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My 3 men contd

User
Posted 18 Dec 2018 at 10:10

Good news Lyn so pleased for you both,I have my six monthly blood test tomorrow for next oncology meeting in January.

Have a great Christmas and New year and thanks for all your support in my early days.

John.

User
Posted 18 Dec 2018 at 21:54

Brilliant news on the psa Lyn so happy  for you but gps and prostate are as far apart (Hold on to your T ) as Tits and Kippers .😂

Yes its me 

Julie xxx

NEVER LAUGH AT A LIVE DRAGON
User
Posted 21 Feb 2019 at 13:54
Went with dad to see Mr P last night; his PSA is now 1.2 and the doubling time has increased from 4 years to 2 years to 21 months. According to Mr P, it will be about 10 years before the remaining cancer cells (which he is confident are in the prostate bed and have probably been there for the entire 19 years since RP) start to cause a problem. On that basis, we have agreed that there is no need to start HT until/unless the doubling time reaches 6 months - I asked about PSA thresholds of 5 / 10 / 20 but he felt very strongly that these are arbitrary numbers and it is the doubling time that should determine when to intervene. He also suggested that if/when Dad does go onto HT, he should go with intermittent approach which will knock it back in phases while allowing dad to stay as active as he currently is.

We talked about scans to confirm that the stray cells are actually in the prostate bed. He said that MRI is notoriously unreliable below PSA of 10 and although Dad could have a PET scan (choline or FACBC) he would have to pay privately - we agreed it was rather pointless since he won't have treatment yet even if the cluster is identified.

We discussed the fact that it is now 19 years since the op, and that dad was one of his first nerve-sparing patients; Mr P mentioned that his first nerve-sparing patients were 24 years ago and some are still here to tell the tale. Isn't that fab!

Finally, we had a chat about the PSA test and John's recent rise to over 0.1 and then back down again. He told us not to take it too seriously unless it becomes consistent - that at the cancer centre they have done some research on PSA which included testing women. The average PSA result for the women tested was 0.06 (and before Bollinge asks, it seems that these women are unlikely to have just had an orgasm). It seems this had played a part in the ending of the ultra-sensitive test.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 21 Feb 2019 at 16:41
Hi Lynn

that sounds like good news for your dad.

regards barbara x

User
Posted 21 Feb 2019 at 17:23

L

Sounds like a thorough consultation and a good plan.

Thanks Chris

 

User
Posted 21 Feb 2019 at 19:13

Very thorough consultation, Mr P sounds very good.

It might be worth thinking about an MRI with enhancement.

I had a gadolinium enhanced MRI with a recurrent psa of 0.7 and it picked up cancer cells on the prostate bed. That wasn't a 3T machine before anyone asks!

I also had a coil pack placed on my abdomen to enhance the images which seems to be standard for pelvic MRI where I am.

It's great your dad is still pretty much ok 19 years from the operation and is still very active.

Ian

 

User
Posted 21 Feb 2019 at 23:44
Great news for your dad and some very relevant questions that potentially relate to me at the moment. Very useful

Thanks

Bri

User
Posted 22 Feb 2019 at 05:45

Reckon Mr P knows he’s met his match in you, Lyn. However, he also seems like a top guy who treats his patients with the respect they deserve. A sound prognosis and much needed good news.

User
Posted 22 Feb 2019 at 07:36

Wow 19 years post op, that is wonderful to read.  Sounds like your Dad is in good hands, not just with Mr P, but with you to Lynn.  Long may it continue.

Michaela

User
Posted 22 Feb 2019 at 09:15
Great update Lyn thank you.

User
Posted 22 Feb 2019 at 10:00

Originally Posted by: Online Community Member
at the cancer centre they have done some research on PSA which included testing women. The average PSA result for the women tested was 0.06 (and before Bollinge asks, it seems that these women are unlikely to have just had an orgasm). It seems this had played a part in the ending of the ultra-sensitive test.

😂🤣😂🤣😂🤣😂

User
Posted 22 Feb 2019 at 15:31

He's in good hands with you accompanying him.  What you've written supports what you often say. That he's over psa 1 with cells in the prostate bed and not having treatment is re-assuring to others.  As well as the intermittent and velocity statements and MRI unreliable with psa under 10. In some ways it softens my own view that I want to know my actual psa but it hasn't knocked it off court.  Very good consultation. 

User
Posted 23 Feb 2019 at 23:38

Such a good uodate Lyn, no doubt that this is great information for many readers here too.

lots of love

Devonmaid xxx

User
Posted 26 Feb 2019 at 20:37

Hi Lynne

Been a wee while since I wrote. 

Good news on your dad, long may it continue. 

Cheers

Sandy

User
Posted 27 Feb 2019 at 10:55

Hi Lynn,

Great News long may it continue.

John.

 

 

 

 

 
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