So update on what has been happening Trevor’s pain is back under control with an increase in morphine , he has bounced back and is more active and looking and feeling better. phew.
MRI and CT scans were completed two weeks ago and ONC visit Today It’s was with our lovely Oncology Nurse Claire who is an absolute star and without her diagnosis of the Sepsis I have no doubt that I would not be writing this update today because quite simply Trevor would not be here !
I just need to back track to Sat before i do the scores on the door.
We received a letter out of the blue for Trevor to have an ultrasound on his kidneys this Fri this of course sent him and myself into a really spectacular nose dive , this is where I come into my own and like the duck in the water scenario my face and demeanour showed absolute calm when I said they are probably just checking everything from the sepsis.
Even though he knew and I knew that was probably not the case as often happens with couples that have been together for years there is an unwritten rule that when this game starts both parties have to continue the pretence . So even though he knew and I knew neither of us was going to admit it. Funny old game ! It’s a bit like PCA chess.😉
So here we go scores on the doors
Yes you guessed there is good news and bad news
Good news first
ALP Down from 238 in September to 183 so bone markers good
MRI and CT support this no decrease in mets but no increase either, so mets stable and it looks like the Raduim 223 has held things back ( A Yey moment)
That’s kinda it for the good news
PSA up from 3691 to 6265 ouch but hey still half of our starting point
HB is down to 9.5 and we had a bit of a Hoo Haa before they would issue his Abbi they wanted to redo bloods , trust me he wasn’t going to allow it withought a fight he hates doing bloods . It took me twenty mins to persuade him and then they couldn’t get any blood after trying from both arms . Eventually they got enough to test and all ok to prescribe his Abbi
Back to the kidneys and there are two suspected areas hence the ultrasound scans on Fri
Outcomes could be
Cancer of the kidney not connected with pca
There is also an increase in size on 2 lymph glands
What can I say we have faced the Dragon many times and we have continued, so come on Dragon bring it on ! You don’t know who you are messing with !