15 years on (continued)

User

Posted 17 Aug 2014 at 19:09

Thanks Lyn - Barry and Karen are always in our thoughts

Nil desperandum

Allister

User

Posted 17 Aug 2014 at 21:22

Lyn,

Many thanks for your update about Barry and Karen,

Alan

User

Posted 17 Aug 2014 at 21:36

Many thanks Lyn. Good to hear the pain is being managed.

Bri

User

Posted 19 Aug 2014 at 20:08

Dear All,

Karen has asked me to post the latest on Barry:

Barry has been sleeping for the last 2 days. They put a syringe driver up today.

We managed to get him home on Sunday for about 40 minutes.

He was a bit spaced out but saw the wet room, sat in his chair and fiddled with the TV (and told me off as there is no sky sports now!), told my dad we need a Ramp at the back and a handrail out the front of the house then had an ice cream.

It was enough to settle his mind and he has been sleeping fairly peacefully since then.

I can't wish for more than that George. If he is peaceful and not in pain then I am content with that. I know now it is just a matter of time and I will be in touch again soon. Please will you pass this news on for me on both sites.

Thanks everyone,

Karen

xxxxx

B2PCa

User

Posted 19 Aug 2014 at 20:24

Thanks George

Can do nothing more than pray

Don't deny the diagnosis; try to defy the verdict

User

Posted 19 Aug 2014 at 20:49

Thanks George for letting us know, although we all understand that time is short for TG I think I can speak for everyone in saying our hearts go out to Karen and all of the family.

Fly Free TG , Fly Free.

XXXX

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 19 Aug 2014 at 21:18

Thank you George.

Bon voyage my dear, dear friend xxxxxx

User

Posted 19 Aug 2014 at 21:43

Thanks Karen and George for the update on Barry. We must hope and pray that Barry continues in a peaceful state.

Alan and Celia

User

Posted 19 Aug 2014 at 22:00

Thanks George, It's comforting to know he is pain free and peaceful

God bless TG

Bri

User

Posted 19 Aug 2014 at 22:50

Our thanks too, George, for forwarding Karen's message, and as with everyone else we wish Barry peace for his onward journey.

God bless you Karen.

Love Chris and Shirley.

User

Posted 20 Aug 2014 at 10:06

Thank you George and Karen for the latest update. So pleased Barry got to go home for a short while and that he is now calm, peaceful and pain free. Barry is always in our thoughts. So too are you Karen and the family and we wish you strength and the ability to find a peace of mind through this awful time.

Love and thoughts

Veronica and Kim

User

Posted 20 Aug 2014 at 10:07

Love and thoughts

Veronica and Kim

User

Posted 20 Aug 2014 at 13:57

Sending all my love. Glad Barry is not in pain and his wonderful family are with him, I mean the online one as well !!!

Fiona.

User

Posted 20 Aug 2014 at 14:24

Thank You George for posting on both sites, I can only echo what others have said and feel comforted knowing that TG has an amazing family and a vast number of friends who wish him peace and serenity.

Sweet dreams Lovely Man and may Karen and your family stay strong in their love for you.

xxx

Mandy Mo

User

Posted 20 Aug 2014 at 14:26

A bit of me is still amazed and proud that TG kept the upper hand and kicked cancer's butt for the best part of 15 years. But right now I am just really angry that his decline has been so rapid and so hard for him to bear. His pain is being controlled now, thank God, but he has suffered unnecessarily for some months. We don't only need more funding into the causes and treatments of PCa; we should also be putting pressure on the government (and PCUK) to increase funding for research - and dare I say awareness-raising for medical staff - on the less common presentations of late stage disease (such as falling PSA and non-bone pain) as well as palliative care services.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 20 Aug 2014 at 15:40

Totally agree Lyn.

Bri

User

Posted 20 Aug 2014 at 16:14

Devastated to say that Barrington Newman slipped away from us at 1.40 this afternoon.

Get'um Top Gun xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 20 Aug 2014 at 16:18

absolutely gutted, top guy

RIP Barry will miss you

Don't deny the diagnosis; try to defy the verdict

User

Posted 20 Aug 2014 at 16:21

Just got here and with Karen and Chris. Thanks Lynn for letting the group know.

I know dad will be wishing you all the best.

James

User

Posted 20 Aug 2014 at 16:27

Today we have lost a true Hero, R.I.P. Barry

xxxx

Mandy Mo

User

Posted 20 Aug 2014 at 16:31

R.I.P Topgun ... you where one strong man right to the end http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-frown.gif

User

Posted 20 Aug 2014 at 16:31

A light has gone out of our lives.

Rest In Peace Barry. You'll never be forgotten.

God bless you Karen, James and all the family. May you find strength and eventually comfort and peace.

George, Lynn and Katrina.

Edited by member 20 Aug 2014 at 16:32 | Reason: Not specified

B2PCa

User

Posted 20 Aug 2014 at 16:37

James, I think your dad would be telling me to pull myself together. You are all in my heart and prayers x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 20 Aug 2014 at 17:24

R.I.P. T.G. Diesel.x

User

Posted 20 Aug 2014 at 17:38

We knew it was close but it is still devastating to lose a man of Topgun's stature. Rest in Peace Barrington, a true gentleman, soldier, and fantastic human being. Karen and the family have supported Barry so well, it must have been such a difficult time for you, please accept our sincere condolences on the loss of a top man.

John and I are so sad today but in some way relieved for our dear friend, no more suffering. You did kick that Pca in to touch for so long Barry, and in doing so you gave hope to so many.

The world is a lesser place today.

With love

Allison and John xxxx

User

Posted 20 Aug 2014 at 17:50

Have followed TG's story since I joined the forum over a year ago. So many thanks for his compassion and support to others as well as the unique humour which his posts so often contained ! I am thinking of Karen and the family with love. A while back I lit a candle to remember WW1 and placed it in our bedroom window. I will do the same tonight to remember Barry and the inspiration he was to so many...

Fiona.

User

Posted 20 Aug 2014 at 17:51

Barrington, RIP our dear friend, go upwards and join our previous heroes at their party in the sky, YOU will not be forgotten as you touched so many with your words of encouragement even when you knew you were failing.

Our prayers to Karen, James and Chris and the rest of the family, GOD BLESS.

Chris and Shirley

User

Posted 20 Aug 2014 at 17:58

Very sad news. Another hero leaves us. Rest in peace Top Gun!

In times of doubt I'll will try to be true to your strapline. Needless to say......

flexi

User

Posted 20 Aug 2014 at 18:11

This was the picture Karen posted this afternoon, diamond geezer

Edited by member 20 Aug 2014 at 18:12 | Reason: Not specified

Don't deny the diagnosis; try to defy the verdict

User

Posted 20 Aug 2014 at 18:21

It's been a privilege to know and interact with Barry over the past couple of years. He and Karen have faced the last year with such reserves of strength and good humour it has simply been awe inspiring.

Barry knew his time was fading and he has dealt with that with the same humour and realism which has guided him throughout the years. My heart goes out to Karen and her family as they adjust to a life without such a big presence. His pain has ceased and for that we can take some comfort. I hope that in the coming days his family and friends can celebrate a unique and beautiful life. He deserves that send off. RIP Barry.

User

Posted 20 Aug 2014 at 18:24

RIP TG have not been on site long but have followed TG journey condolences to the family

User

Posted 20 Aug 2014 at 18:33

RIP TG, a true fighter to the end, you have been an inspiration to us all.

Roy

User

Posted 20 Aug 2014 at 19:59

I am so sorry to hear of Barrington's death. He really was a top man and will be greatly missed.

Sending my sincerest condolences to Karen and the family. My thoughts and prayers are with you this evening.

R.I.P TG

User

Posted 20 Aug 2014 at 20:26

Karen this is such sad news, TG was such a great inspiration to us all on this forum and will be greatly missed. Please accept my sincere condolences to you and your family. Look to the sky tonight and see one more shining star.

Stu

User

Posted 20 Aug 2014 at 20:35

Karen and family,

You have all had a long hard journey but now Barry is at rest. Barry’s presence, actions, determination and humour have been an inspiration to all those who knew him and he will be greatly missed.

Top Gun? ...Top Man!

Sincere condolences.

Alan and Celia

User

Posted 20 Aug 2014 at 21:37

I am glad that Barry's pain is now gone, I'm glad that he is at peace.

But I am so sad that he will now have left a void in his family's life.

Karen and James and all of you. You will never forget the gentle man that he was, and neither will we.

I didn't know him long but his humour always shone through and his kindness and caring for the rest of us was a privilege to share.

Long may Barry's memory live on in all of us who are on this journey. May we, in his memory, continue to help each other as best we can.

Best Wishes Karen and Family

We can't control the winds - but we can adjust our sails

User

Posted 20 Aug 2014 at 21:44

Such sad news today. My condolences to Karen and all of the family. Having achieved 'legend' status here on the forum, Barry will not be forgotten. RIP TopGun.

User

Posted 20 Aug 2014 at 22:00

I guess I'm not alone in finding I've been logging in with a sense of trepidation knowing this day was coming,I never met Barry but is doesn't take away a sense of loss my sincere condolences to Karen and family.

User

Posted 20 Aug 2014 at 22:03

Barry faced this with the courage and resolve that made him the person he was.

His family I am sure, whilst grieving his loss, will feel immensely proud of him.

I personally will miss the banter I had with him as well as the support he gave me

I send mine and Lesley's sincerest condolences

RIP old lad

Bri

User

Posted 20 Aug 2014 at 22:15

Farewell old soldier.

We're going to miss you..........

Love

Ray and Beryl

User

Posted 20 Aug 2014 at 22:57

I added Barrington's name to my Absent Friends thread earlier, so NO, he will not be forgotten.

Thanks Simon for putting the photo from Karen on here, just as we wish to remember him, bril !

R I P TG.

Chris and Shirley

User

Posted 20 Aug 2014 at 23:04

I am so sad to see this day come. I had the privilege to know and meet Barry and had nothing but respect for him, even when we didn't see eye to eye. Now he has gone on that final cruise and won't be coming back.

God bless you sir and may you rest in peace.

Nil desperandum

Allister

User

Posted 20 Aug 2014 at 23:18

So sad to receive this news. RIP fellow sufferer,

Steve

User

Posted 21 Aug 2014 at 00:11

My deepest sympathy to you Karen , James and the whole of Barry's family. Every know and again in one's lifetime you come across someone that is extra special, someone that makes an impact , someone that leaves there mark in the world. Barry, Barrington, TG you certainly left your mark.

Spursspark once called you a PCA Warrior, and to quote Chris B, A totaly positive inspiration to us all.

When I said yesterday Fly Free I had no idea how soon your new journey would start. Soar above us and look down every now and again.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 21 Aug 2014 at 00:28

Lost for words another good man taken from this forum.It was good to hear you managed to get home for a short time and finally pain free.

You will be in good company on your final journey Mo's Mic my Eric what a trio you will be plentry of humour.

My heart goes out to Karen and family at this sad time.

Barry rest in peace .

Carol

User

Posted 21 Aug 2014 at 00:59

All

Thank you all for your kind words, it truly means a lot to me and Karen. The family opened a couple of bottles of champagne to celebrate his life.

I'm devastated I've lost my father, hero and more importantly who the hell am I going to moan about the England cricket team with going forward, ok so we beat India but as Geoffrey Boycott said our mums could beat them using a stick of rhubarb as a bat. (Cricket fans will get that)

I would "thumbs up" all the postings but takes too long. So please treat this as a "thumbs up", I have read all posts I promise.

I may of met some of you only briefly in Leicester and some only via postings on dads thread but I know you all meant a great deal to him. I'm not aware of the 2nd group / website so if you can send me a link I would be grateful.

I will update you with funeral details as and when.

The picture, linked on a tread above, summed him up. He made my kids walk Poppy with him dressed like that and they loved it. They will miss him badly.

Wishing everyone best wishes.

No one son. James

Life is for living someone once told me, so go and live!

User

Posted 21 Aug 2014 at 06:30

A wonderful man and good friend has left us.

It was a pleasure to have known you sir.

All my sympathies to Karen and family.

Chris

User

Posted 21 Aug 2014 at 08:50

So sad to hear, I have been following Barry's thread for over a year, the title itself was such an inspiration for all of us on here!

Thank you so much for all the help that you gave to us Barry with your advice.

God bless you and your family at this sad time.

RIP

Alison xxx

User

Posted 21 Aug 2014 at 12:10

Barry was a very special person, one who went out of his way to help others and continued to do so even when he was experiencing great pain and knew his remaining time was short. He died like the brave soldier he was, someone who was an example and inspiration to so many. My sincere condolences to Karen and family.

Barry

User

Posted 21 Aug 2014 at 12:17

Thank you James for such a wonderful post.

Anyone reading that would have no doubt at all that you're your father's son.

It was like reading a post from Barry himself.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

The 'other site' mentioned by Karen was Bollocks2PCa and your dad had been a big part of that 'naughty boys' (and girls) group for years.

He will be a huge miss at our Leicester meet-ups in June, and the December ones in London.

He was one of the nicest, bravest, funniest guys around and loved by all.

http://i1235.photobucket.com/albums/ff437/R_U_NUTZ/0%202014%2008/2014BarryToursMemoriam.jpg

Did you know, he once came to Leicester dressed as a urologist, with hospital uniform, stethoscope and an ID badge reading 'Dr Ben Dover'?

From us all at B2PCa, please accept our sincere condolences. Yesterday was the saddest day for all who knew your dad, and our hearts go out to you, Karen and the family. Your dad was hugely proud of you all.

It was good to finally meet you on 21st June this year.

Warmest wishes,

George

Edited by member 21 Aug 2014 at 17:11 | Reason: Not specified

B2PCa

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.

Notification

Join the online community now.