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My 3 men contd

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User
Posted 15 Feb 2020 at 00:47
Thanks guys. Got the results of Wednesday's x-rays - doctor was surprised to find no evidence of bone mets in his thighs or pelvis. Pain killers seem to have kicked in now which is a relief and the CT scan has been booked for next Wednesday so hopeful of some answers soon.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Feb 2020 at 10:25
Fingers and toes crossed Lyn

Bri xx

User
Posted 20 Feb 2020 at 21:51
CT scans yesterday - we haven't heard anything so still no diagnosis. Dad is sleeping more and more, we only have codeine & paracetamol so breakthrough pain is a problem and he is very constipated even with the movicol & suppositories. We have an appointment with the GP for next Tuesday when the results should be back (fingers crossed). On the up side, he got out of bed tonight and made himself some corned beef fritters!

You wouldn't treat a dog like this :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 20 Feb 2020 at 23:20

Lyn

Hope it's good news next week. Take care.

Thanks Chris.

User
Posted 21 Feb 2020 at 09:55

Lyn,

All the best for your Dad going forward and for results next week.  

Ange

User
Posted 21 Feb 2020 at 11:35
Best of luck. The waiting is just awful. Seems a long wait when he is in so much pain. Best wishes x
User
Posted 21 Feb 2020 at 11:56
Wishing you and your dad all the best, hope the results are good next week.

Be thinking of you. Steve

User
Posted 22 Feb 2020 at 07:04
Hope you hear some good news from the Scan result.

Chris.

xxxxhugsxxxx

User
Posted 22 Feb 2020 at 12:13

Wishing your dad all the best Lyn. 

Ido4

User
Posted 29 Feb 2020 at 00:09
On Tuesday Dad's CRP had risen to 460; we managed to get him to the GP surgery and it was decided after a phone discussion with the hepatology dept that he should be admitted to hospital that afternoon. Well that didn't happen because they couldn't find him a bed - in the end they sent an ambulance about 9pm and took him to A&E for a few hours on a trolley, did all the tests again, threatened to send him back home before eventually moving him to a general ward. The silver cloud was that we managed to get the results of loads of the tests done over the last 4 weeks - no bone mets, no liver mets, pancreas clear, lungs clear, stomach clear.

ALP and ALT are still high. He is still very poorly but is no longer yellow - he has been moved to the care of the infectious diseases team who asked him about his sex life. Not sure I really wanted to know that he still takes his Caverject on the cruises with him (and uses them) πŸ˜‚ They have no idea what is wrong but it isn't PCa related - thought any of you with low stable PSA would be relieved to know that lightning hasn't struck twice.

Thanks for all the support & love x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 29 Feb 2020 at 04:54

I hope they get to the bottom of this soon

ulsterman

User
Posted 29 Feb 2020 at 08:06
Glad it doesn’t seem to be cancer related. Hope it gets sorted soon
User
Posted 29 Feb 2020 at 08:17
A conundrum you need sorted soon, he’s been through so much and so many tests that you’d think that someone might know by now.

Be strong Lyn.

Chris.

User
Posted 29 Feb 2020 at 09:00

I hope they get to the bottom of this quickly Lyn and can sort it out

User
Posted 29 Feb 2020 at 10:06

I can imagine the relief you all must feel with no mets. Let’s hope this is something that can treated quickly and your Dad can get back to his cruising and his caverject.

Good luck x

User
Posted 29 Feb 2020 at 10:21

A relief that it isn’t cancer related. I hope they get to a point he can be treated and get back to cruising. 

Ido4

User
Posted 29 Feb 2020 at 11:27

Lyn

It's probably  good to know what it isn't, but still frustrating not to know what it is. Hope you find an answer soon.

Thanks Chris

User
Posted 29 Feb 2020 at 12:15
Let’s hope he and his Caverject are cruising again soon!😷😷😷

Cheers, John.

User
Posted 29 Feb 2020 at 12:28

Thank goodness for the silver cloud Lyn.  Hope they find the cause soon and that your Dad is up and about again soon.

With best wishes, Ange

User
Posted 29 Feb 2020 at 15:20

I'd guess he's in the best place to be for a short time.  All the best. Peter

User
Posted 29 Feb 2020 at 22:22

Pleased its not the cancer and hope they soon get to the bottom of whatever it is.

 

all the best

barbara x

User
Posted 03 Mar 2020 at 18:12

Not been on for ages Lyn but sorry to hear about dad, glad its not the dreaded PCA but I sincerely hope he gets better soon.

Love

Devonmaid

User
Posted 01 May 2020 at 23:00
John's latest PSA is <0.1 - bloody marvellous news!

I neglected to update the dad saga - we pretty much said our goodbyes, the grandchildren & great-grandchildren travelled from the 4 corners and then he woke up and said 'oh, I feel so much better' and that was it. Back home, doing his garden, striding around the Yorkshire countryside and feeling rather like he has already done his self-isolation and could take on the world :-/ We have re-named him Lazarus.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 May 2020 at 23:05

Great news on both counts. I think a few of us were probably worried about your dad but did not want to intrude.

Good luck to all your family. 

Dave

User
Posted 01 May 2020 at 23:19

Hi Lyn,

That’s fantastic news!  So pleased for you both.

Also great news about your Dad’s recovery.  I must admit I had been wondering about how your Dad was and anxiously awaited your update.

Ange x

User
Posted 01 May 2020 at 23:27

Lyn

Great news, pleased to hear things are going well.

Thanks Chris

User
Posted 01 May 2020 at 23:30
So pleased to hear such good news.
User
Posted 02 May 2020 at 00:18

Fantastic news Lyn!
And Dad perking up like that really brought a big grin to my face.
Best wishes,
Chris

Edited by member 02 May 2020 at 00:20  | Reason: Not specified

User
Posted 02 May 2020 at 02:34

Brilliant Lyn, on both accounts.

User
Posted 02 May 2020 at 06:38
Double good news Lyn πŸ‘πŸ‘ really pleased for all of you

Cheers

Bill

User
Posted 02 May 2020 at 07:26
Lovely Lyn !! Well jell x
User
Posted 02 May 2020 at 07:56

So good to hear your news

uletrman

User
Posted 02 May 2020 at 08:05

πŸ‘πŸ‘

Flexi

User
Posted 02 May 2020 at 11:20

Hi lyn,

Fantastic news long may it go on.

 

John.

User
Posted 02 May 2020 at 11:45

Fantastic news on both counts Lyn.

Ido4

User
Posted 02 May 2020 at 12:03

Great news. Certainly sounds like J’s PSA has found its new level

Great to hear about your dad as well. You can’t beat a bit of good old Yorkshire grit (oops he’s a geordie isn’t he?)

Bri x

Edited by member 02 May 2020 at 12:05  | Reason: Not specified

User
Posted 02 May 2020 at 13:01
He is Bri - you should hang your head in shame at merely suggesting he might be anything other than a Geordie although the Yorkshire air is clearly helping!

Yes, happy with the PSA - to hit 0.11 twice and then have it drop back down is very fortunate, I think.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 May 2020 at 19:06

Great news on both counts.

 

barbaraxx

User
Posted 06 Jun 2020 at 14:44

Been off here for a while but great news about your dad Lyn, and Johns PSA. Knowing he is a Geordie I can now understand he recovery, they are just too bloody stubborn to quit, I married one...

Mike

User
Posted 04 Oct 2020 at 19:57
Dad, now 83 and having fully recovered from the mystery illness in February, has gone to stay a few days with his new lady friend (they have made themselves into a bubble, of course). He asked us to pick up a repeat prescription for him from the chemist, which J did yesterday. It is a significant supply of Caverject - I need counselling 😱🀯

On a happier note, J's September PSA reading was <0.1

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 Oct 2020 at 20:19

Hi Lyne, 

That made me laugh. Well done to the auld fella. 

Onwards and upwards 🀣

Sandy

User
Posted 04 Oct 2020 at 20:21

Hi Lyne, 

Meant to add, good news with John's PSA. Long may it continue. 

Sandy

User
Posted 04 Oct 2020 at 20:40

Lyn

Good to hear things are going well.

Thanks Chris

User
Posted 04 Oct 2020 at 21:14
Haha good man. Living the dream. Great news about John too. Long may it continue x
User
Posted 04 Oct 2020 at 21:38

Great news all round πŸ‘πŸΌ

User
Posted 04 Oct 2020 at 23:56
Very good news and there's not a lot of that right now.
Barry
User
Posted 05 Oct 2020 at 07:19
good news xx

barbara x

User
Posted 05 Oct 2020 at 08:07
Sounds great Lyn hope i can do the same in my 80s.

Good luck John.

User
Posted 05 Oct 2020 at 08:53
Great news on both counts Lyn. Nice to hear your Dad's making good use of the Caverect at 83

Cheers

Bill

User
Posted 05 Oct 2020 at 09:31
Love it. You can’t keep a good man down. Great to hear the <0.1 is being maintained for John πŸ‘

Bri xx

 
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