Advanced prostat cancer part 2

Firstly the good news Trevor is recovering well and gaining strength daily he is still weak and his energy levels are soon exhausted he is very much battered / bruised and very wobbly around the edges but he is getting there and that spirit of his is fighting back. 🤗

THE FAT LADY HASNT EVEN GOT ON STAGE YET

Wiz visit yesterday and I will get to the scores on the doors but first the embarrassment on her face was obvious she admitted that the Drs on the general ward had totally misread Trevor's condition . She also admitted that heads had started to roll . So basically he went in for breakthrough pain and when the pain wasn't under control they upped the morphine level to such a high level that he was unable to communicate.

The pain wasn't actually coming from the cancer it was from the lung infection but we were told it was from mets in his sternum.

His blood results showed an infection but it was ignored , his swollen stomach was wrongly diagnosed as cancer in his liver , his confusion was wrongly diagnosed as cancer in his brain.

His kidney problems were wrongly diagnosed as cancer in his kidneys and when the DR on the general ward told me that Trevor only had weeks to go that was also wrong all of this was diagnosed with no hard facts , no scans just assumptions .

Basically they had written him of without hard evidence . But they hadn't asked me what I thought and they certainly hadn't asked Trevor.

If assumptions were the only thing to go on then Trevor would have died 10 years ago when he arrested with a heart attack in the Royal London ! But he didn't and I am famous for my Buts .

It is so scary that if I hadn't have been there fighting his corner then this post would have a very different outcome.

So the confusion wasn't spread to his brain but from overdose of morphine and the Sepsis

His swollen stomach was gas and food because he was unable to eat and couldn't pass stools

Kidney damage was because he wasn't able to drink himself and was severely dehydrated

His scans have confirmed .

No spread to soft tissue

No new mets to skeleton

I have had my moan and I will be making a formal complaint BUT not yet I need my energy for Trevor , I don't know how he has come through that I don't know how all of us have come through BUT we have . We have all survived to tell the tale

WHAT IS HE MADE OF its crazy , I don't have the answers all I know is he has such a zest for life and QUIT isn't in his vocabulary.

So this is were it gets even weirder Abbi was stopped at the beginning of June when he was admitted to hospital

The Wiz explained that she expected a pretty big rise is PSA over the last month without Abbi and not to be alarmed.

So SCORES ON THE DOORS

PSA JUNE - just before admition to hospital - 4723

PSA after no Abbi for a month - 1787

😱😱😱😱😱😱

W T F happened there I need to say that again WTF happened there .

1787 How Can That Be .

I did get them to check and recheck

Toatly gobsmacked , lost for words just totally gobsmacked . I know Lyn sometimes with ext spread the PSA lowers but scans aren't showing that. 🙃

BFN

Julie X

Wonderful news but very alarming from the point of view of the general ward, that scares me rigid! I almost can't believe that they just wrote him off like that (almost but I can I'm afraid). I lost my trust in the NHS some time ago I'm really sorry to say, something is rotten there and needs to be sorted. Of course I'm not saying that there isn't fine and fantastic work there, there is and I've been witness to that too but when you think of people with no one to fight their corner, it's just frightening.

Anyway, you've got through that and Trevor suffered more due to his poor management and that's not right. Between you though, you are the epitome of fighting spirit and that far lady isn't getting on stage today nor in the near future.

I can only think you must be so exhausted by all of this, I really don't know how you cope, but you do. You are remarkable.

So happy that your man is improving, he's a superstar with a superstar caring for him.

Lots of love

Devonmaid xxxx

That PSA drop is incredible. In pattern terms it's a halving which is pretty good. This may be a positive reaction to stopping a drug. I had the same when I stopped casodex, surprising but it happens. Whatever, despite the worst efforts of the general ward Trevor is on his way back. Brilliant news.

And for you julie I hope you can get some time for yourself you know you need to have some time just for you. Thinking of you all.

Mow the grass???? Julie has a strap-on and Trevor isn't allowed near it :-)

Great news Julie xxx

Hi Julie and Trevor,

We're in awe of 'Super Trev'.

As you say, how crazy it is that the ward doctor gave him a few weeks to live.
He seriously underestimated who he was dealing with.

Your two are a force of nature, absolutely unstoppable, and your posts light up the days of those here who have been worried sick after being given similar prognoses by doctors.

These medics don't seem to realise that patients are not just statistics.

We're each unique, and if you add in defiance and stubbornness, then statistics are out the window!

Long may Trevor continue to defy them all.

Warmest wishes,

George & Lynn

So to be able to chew anything is almost impossible and for Trevor who has always been such a foodie it is depressing.

Si Trevor gave up Turmeric and adopted the Fosters diet about 11 months ago , to do a proper scientific study we need you to give up Fosters and go on the Turmeric diet and then we can swap analysis data . You can't cheat though and put Turmeric in your Fosters because that won't work . 😄 That would just fuddle the stats and then Jamie would be in in a downward spiral and end up thoroughly confused , can you imagine if he was looking after both of you.. 😳

David yes please send the recipe I am stocking up on lamb and foil at this moment .

Love to you all X

BFN

Julie X

SLOW COOKED SHOULDER OF LAMB IN FOIL

Ingredients for 2 - 3
A lean half shoulder of lamb, preferably blade.
6 small – medium carrots, peeled and topped but left whole
2 medium leeks, peeled, darkest green removed and each cut into 3 pieces
2 – 4 cloves garlic, peeled and thinly sliced (optional)
Chopped herbs – any combination of thyme, mint, rosemary
500 ml chicken or lamb stock – from stock cube is fine as long as it’s low salt
e.g. Kallo
1 tablespoon oil
Seasoning

Method
Place a large piece of turkey foil in a roasting pan, long enough to make a not
too tight envelope around the lamb and vegetables. Take care not to tear or
puncture it.
Place the carrots and leeks in the foil.
Trim any excess fat from underneath the lamb and from the sides of the joint.
Heat the oil in a large frying pan and brown the lamb all over, particularly the
skin side. Drain the lamb of fat and place it on top of the vegetables. Sprinkle
over the herbs and the garlic slices, if using. Add about 100 ml liquid - red or
white wine, or sherry, or some of the stock. Season with a little salt (not too
much as the gravy is made by reduction) and fresh ground pepper. Bring two
edges of the foil together and fold them to make a seal. Now fold or scrunch
up the other two edges to make a seal each side. You should now have a not
too tight foil parcel in the roasting pan.
Place the pan in the oven an cook at 150 C (Fan 135 C) for 3½ hours.
Carfully open the foil and use a couple of forks to move the lamb to an
ovenproof dish. The lamb should be very soft and easy to pull away from the
bone. If you want to crisp the skin a bit, turn the oven up to 220 C (Fan 200 C)
and cook the lamb for about a further 15 mins. Otherwise just keep it warm.
Meanwhile, transfer the vegetables to a dish and keep warm. Pour the liquid
from the foil into a saucepan. Add the stock and boil rapidly to reduce and
create a nice gravy. Season to taste. If you want a minty gravy, add a
teaspoon or two of mint sauce.

Options
Whole shoulder can be cooked like this, but will probably take 4 –5 hours
depending on size. Most root vegetables including small potatoes can be
used. Peeled whole banana shallots are a nice alternative to leeks.
For a Spanish flavour use peppers cut into large chunks instead of leeks, add
a teaspoon or two of smoked paprika and some dry sherry to the foil parcel.
Curry spices can also be used for an Indian flavour.