Advanced prostat cancer part 2

User

Posted 07 Feb 2015 at 12:35

Dear Julie and Trevor,

What fabulous, incredible news!

The best news on here in a long time, and we so happy for you both.

It proves miracles CAN happen.

Trevor, keep on doing whatever it is you're doing to achieve such a remarkable result.

All the very best,

George & Lynn

B2PCa

User

Posted 07 Feb 2015 at 18:09

An amazing result,delighted for you. Hope you have a wonderful weekend. El.

User

Posted 07 Feb 2015 at 19:58

Yours is one of the stories I have followed for a while and I was so pleased to read your good news.

Best wishes and good luck

Andy

User

Posted 07 Feb 2015 at 21:05

Fantastic news for you both.

Just keep that humour going that we all know and love best medicine ever

Carol x

User

Posted 07 Feb 2015 at 22:22

After reading jamyjams such sad post I needed yours Trevor to remind me that there is some hope for Mets PCA people, thank you as it stopped me sobbing from the aforementioned.Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 07 Feb 2015 at 23:05

Mandy told me this news today at Newark and it's such a great outcome. I wish you and Trevor continued good outcomes whatever caused it, hopefully the trend will continue. Missed you at Newark today but we celebrated your good news.

User

Posted 08 Feb 2015 at 03:53

Hi Julie,

Wow, That's wonderful news, I'm so pleased for the both of you.

Sorry, not to meet you today at Newark but hopefully will in the future.

Steve x

User

Posted 08 Feb 2015 at 10:14

Only just seen this, congratulations!
Long may it continue.

All the best

Kevin

User

Posted 09 Feb 2015 at 09:56

Brilliant news, so pleased for you !

Fiona. x

User

Posted 10 Feb 2015 at 23:51

Julie, now you have had a few days to celebrate, I am going to spoil the party a little by saying please don't forget that in some cases the PSA falling inexplicably is not a good sign - ref TopGun and Stan. The onco should know that sometimes as the PCa becomes more aggressive, it doesn't have enough energy to produce PSA any more.

Could you email the onco to ask whether she had considered this possibility and how else the disease might be measured? Is T due for a scan any time soon?

Maybe I shouldn't say anything but in both the cases above, the realisation that this was what had happened came too late. Sorry hon if you wish I had stayed quiet x

Edited by member 10 Feb 2015 at 23:52 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 11 Feb 2015 at 16:02

This thought had occurred to me Lyn in the middle of the night when all of the what ifs are going through your head this was one of them. Then in the morning when I see Trevor's face and how on a high he is at the moment could I burst his bubble. No I couldn't and honestly what would be the point, if it was a case that the pca is advancing so aggressively and this is why the psa has dropped in all truth with Trevor's other health problems our options with treatment's are so limited. There wouldn't be much that could be done if this is the case So I chose not to mention this to him or the Oncologist.

He had scans in Nov and there was no change on the scans, at the moment he is feeling well and looking well and his bubble is about the size of a hot air balloon.

When I think back to how he was at dx and how ill he was and I didn't think he would make more than a few weeks but here we are 21mths down the line there has been many downs and a few ups , this is an up moment.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 11 Feb 2015 at 16:09

Julie

You have done exactly the right thing IMHO. My dad's PSA is coming down on HT, he is looking well, and the mental side of one's health is just as important as the physical. Keep him smiling!

Paul

Stay Calm And Carry On.

User

Posted 11 Feb 2015 at 16:21

Originally Posted by: Online Community Member

this is an up moment.

Julie X

And to be made the most of.

What will be will still be, regardless of what anyone is told or is aware of. There should be some light and hope.

atb

dave

User

Posted 11 Feb 2015 at 17:54

Julie SS

I am with you, enjoy this up time and make sure you spoil yourself and the boys while things are going well.

I am sure Lyn just wanted to flag it up with you in case you had not seen previous posts on this. The drop is not as dramatic as some I have heard about when it goes from hundreds or even thousands down to almost undetectable and very quicky. Trevor is well, happy and active so it might just be one of those respite moments we all wish for.

I will ring you over the weekend

xxx

User

Posted 11 Feb 2015 at 18:16

it's great that Trevor is feeling so well and you know him more than anyone Julie...you've supported him from day one and you will know what discussions are needed and more importantly when

However, I think Lyn was absolutely right to raise this as a possibility. This is what the forum is about. There would be no point if we all averted our eyes or didn't share our knowledge and awareness with each other even if that is sometimes hard to hear.

Take care

Bri x

User

Posted 11 Mar 2015 at 19:01

I am also an atheits from a far country, and I like how do you look at your life. Be good and get well. Good Luck.

User

Posted 11 Mar 2015 at 19:52

Who Dat knocking on my door.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 11 Mar 2015 at 20:27

I've been wondering that Julie

Bri x

User

Posted 11 Mar 2015 at 20:36

Me too guys, have a theory

User

Posted 11 Mar 2015 at 20:41

Definitely

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

Notification

Join the online community now.