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Advanced prostat cancer part 2

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User
Posted 05 Jan 2015 at 22:09

Being at home makes you feel better and makes life so much easier.

Great news.

Dave

User
Posted 06 Jan 2015 at 00:14

Hi Julie,


Really good news that Trevor is home now, I know how relieved you both must be.


Hope 2015 is a really good year for you both.


Thinking of you both.


Steve

User
Posted 06 Jan 2015 at 01:25

So pleased to see this - phew x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 06 Jan 2015 at 09:10

Glad you are able to get back to some semblance of normality. Gives the stress levels time to catch up. Wish Trevor a specially big Happy New Year from me.
Best Wishes
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 06 Jan 2015 at 09:33

We send our bestest wishes to you all Julie, Trevor, Children and Dogs!

After Trevor gets to Z then you can make a start on aa bb cc dd etc.

Chris and Shirley. xx

User
Posted 06 Jan 2015 at 11:04
Bargain ... Carrot cake baked just got to be decorated, flapjacks came out of the oven 20 mins ago and I am going to have to leave the house to stop myself from trying it ...tonight preparing a whole chicken spatchooked and marinated in jerk spice you will just need to bake it for about an hour ... Trevor better have his appetite back !!!
see you Thursday SS
xxx
Mo
User
Posted 06 Jan 2015 at 13:24

Dear Julie and Trevor,


Delighted to hear Trevor is back at home. now.

You know, reading your posts over so long, we can't fail to be impressed by how, through all the hard times, your humour shines through. I know I've laughed out loud so many times.when you've cast sunshine on a dark day.

And as for the 'Newark Crew'. I salute you all. Too funny!!

I sincerely hope the whole lot of you are at The Mill on June 20th.

Warmest wishes always,


George

B2PCa
User
Posted 06 Jan 2015 at 13:32

Bloody hell Mo is that lot for me to eat on the way, it will only take an hour, oh well i will try my best.


Hang on i have just noticed it is ALL for Trevor http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cry.gif


Better make an effort as well then, i will unwrap some of the Christmas biccies and make out i have baked them http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cry.gif


 


See you Thursday

Don't deny the diagnosis; try to defy the verdict
User
Posted 06 Jan 2015 at 20:44
I got a tiny bit carried away with the chicken, enough to feed the most hungry family.good news it won't smell in the car as it is now foil sealed and marinating.
Julie I hope you have time to make rice and peas to go with it not sure if I know how to?!!!
Xxx
Mo
User
Posted 08 Jan 2015 at 21:47

What a lovely day , Mandy and Si arrived with enough food to feed an army . We had a lovely afternoon chatting then for tea we had Mandy's jerk chicken which got the thumbs up from Trevor and WOW you should see her Carrot cake . Well actually you can't see it now because we have eaten half of it.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif


The boys are half way through Mandy's flap jack . I am going to hide it before I go to bed otherwise it will gone by morning.


So Onco tomorrow with results of bone and MRI scans that were done before Xmas also PSA result if we have had a drop with stopping Bicalutamide then we will hold of with Abbi tabs for now, if we have had a rise or scan results show progression then onwards and upwards with Abbi.


T has had a good day today even doing the school run this morning and even though he was slightly nervous about meeting Mandy Mo and Si he is now glad that they came and at last I know have witnesses to vouch for Trevor talking the hind legs of a donkey.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif


Who knows I may even get him to Newark.


BFN


Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 08 Jan 2015 at 22:29
Cracking day out, I can truly say Trevor is a chatter box but I think that is because the way to a man's heart is through his stomach and we went well armed. I reckon we could have two more for Newark which would be magic as Trevor is every bit the character match of Julie. I loved chatting with him about his life growing up in the old style south London when there was still a rag and bone man with a horse and cart and a yard just around the corner.
Julie I hope you and Trevor have a very good day at the oncologist tomorrow. By the way trains run every hour from Peterborough to Newark
Xxx
Mandy Mo
User
Posted 08 Jan 2015 at 22:36
Yep a second that lovely day
And now Trevor is on the carrot cake diet I expect the PSA to tumble
Good luck tomorrow
Si xx
Don't deny the diagnosis; try to defy the verdict
User
Posted 09 Jan 2015 at 09:03

Originally Posted by: Online Community Member
 I loved chatting with him about his life growing up in the old style south London when there was still a rag and bone man with a horse and cart and a yard just around the corner.


Born in Battersea. Remember the rag and bone men with their horses very well, and their goldfish in a plastic bag. Pestering our mother to find a few rags so we got a fish.


Happy days.


Glad you all had fun

We can't control the winds - but we can adjust our sails
User
Posted 09 Jan 2015 at 09:35

Julie and Trevor, the best of lick at the Oncologist today, hope it is good news!

Re rag and bone man, I just remember the Milk wagon and milk bottles with cardboard tops.

Hope that Trevor is well enough to make Newark.


Chris.

User
Posted 09 Jan 2015 at 11:38
Good luck for today
Carol x
User
Posted 09 Jan 2015 at 19:51
Sounds like you had a ball, and a good feast as well, perfect.

Hoping all went well today.

Hugs
Allison xxx
User
Posted 09 Jan 2015 at 23:19

How comes life never quite turns out how you expected, that's not always a bad thing especially if you are a pessimist like me because what I expected to happen today was sky high PSA the worst news possible on the scan results  and the hospital had reintroduced payment parking for cancer patients.


Well guess what the car park was still freehttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif


So here we go scores on the doors are


ALP within normal limits


PSA up to 218 from 180, although to some this would seem bad it is a much slower rise than last time, so stopping Bicalutamide didn't make the PSA drop but it has slowed down the rate that it was rising. 


Scan results are no change from May 2013 so no new mets , no better no worse. (I am taking that as a positive).


We made the decision with Dr Ts advice to postpone Abbi for another 4 weeks until Trevor is recovered properly from the Pneumonia , so that's where we are, still between a rock and hard place but at least with a plan.


Love to all.


BFN


Julie X


 


 


 


 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 10 Jan 2015 at 01:10

Well, well, well - the relief must be huge. I think you will sleep better tonight.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 10 Jan 2015 at 10:10

Results look better than expected, GOOD.

Now ZAP that pneumonia..........

Love,
Chris.

User
Posted 10 Jan 2015 at 14:57

Good to hear the results were not what you feared Julie and free parking to boot :)

Take care
Bri x

 
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