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Advanced prostat cancer part 2

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User

Posted 09 Apr 2015 at 21:31

Everything crossed for tomorrow Julie hope the PSA is stable.

Will drop you a message about next week

Si xx

Don't deny the diagnosis; try to defy the verdict

User

Posted 09 Apr 2015 at 22:54

Good luck, tomorrow.

Paul

Stay Calm And Carry On.

User

Posted 09 Apr 2015 at 23:08

Hi, Julie, just want to say good luck for tomorrow and hoping Trevor skips to Zippidy Doo Dah all the way down the corridor again!

Steph.

User

Posted 10 Apr 2015 at 06:29

Hi Julie

you are both in my thoughts today on saying that I think about you often.

GOOD LUCK.

Carol x

User

Posted 10 Apr 2015 at 23:31

How did today go, hon?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 11 Apr 2015 at 00:38

OK Scores on the doors Drum roll please 53.1 down from 81 so in football terms PCA 0- Turmeric 10. I thought I would get that out of the way before I started to waffle.

What a day just getting out of the front door in our house is a major army manouvre , 13 dogs to feed , water , loo breaks, our house in the mornings puts a whole new twist on the word CHAOS and then there is the boys as it is Easter break they came with us this is the first time that they have been with us on a Onc visit, they have both been with Trevor for his Zometa but not for the important bit, ( I have chewed this over all week , the should they be there or not scenarios ) and after many sleepless nights I decided , we are in this together The Good , The Bad and The Ugly. It could have gone either way but today was the good.

So thanks for the voting guys, it was much appreciated B was easy , C was harder but I managed to accomplish this with a bit of quick thinking.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

Dr T actually admitted today that Trevor is the highest starting psa that she has ever had at 13000 he is apparently famous in Peterborough hospitalhttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif , she is also amazed at how well he is doing, quite frankly so am I.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif So 53.1 Abbi delayed yet again, anything that can give us a bit more time before stronger treatments is a WOW in my book. We always have the worry of how well Trevor would cope with the stronger drugs , the heart issues are always never far behind us. She wants exact measurements of how much Turmeric Trevor is using , what he uses it on ( I thought this could take a while, you could get the whole days Menu) . http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif.

So next visit in 12 weeks with a full dosage report on the Turmeric, she is really hung up on this , midway psa test so in 6 weeks .

Here is the sneaky bit , I needed to see the whites of her eyes so I knew it had to be in person, we all walked back to the car , I waited for them all to get in then I pulled the weak bladder trick . "Just going to the loo guys , I won't be a minute" . I just caught her before she left and explained my concerns. She knew exactly where I was coming from and is happy that the drops are from stopping the Bicalutamide, she again mentioned the Turmeric. I managed to spend about 10 mins with her and she answered quite a few things that I needed answers too. So for know I am happy with that.

Trevor is very happy he has even bought some new shorts at Matalan I did question this as he has never worn shorts in his life but I thought Hey Ho at least I can keep an eye on his Knee .http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 11 Apr 2015 at 01:01

You're one crafty lady! Well done, Julie and Trevor. Keep it up!

Paul

Stay Calm And Carry On.

User

Posted 11 Apr 2015 at 07:33

Glad to hear it was a good day, I can't comment on Trevor's knees though, is it a threat for Leicester? I trust everyone slept well last night?

A turmeric question, I have read much about benefits and I don't mind the flavour but I do not want every meal yo taste of it, I take pomi-t which has it in but what does Trevor do, thanks? Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 11 Apr 2015 at 07:52

Hi Julie & Trevor,

That's really great news! Congratulations.

Long may it continue.

Have a great weekend.

Steve x

User

Posted 11 Apr 2015 at 08:08

BOOM!!!

What great news to wake up to. Well done Trevor

With regard the turmeric it will be quicker for you to list the things the Trevor doesn't put it on http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

looking forward to seeing you next week.

Si xx

Don't deny the diagnosis; try to defy the verdict

User

Posted 11 Apr 2015 at 09:41

Well after a few tough weeks for a number of us, this is apparently a good news weekend 🎉 🎉 🎉

Love to you all xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 11 Apr 2015 at 10:25

Hey Julie. What great news, this is a great return. Brave but I think right to take the kids less mystery the better for me. It's interesting that the drops are attributed to ending casodex whereas my drops are taking it, so maybe I might get same effect when it starts to rise again.

Great reporting as always, sneaky manoeuvring which worked great. No doubt turmeric on toast for lunch! Enjoy your weekend.m

User

Posted 11 Apr 2015 at 10:52

Brill news....I also think you did the right thing taking the kids.
sounds like you will all have a wonderful weekend

Take care

Bri x

User

Posted 11 Apr 2015 at 11:43

Very good news for you all...

I have been following your story Julie, but will admit that most of Trevor's ( and others ) treatments have gone way over my head, so I don't feel able to add any meaningful contribution to your posts.

I can only admire the way you and many others are all dealing with what life has thrown at you.

You are all an inspiration to me with your approach and attitude to this disease...

Enjoy your weekend

Best Wishes
Luther

User

Posted 11 Apr 2015 at 12:46

to borrow your response to me SS

xxxxxxxxxxxxxxxxxxxxxxxYAYxxxxxxxxxxxxxxx

back on tera firma

User

Posted 11 Apr 2015 at 13:29

Hi Julie

Have read your husbands history and remarkable progress, I am so pleased to see the latest results and am so pleased for you and your family

Lesley xx

User

Posted 11 Apr 2015 at 19:05

Turmeric and suntan lotion, for the knees, ankles and foot-tops.

Excellent news, have a great weekend.

dave

User

Posted 11 Apr 2015 at 22:36

WELL DONE TREVOR and Julie. XXXX

User

Posted 12 Apr 2015 at 21:47

Ah brilliant news Julie and good on you for being sneaky and sensible. I hope the answers to your questions were what you needed to hear too.

Your posts make me laugh out loud.

Lots of love

Allison

User

Posted 08 May 2015 at 00:51

CANCERVERSARY WHOOOOOOOOOOOOOOOOOOOW 2 YEARS ON. Stick that diagnosis right up your backside. Stuff you Cancer. I said it last year and I will say it again who would have thought it, certainly not me and certainly not our Oncologist. Sometimes some people will defy the odds. OK so I will bore you all and repeat myself 4 heart attacks, 8 stents, 1 stroke, chronic Asthma. psa of 13000 and advanced pca , sorry forgot the phneumoniahttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif. (couldn't spell that and life is to short to go to spell checker). There must be some kind of medal , I can hear you all thinking (she is making it up, no one could survive that) trust me he has and I am not. I am making light of it as usual and yes life has been and still is pretty tough but my goodness I hope that our story can give hope to so many people, with Trevor's 1st heart attack he arrested on the table and that could have been and so very nearly would have been the end of the story but Trevor being Trevor he hadn't finished with life .

How does he do it , I have no idea he certainly is no fitness guru, not like some of the guys on here , yes he has always eaten a healthy diet but c'monn even eating fish and olives 5xtimes a day couldn't pull you through that lot. 2 years ago he could barely stand or walk unaided his pain level was pretty much a 9 out of 10. Yesterday he helped me drag in a 12 kg bag of dog food.

I don't have answers , he is as much a mystery to me his GP his Oncologist his heart Dr and every on else he has come into contact with I sometimes wonder if it is because he never stops talking maybe he just hasn't finished his story .

What ever it is that keeps him going I would be a millionare if I could bottle it, I do make light of it but there has been many and I mean many scary bluelight moments along the way but here we are 2 years on from the big C word. I did do a post about TIME and how grateful I am to have this extra TIME and how important it is to cherish Time , it is the only thing that you can't buy, make the most of it . Please don't waste time it is so precious.

Laughter is my mantra, no matter how hard life gets humour will always see me through I know some will find that hard to comprehend but for me it works. Never Laugh at a live Dragon. Cancer is the Dragon and yes Dragon I am laughing at you.

Tomorrow , Tomorrow is another day and yes it could all go tits up but TODAY is a good day.

For all those Soul Divas out there I dedicate Chairman of the Board , GIVE ME JUST A LITTLE MORE TIME.

BFN

Julie X

Edited by member 08 May 2015 at 01:17 | Reason: Not specified

NEVER LAUGH AT A LIVE DRAGON

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