I have managed to have a long chat with Ts oncology nurse and from what she is saying chemo will be still on the cards but and here it comes only when our back and the Wizs back is up against the wall. Basically she will opt for chemo when Trevor's pain gets to a certain level at the moment his pain is manageable. When his QOL is compromised then she will have to go the chemo route.
It is catch twenty two with the Raduim apparently the Wiz has to authorise the chemo and then wait and see what happens before she can apply to the drugs fund for the Raduim, what a conundrum and somewhere in the midst of this we go round and round.
For know we continue with Abi even though we all know it is not working but I suppose it is better the Devil you know than the Devil you don't.
Our options are very limited so even though Abi is not working as we had hoped it maybe slowing the progression.
Just to answer my SS (Mo) it is the heart issues that is holding her back, I have been worried about saying this for others who may be reading and would be worried with similar issues but then I thought warts and all , Trevor has around 35 per cent heart function due to the heart attacks in the past and the chemo is likely to weaken that , of course my worry is if we wait then he will be weaker in general so to then put him through chemo. ( I suppose you can all see where I am going with that)!
Oh ok so a rock and a hard place, it's OK Guys there are no easy platitudes , we have known from day one and that is almost 3 years ago where this was headed, if you don't know what to say , I understand just say hi keep going girl.
Talking about keep going when we came out from the a appointment on Mon Trevor always astounds me for just a split second I thought just maybe he might need, or want to talk and then that moment passed in a nano second and I thought he is going to ask about lunch. Sure enough he said "are you hungry" of course I wasn't but said yes what do you fancy. How about M&S he said so that is where we eneded up, he had the healthy option of spiced salmon with spiralised carrot and courgette spaghetti (yum yum I don't think so)) he then polished of my ham and cheese toastie as well . I was to upset to eat . It always amazes me how he can eat after receiving the worst news. A stranded whale of Bognor Beach on the news would put me of my dinner.
BFN
Julie X