. I saw my oncologist today, who, for a change, was quite chatty and helpful. Maybe because it’s the first time I’ve seen him without a mask! Anyway he’s quite happy with my current results. He said it may go down further after 6 months, but the important thing is that the PSA doesn’t rise to more than nadir +2.0. I did feel he dismissed my issues with joint ache…he said possibly down to just my age…sorry but that’s nonsense, these problems started after my HT jab back in April, just at the start of RT.

You face a difficult decision which you wouldn’t have to make in Scotland as you wouldn’t be offered surgery. It always bugged me that surgery was excluded for me, but at one of the meetings with my Maggies PCa support Group, I brought up this subject and the Maggies support specialist(who was previously head CNS for PCa) explained it to me. She said that there was a good chance that SRT would be required with my staging if I had RARP, and that having to deal with recovery from RARP and at the same time as the side effects of HT/RT is simply not worth the it, as the outcome of both treatments for me would be quite similar.

Well, that’s it in Scotland, is it for the patients benefit, or for financial reasons? I have no idea, but having it explained to me helped me put it into perspective and accept it. And although I get a bit envious whenever I hear one of my many friends at Maggies say how pleased they are that they had RARP and how successful it’s been, I just have to kick myself in the rear end and get on with it.

I wish I could advise you but that would be a mistake…which is why I guess the experts leave the decision to you. Maybe after your PET scan it will make things clearer for you.

There is no doubt in my mind that if it was clear to me that it was contained within the prostate I would have opted for RARP. Get rid of the mothership and deal with the side-effects of ED and recovery time…I’m retired so recovery time is not such an issue but ED is(despite my age🤣), but you need be proactive about ED…i think this is very important no matter what treatment you opt for.
However with T3b? Not sure what I would have chosen if I HAD the choice TBH.

You’ll have read from my posts that I’ve had a multitude of side-effects, not from RT but from HT, everything from Hot flushes to Peyronie’s disease…most of them I can live with and find ways to help, but so far the joint ache is the one that bothers me most, as if it gets much worse it is going to seriously affect my QOL…and I haven’t found a solution yet. Strangely enough though I cycled for 46 miles on my ebike on Monday and my knees were really good that evening! Weird! I’m determined as hell though not to let this stop me having fun and making the most of every day. There is no doubt that PCa has changed me but in many ways it’s for the better😊

Sorry for my rambling post..I’d be happy to speak to you more if you PM me or we can have a chat by phone if you think it would help.

All the best whatever choice you make!

Derek

User

Posted 24 Aug 2023 at 05:44

Originally Posted by: Online Community Member

I’m 55 with a Gleason if 5 4 t3b N0M0 so far although paying for a PSMA PET scan hopefully within a week to confirm this.

Mark, I would suspect that the 3b will mean you aren't given a choice [because the cancer has spread outside the prostate and maybe to the seminal vesicles]. If the cancer has indeed spread beyond the prostate, surgery is most probably not going to remove all of it. As someone who's been through the RT/HT path, I'd say that while it's not a barrel of laughs while you're in there, it does do the job and when you finally come out the other side you could well become a strong advocate for the RT/HT path. Maybe it's not surprising but if a treatment works, whether it be RT or a prostatectomy it does tend to create supporters for that approach in the aftermath.

RT today is significantly better than it was yesterday and is constantly improving with better targeting and even the ability to hit nearby lymph nodes if there's a problem there. There is some risk that RT at your age could lead to problems later in life but again, improvements in RT are resulting in treatment that causes much reduced chances of damage to nearby organs. As a high risk G9 person with some lymph mets I was blasted with a considerable amount of RT a couple of years back but I've had absolutely no adverse side effects [such as radiation proctitis] and now 8 months post the end of HT my psa still sits as <.01, so RT is rated as "with curable intent" and if you have to go that way you've got nothing to fear.

Jules

Edited by member 24 Aug 2023 at 07:43 | Reason: Not specified

User

Posted 24 Aug 2023 at 06:02

Originally Posted by: Online Community Member

I did feel he dismissed my issues with joint ache…he said possibly down to just my age…sorry but that’s nonsense, these problems started after my HT jab back in April, just at the start of RT.

Derek, I don't think there's any doubt that HT causes side effects that Drs aren't happy to acknowledge. This is going to vary from person to person but I had trouble with leg pain and leg nerve twitching which my Dr said was not connected to the HT. After a badly inserted injection gave me a rapid release of Zoladex [not the same drug you're on I know] the symptoms ramped up markedly, so at least I knew that I wasn't imagining things or otherwise declining.

The good news was/is that some symptoms become more tolerable as you "get used" to HT, though it's great to get off it. The further good news once you do finish your HT is that while it takes some time to get back to normal, there can be an instant improvement in terms of removing the supposedly non-existent side effects of HT. I'm talking beyond the obvious one of complete loss of libido.

Go the cycling! I got sick of being down on cycling strength and along with that, struggling to keep up with friends and bought an e-bike ... fantastic! I was going to hold off until I hit 80 but there's no way I'm going back to a standard road bike now.

Jules

User

Posted 24 Aug 2023 at 15:50

Thank you so much for the messages Derek and Jules.

I have my PSMA scan booked in tomorrow so will hopefully know where I am after the results of that.
Will keep you updated..

All the very best to you both

Mark

User

Posted 24 Aug 2023 at 21:02

Excellent results Derek. Keep going pal.

User

Posted 03 Sep 2023 at 20:45

Had a follow up meeting with the ED nurse on Thursday to discuss how I was getting on. I explained that I could not get as good erections with the pump as I do with foreplay so she made some suggestions about using the pump. She said I should be getting firmer WITH the pump. So I will need to keep practising.

Ive now been on Tadalafil and Vitamin E tablets for a a couple of weeks. Something is definitely helping with my flushes. I can’t see the Tadalafil doing anything so it must be the Vitamin E. my flushes are a lot less frequent anot nearly as intense, I can even cuddle my wife in bed without going into overheat!

I’ve got another follow up on 25th…excellent service once you get onto the bandwagon.

User

Posted 04 Sep 2023 at 17:52

Well, I’m ashamed to say my weight loss is not going well. I behave during the week but at weekends I lapse and the bottle of wine or gin comes out. I’m embarrassed to say I haven’t lost any weight since I posted on 13th August…well I did actually lose weight then put it back on😡

So my wife and I have given me a severe kick up the arse…no more weekend lapses. I have until the 15th to show some improvement ….I know it can be done💪💪💪

User

Posted 15 Sep 2023 at 09:31

Chuffed to bits today…I have lost 4.5Kg, all since shaming myself on the 5th September…on that day I was 99.8Kg and am now 95.25, that’s the lowest I’ve been since January!
Ive not starved myself either, even allowed myself a G&T at weekend. Generally my diet has been…
Breakfast:
Banana Herbal Life shake or porridge, scrambled egg brown roll on a Saturday as a treat.

Lunch:
Herbalife Shake with frozen Strawberries and blueberries…or if I’m out a Herbalife Meal Bar

Dinner:
Normal dinner….I even had Haddock and chips(just a few) last night!

For snacks I have Herbal life lemon or almond chocolate bars which are lovely. I had a G&T (light Fever tree) each day over the weekend along with a few unsalted cashews. And also eat lots of fruit. I still have my one Caffeinated coffee a day as it makes me feel good😊

I am exercising regularly at the gym, in the pool, walking and cycling…but I was doing that before anyway so most of the weight loss is down to diet.

I feel so much better, my joint ache is improving(interesting 🤔🤔🤔) and I am determined to lose more.

It’s my Maggies PCa Support Group today so I can go in with my head held high. My target for the next meeting is 92Kg

Previous results were:
Weight 99.3kg😟😟
BMI 27.2😟
body Fat 24.5%👍
Muscle Mass: 71.35kg
Muscle Quality: 58😊 (apparently I’m muscular🤷🏼‍♂️)
Body Type: 5👍
Bone Mass:3.7Kg😊
Visceral Fat: 14 😟😟
BMR: 2.192kcal
Metabolic Age: 52 😊 (I’m just a young thing😉)
Body Water: 46.1%😟

My vital statistics on the Magic Scales this morning are:

Weight: 95.25Kg 😊😊😊
BMI: 26.1
Body Fat: 21.5
Muscle Mass: 71.1Kg
Muscle Quality: 65MQ
Body Type: Average. That’ll do me
bone Mass: 3.7Kg
visceral Fat: 12.5. Needs to come down
BMR: 2170 kcal
Metabolic Age: 52. Young at heart AND body
Body Water: 46.7%. Need to drink more (water!)

Next reporting date 17th November.

Edited by member 15 Sep 2023 at 09:35 | Reason: Not specified

User

Posted 15 Sep 2023 at 16:15

Good result Derek. I've been on HT for 5 years now, was 12 stone for 20 years prior to PCA diagnosis but put on 1.5 stone very quickly although my weight seems to have stabilised at 13.5 stone. Drinking too much beer doesn't help I've gone from 34" to 38" waist but we're out in Spain a lot and the heat cries out for a cold Mahou or Alhambra beer.

Need to work a bit harder this winter to shed half a stone.

User

Posted 05 Oct 2023 at 22:33

Today marked the half way point of Prostap 3 injections, 6 done and 6 to go. I feel like I’m wishing my life away counting down the implants until they are finally DONE, I can’t wait for that day!
All went without incident, although I laid it on thick with the CNS about my joint problems, so she is going to speak to the head nurse to see if she has any ideas…that I haven’t already tried! I did mention trying another drug but she said the Prostap 3 was the kindest as far as side effects go. All I can say is I feel sorry for anyone who is on the other drugs. I think I will just have to live with it but I’m not giving up, ‘I MUST NOT LET THIS DISEASE(or treatment) DEFINE ME! ‘. I’ve been to see my physio who’s given me ideas on how to build up my muscles, and the next step is to go and see my acupuncturist.

Another phone call from the ED nurse yesterday and I was able to report that I’ve finally got to grips with the vacum pump. I must say that the help I’ve been given by the ED clinic is first class. The nurse is just the right person for the job, you feel completely at ease with her light hearted but informative approach, which is VERY refreshing.

I Watched a very interesting webinar tonight by PCUK ‘Prostate Cancer and your sex life’. It was good to hear the experiences of Chris, a member of this forum (but not sure which one😊). He shared his own personal views and experiences.

Maggies tomorrow morning so know it’s going to be a good day💪

User

Posted 06 Oct 2023 at 07:18

When it was no option to not start HT I picked Decapeptyl after following others on the drug. I think it’s been very kind to me but I do have mainly leg/knee pain and good libido after 3 yrs on it. Hot flushes aren’t to bothersome. Zero weight gain or moobs. It was me in webinar , 6 months in the making , and I’m glad it’s over. Shame no time to answer the huge amount of incoming questions. I decided to protect my identity in case the neighbours were watching 😀

User

Posted 06 Oct 2023 at 08:27

Ah Chris, I did wonder if it was you…you came across very well with some very useful personal experiences for those just starting their journey. Yes, it’s a shame it couldn’t have been longer.

I’m fascinated and puzzled that you have good libido on Decapeptyl. I thought ZERO libido was more or less a given on all those drugs. Oh to have my libido back😞 when I cuddle up to my wife in bed I still feel the love for her, even more so than before, but just no desire…I find it quite sad 😢

Im working on my knee issues and will continue to fight against it💪. Hot flushes are much better now with me.

All the best,

Derek

User

Posted 28 Nov 2023 at 19:54

Today in a last ditch effort to help my aching/stiff joints I had my first session of acupuncture. I had 6 sessions exactly a year ago to help with my hot flushes and it really helped. And the acupuncturist is confident he can help with my joints as well. I have to say when I came out I felt great, the stiffness had eased and I was able to walk better. Also my energy levels and my mood were much improved…I’ve felt recently that I’ve lost my mojo a bit but today I have felt so much more positive and energetic.

I have my next session in 2 weeks time and look forward to it. The guy is really good, some acupuncturists just stick the needles in and leave you for an hour, but this guy doesn’t, he talks to you and is very interested in how you are feeling, it’s like a therapy session.

So, I am hoping that this makes things easier and also it gets me through the anxiety of my next PSA test on 8th December.

User

Posted 11 Dec 2023 at 17:11

Got fed up waiting on my GP surgery to get my PSA results…and getting past the receptionist just to be told ‘Normal’😡 Phoned urology direct and they had the result….0.1 down from 0.3, in the last 3 months. So, I’m really pleased!

Also had an unltrasound in my neck as it’s tender to touch but all clear…think it might be too much work in the gym!🤣🤣🤣

Onwards and Downwards!💪💪💪💪

Derek

User

Posted 11 Dec 2023 at 18:59

Good news Derek. And just before Xmas. Enjoy

User

Posted 11 Dec 2023 at 21:12

Brilliant news Derek, delighted for you

Have a great Christmas and a couple of wee drams on Hogmanay 👍

User

Posted 11 Dec 2023 at 23:01

Great news, that's excellent!

User

Posted 12 Dec 2023 at 00:45

🎉🍻🍷

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 12 Dec 2023 at 01:09

Excellent news.

User

Posted 12 Dec 2023 at 19:24

Great news, Decho.

Have a great Xmas and Hogmanay. May you continue to 'go down' in 2024.

Best wishes,

JedSee

User

Posted 12 Dec 2023 at 20:14

Brilliant news Derek. 👍

User

Posted 12 Dec 2023 at 22:25

Thanks for all your good wishes….I nearly wasn’t hear tonight to thank you though.

I went for my acupuncture session today, went into the waiting room and sat down on one of these wooden springy ikea chairs. As I sat down, the back of the chair flexed back and hit a glass cabinet which toppled a bit and Chinese ornaments inside it fell over. Unfortunately on top of it there was an artificial bonsai tree in a pot which toppled over, fell a couple of feet and landed on my head! I saw stars for a few seconds and now have a lump on the side of my head. Im just glad I was wearing my woolly hat as if not I would have been in A&E. Needless to say the bonsai tree(which was bloody heavy) has been repositioned and that dreadful chair binnned!

Acupuncture session was good though😊 and I suppose it was quite funny in a way🤣🤣🤣, the other guy in the waiting room hadn’t a clue what to do and just sat there listening to me f….ng and blinding!🤷🏼‍♂️

Next week I’m taking my crash helmet with me!

User

Posted 13 Dec 2023 at 07:57

That sounds like a dangerous place !

Have a good Xmas & new year - & the same to everyone who contributes to this valuable forum.

Bob - West Suffolk.

User

Posted 13 Dec 2023 at 08:14

Good PSA result. I usually recommend people take up motorcycling or skydiving as ways to avoid dieing of cancer, I shall add acupuncture to that list.

Dave

User

Posted 13 Dec 2023 at 08:54

Originally Posted by: Online Community Member

Morning Derek,

I think they call it a chain reaction.😁

I still cringe when I remember one.

25 years ago when I was courting my current wife, near the beginning of our romance. We were sharing a bath. Scented tealight candles around it masses of bubbles etc etc.I decided the scene was set for a romantic stand up cuddle. As I was getting to my feet I slipped on a bar of soap. Lost my balance. Grabbed hold of the shower curtain. Pulled it from its mountings. Fell out of the bath. Went head long into a mirrored bathroom cabinet. Smashed it and split open my head. I lay face down, sprawled across the floor with the shower curtain resting along the crack of my bum.

I am the Frank Spencer of karma Sutra.

User

Posted 13 Dec 2023 at 21:29

Originally Posted by: Online Community Member

Morning Derek,

I think they call it a chain reaction.😁

I still cringe when I remember one.

I am the Frank Spencer of karma Sutra.

Well, that brings a whole new meaning to the phrase ‘Not tonight dear I’ve got a headache’🤣🤣🤣🤣

As I’ve said many times….on this journey you can either laugh or cry and laughing is better for your sanity!

User

Posted 04 Jan 2024 at 16:34

HT Jab number 7 today, 5 to go so I’m on the homeward stretch. It’s really good that the CNS gives you the injection as it’s good to have a chat with her, they like to do this in Fife to keep an eye on how their patients are doing. She said that getting down to 0.1 was an excellent result, but confirmed thT there was no < symbol in front of it…maybe next time🤞
She didn’t however hold out much hope for ending the HT early although she did say if the side effects were seriously affecting my QOL they might consider this….but it would have to be with the Oncos agreement. If I can get me knee ache under control it will be much easier to keep going and I’m pleased to say that using Voltarol twice daily on them has really helped. I’m going to try and get a prescription for this.

Off for 3 weeks tomorrow to Fuerteventura to escape the Scottish winter….swimming, walking and eBiking …and of course a little sitting in the sun(shade) and a few mojitos down by Corralejo Harbour….heaven😊

User

Posted 05 Jan 2024 at 11:27

Getting down to 0.1 is fantastic Decho. Enjoy Fuertaventura.

Ido4

User

Posted 05 Jan 2024 at 12:43

Decho

Great news. Fife to Fuerteventura!! Have a warm relaxing time. Do you find Voltarol better than Ibuleve?

Pratap

'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.' Richard Feynman (1918-1988) Nobel Prize laureate

User

Posted 05 Jan 2024 at 13:30

Thanks guys, Pratap, not sure TBH. I’ve been using Voltarol but my pharmacy wouldn’t prescribe it for me, but would prescribe Phorpain, which is 10% Ibuprofen. I’m going to try it and see if it works as well whilst I am away and if it doesn’t I will go back to the Diclofenac based Voltarol.

The climate over here is just as crazy as in the UK but in a nice way. It’s still very warm and no wind, which is unusual for January. It’s 3 Kings Celebration over here so the place is buzzing!😊

Derek

User

Posted 14 Jan 2024 at 08:30

Hello Decho

Happy New Year. Do you mind me asking: how low is your PSA now?

Thanks

Rory

User

Posted 14 Jan 2024 at 08:35

Hi Rory,

Not at all, 0.1, 6 months after RT finished, down from 0.3, 3 months after RT. So still going down, I’m just hoping for that magical < symbol next time🤞 Quite happy though and CNS said it was a’fabulous’ result at my last injection a week past Thursday.

How are you doing?

Derek

User

Posted 29 Jan 2024 at 18:00

Well today was blood test day to check if I have polymyalgia Rheumatica. Obviously my GP had decided that I needed a full MOT so testing liver, kidney, glucose levels and more. Also got my shingles vaccine, apparently I get priority🤷🏼‍♂️

After 3 weeks away in Fuerteventura, doing 10-15k steps every day, as well as swimming and cycling, my knees are slightly stronger and can just about get me up of a chair. However my hips, knees and now ankles ache, especially after exercise..they feel like I’ve run a marathon(not that I’ve ever done that🤣🤣🤣) or I’ve been on a 50mile hike. My knees feel inflamed permanently …I’ve been taken ibuprofen 400mg 3 times a day as advised by my GP but TBH they don’t really help.

If my blood tests come back ok, I’m going to try Devils Claw as that seems to have helped some people on here.

I would love to find out if there’s any sort of correlation between those that get joint ache and those that don’t. It’s by far the worst side effect for me but I will keep trying to find something🤞

Going to Maggies this week for some support….it really DOES help.

User

Posted 29 Jan 2024 at 19:24

Glad you are doing ok decho sounds like a nice holiday hopefully your blood tests come back ok I agree it's strange some suffer more than others on hormone therapy I hardly noticed any difference from normal whilst my mate has had like you every side effect going not sure why either 🤔

User

Posted 30 Jan 2024 at 14:57

Originally Posted by: Online Community Member

Thanks Gaz,
I envy you and I’m glad you are doing so well…there must be some reason, maybe I’ll do a bit of Googling to see if there’s any research been done on it. Diet? Testosterone Levels before treatment? Weight? Build? Or just (bad) luck?

It’s strange though, just back from a 30 mile ebike ride and I was going at some pace and my legs felt so strong….like a teenager!😊 However I stopped at Costa for a coffee(well you have to, don’t you😉) and I was like a 90 year old getting up from the chair.😟

Ive put on about 6kg since finishing RT(6 bags of sugar😱) so I’m determined to lose some of it over the next 6 weeks….that can’t be helping!

Derek

User

Posted 30 Jan 2024 at 15:40

Originally Posted by: Online Community Member

I was going at some pace and my legs felt so strong….like a teenager!😊

I remember when my legs, including the middle one were like that, and I could go at a teenager's pace. 🙂

Originally Posted by: Online Community Member

However I stopped at Costa for a coffee(well you have to, don’t you😉) and I was like a 90 year old getting up from the chair.😟

I'm not on HT and I'm like that. When we go on a long walk or I'm playing footy with my grandson, I daren't stop because I struggle to get started again.

User

Posted 30 Jan 2024 at 15:46

Love it Adrian, my middle stump is certainly not what it use to be either!🤣🤣

User

Posted 30 Jan 2024 at 15:59

Keep up the cycling decho it must help I carried on working although offered a good package to retire so gets lots off exercise didn't change my diet at all before or after treatment and plodding on as normal really hoping the psa stay's the same you will have to use the drive through at Costa save you getting off the bike 🤣🤣🤣just a thought all the best gaz 👍

User

Posted 05 Feb 2024 at 15:15

Oh, well blood tests have all come back as normal, don’t know whether I’m pleased or disappointed….but at least that’s something else I don’t have to put on my travel insurance!
I don’t have Polymyalgia Rheumatica so where do I go from here with my joint issues? I think a call to my CNS to check whether it’s ok for me to take Devils Claw. Some people have said it has helped with joint pain so might be worth a try. If that fails I’m just going to have to live with it and hope I don’t end up in a wheel chair😟

Unless of course anyone else has got any great ideas?😊

Derek

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