Advanced prostat cancer part 2

Yes, good to hear from you, Julie, I just wish the circumstances for Trevor were better but you have been right to want some 'normal' for a while. I can picture you overwhelmed with puppies ! The pup Zanzi has been one of the few happy distractions I have had since losing Neil. She is now a big whopper, noisy, overactive, in fact a normal collie pup. Sometimes I think about getting a fourth one but that would be masochism taken to the limits ! Take care,

Love, Fiona and gang. xx

Don't think I have ever commented on your thread before, but I am one of these people who reads many threads and laughs and cries quietly with everyone at what I read.

I'm glad you have had a nice summer of being "normal", I appreciate it is lovely to put cancer to the back of our minds to give us a break from the stress of worrying

Bob had about 12 months on abireterone and responded well, and without too many side effects, just tiredness. Though I do appreciate your concern with his heart proB's.

Julie you are a truly inspirational lady and I wish you and your hubby al the best with your next treatment.

Love Lesley xx

Sweetheart, I thought last summer was probably going to be your last normal one and then I worried that last Christmas would be the last the boys would have with their dad. Just shows that I am a fatalist and T is made of steel. As long as the Wiz is keeping an eye on things, you have hope my lovely friend.

Loved the 'first day at high school' photos on fb x

Good to hear from you Julie and thanks for the mention. I am feeling ok at the moment after the scares of early summer but life is changing for me and when it has I shall reveal all on here. Your silence now proves to be wonderful news as you have enjoyed a great summer. The results are never what we want and Trevor has moved on to that next stage causing worry as you and he adjust to the new drug regime. I would label this your 'new normal' and embrace it for as long as it works. We all know that having bone met spread means that we will continue on this uneven and unwanted journey. It happens and we have to re define how we think about the world around us. I went through this in the summer when I had such pain with bone spread in my legs I thought I would be moving to my new normal and it has created changes in my thinking and my actions. But we never forget TopGun's wonderful phrase Life is for Living. For how long none of us can be certain but I know you and Trevor will embrace it whatever happens.

I do hope Abby tabs are a great success and further reports talk of Trevor,s resilience. Good luck on this next stage of this journey.

hi
just wanted to put in my two penneth
like most of you am on other sites one of the guys been on stampede with abriaterone I assume this iwhat you talking about, well his resuls are awesome, hotspots have gone just a bit of increase in his spine, hope and pray this is what you are talking about and that if it is you get the same results
nidge

Well not the results anyone would want. Let's hope the Abby Tabs work their magic. My friend's hubby did very well on them for nearly two years and he had had a few heart attacks previously. Close monitoring and changing the steroid helped him a lot.

I, too have been mostly absent, just enjoying life and counting my innumerable blessings this summer. We had a holiday abroad for the first time for ages and despite a few touch and go moments re the loo visits, and a fantastic new bladder drug which helped a million, we went and had a great time. Our latest visit to the Onco shows a rise too but from 2.3 to 3 so no change this time in treatment, so we carry on with our normality too. Mind you we saw the head Wizz, who was new and wanted to see John as his G10 and nearly 5 years on and well (you know what I mean, well for cancer!), John's a legend at our hospital. We also saw a urologist who said he felt that we were friends not patients, all in all our confidence in our medics is through the roof. What a difference it makes Julie.

I'm so glad you have trillions of pups on the way, fingers crossed for better on that front, I can't imagine how wonderful it is to have the patter of all those tiny paws around, just gorgeous.

Sending you loads of love and all the best for the Abby tabs.

Lots of love

Allison xxx

Hi Julie,

I'm so sorry to hear that news.  I hope the Abbi tablets start to work better.

Thinking of you.

Steve x

Not brilliant news but around 10% of men experience a PSA flare when they first start and in Trevor's world a rise of 100 is a tiny flare

Are you around the next couple of weekends for a visit

Si xx

Really hope this is a flare and those abbi tabs start to kick in

Bri x

hi julie

cant offer much advice but from what I have just read the folk on here have come up with some good advice already

nidge

Sorry to read your latest blurb Julie, take heart dear girl, you are both still in our prayers as are several others.

xxxxxxxxxxxxxxxxxxxxxx

Chris.

PS, keep looking at the HUG !

you are all googled out?, that is a bit like being puppy maxed to Cruella de Ville !!

We thirst for knowledge but then hate what we read, we try to compartmentalise issues that actually belong in half a dozen different places and most of all we rationalise, for there always has to be an answer, not always the one we want to hear but that is our new world. Joy, sorrow, fear etc. all of those emotions we all can deal with on a one off basis but now we multi task on emotions, each day can be different but we deal with it. That is what we do and that is what friends are for ...will call you this weekend

xxxxxxxxxxxxx

Mo

Just to let you know I'm thinking of you both and while I was in church this afternoon I prayed that things would get better for you and that Trevor's condition would improve.

Steve x

To google or not to google that is the question
Whether it's nobler to suffer the slings and arrows of outrageous fortune
Or by opposing end them
Ah that is the question

I am sure Bill won't mind me leaning on his soliloquy! (I wonder if it's painful to lean on one?, only if you have bone mets I guess) when we are worried and fretful we seek solutions however bizarre they may sound. It is so hard to switch off search mode and I think google is just the latest in a long line of ways of knowing. I recall lying in bed with my then wife circa 1982 when she said somewhat irritably - if you are in pain go to the doctor or look it up. So I got out of bed and got our symptoms book. I was careful to follow the guidelines and she said (impatiently ) well what is it. I replied testicular cancer. Oh let,s go to sleep, put that book away! A week later I was having a right orchitecdomy and the rest is history! But the book also said it was likely to be terminal and 33 years later I am still here. So no matter what you read or dream or create its what's happening before your eyes which determines how you operate. It's a difficult journey but we go as far as we can and there is plenty of travelling to do yet.

Rest Julie and re charge the batteries for whatever happens. Thinking of you both as always.

Edited by member 28 Sep 2015 at 00:05  | Reason: Not specified

I haven't been here for a while, I was in a temper because I posted a bit of a long one and it seems to have got lost, so slammed the door on way out and sulked for a week. I didn't remember about Abby tab and the initial flare in some men so it could easily be that my dear friend, as already said by your wonderful support team here. It gets increasingly tough to be positive as time goes on with this disease, but you have got two lovely boys and puppies galore to pull you in all directions, many that's a good thing really, but I think maybe it is best to be positive unless and until you know differently. Your Trevor is a remarkable man, let's hope it was the ALP that was down, it's probably the only thing that makes sense.

Big hugs from Swindon xxxxx

I don't want any puppies - give me your children instead as I am pretty good at making sure they are safe and generally speaking Head teachers are very scared of me.

Send me the dogs Julie as for some reason I've just lost all interest in my other passion in life....let you work out what that is lol

Bri xx

My god Julie, I can't believe how many puppies you have!! I wouldn't know the first thing to do with 1 pup let alone 8!!

I understand kids much better but I see lyn and mo are sharing the children.

What I have noticed and I am really surprised nobody else has picked up on this and commented!!! Never mind the kids and the pups, I am offering something better, I will come to the carribean with you as a good companion!!!lol.

Big hug to you, take care.

Lesley xx

OH Dear well firstly I would like to bring up the Thank you tradition I don't think all though I can not remember if we had this on the OLD FORUM I know we had the how many were reading which was brilliant BRING IT BACK THATS WHAT I SAY.  Anyway back to the thanks I have to say this gives me sleepless nights the what if scenario (DID I forget or miss someone , maybe I forgot to THANK someone)http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif So just in case anyone has been missed I THANK YOU.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif IS THERE AN AUTOMATIC THANKS BUTTON THAT I AM MISSING? because that would make life easier. A one press thanks all tab.

I am always impressed how people thank so quickly on FB if a little suspicious of course if there is a quick thanks button then my next question would be BUT ARE THEY GENUINE ? http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif 

So what has been happening in the J T household well puppies are growing rapidly and the poop Factor has hit an all time high . I am wading through it with a little help from the boys. 4 bin bags  a day http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif It is not pleasant sorry to dispel the picture of sweet puppies but what goes in must come out.

Conservatory  is up and WAS FAB, until a slight accident with the famous RIDE ON and a stone (that ride on has a lot to answer for)http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif so one WHOLE panel smashed , in the words of ME when Trevor looked like he was about to have another Cardiac Arrest (It's only glass don't panic).

So anyway enough waffle where are we today well PSA down (not quite a YAY moment but as Lyn would say a drop is a drop) 231 down from 254 . So are the beans magic (not yet but for ever hopeful ) all other bloods good .

So for anyone that replies a HUGE THANKYOU just in case I forget to give you a thumbs up.

BFN

Julie X

Yes, great news. those beans are magic!!!!

while we are on the subject my puppies have still not turned up girls are devastatedhttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cry.gif

Love to you all xx

Glad there's been a drop Julie not matter how small.

What is it Tesco says - oh yeah! Every little helps!!

Good luck with the poop makers !

So glad to hear your news, Julie. The pup Zanzi says Hi to your lot ! x

Fiona.