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My 3 men contd

User
Posted 18 Dec 2018 at 10:10

Good news Lyn so pleased for you both,I have my six monthly blood test tomorrow for next oncology meeting in January.


Have a great Christmas and New year and thanks for all your support in my early days.


John.

User
Posted 18 Dec 2018 at 21:54

Brilliant news on the psa Lyn so happy  for you but gps and prostate are as far apart (Hold on to your T ) as Tits and Kippers .πŸ˜‚


Yes its me 


Julie xxx

NEVER LAUGH AT A LIVE DRAGON
User
Posted 21 Feb 2019 at 13:54
Went with dad to see Mr P last night; his PSA is now 1.2 and the doubling time has increased from 4 years to 2 years to 21 months. According to Mr P, it will be about 10 years before the remaining cancer cells (which he is confident are in the prostate bed and have probably been there for the entire 19 years since RP) start to cause a problem. On that basis, we have agreed that there is no need to start HT until/unless the doubling time reaches 6 months - I asked about PSA thresholds of 5 / 10 / 20 but he felt very strongly that these are arbitrary numbers and it is the doubling time that should determine when to intervene. He also suggested that if/when Dad does go onto HT, he should go with intermittent approach which will knock it back in phases while allowing dad to stay as active as he currently is.

We talked about scans to confirm that the stray cells are actually in the prostate bed. He said that MRI is notoriously unreliable below PSA of 10 and although Dad could have a PET scan (choline or FACBC) he would have to pay privately - we agreed it was rather pointless since he won't have treatment yet even if the cluster is identified.

We discussed the fact that it is now 19 years since the op, and that dad was one of his first nerve-sparing patients; Mr P mentioned that his first nerve-sparing patients were 24 years ago and some are still here to tell the tale. Isn't that fab!

Finally, we had a chat about the PSA test and John's recent rise to over 0.1 and then back down again. He told us not to take it too seriously unless it becomes consistent - that at the cancer centre they have done some research on PSA which included testing women. The average PSA result for the women tested was 0.06 (and before Bollinge asks, it seems that these women are unlikely to have just had an orgasm). It seems this had played a part in the ending of the ultra-sensitive test.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 21 Feb 2019 at 16:41
Hi Lynn

that sounds like good news for your dad.


regards barbara x
User
Posted 21 Feb 2019 at 17:23

L


Sounds like a thorough consultation and a good plan.


Thanks Chris


 

User
Posted 21 Feb 2019 at 19:13

Very thorough consultation, Mr P sounds very good.


It might be worth thinking about an MRI with enhancement.


I had a gadolinium enhanced MRI with a recurrent psa of 0.7 and it picked up cancer cells on the prostate bed. That wasn't a 3T machine before anyone asks!


I also had a coil pack placed on my abdomen to enhance the images which seems to be standard for pelvic MRI where I am.


It's great your dad is still pretty much ok 19 years from the operation and is still very active.


Ian


 

Ido4

User
Posted 21 Feb 2019 at 23:44
Great news for your dad and some very relevant questions that potentially relate to me at the moment. Very useful

Thanks

Bri
User
Posted 22 Feb 2019 at 05:45

Reckon Mr P knows he’s met his match in you, Lyn. However, he also seems like a top guy who treats his patients with the respect they deserve. A sound prognosis and much needed good news.

User
Posted 22 Feb 2019 at 07:36

Wow 19 years post op, that is wonderful to read.  Sounds like your Dad is in good hands, not just with Mr P, but with you to Lynn.  Long may it continue.


Michaela

User
Posted 22 Feb 2019 at 09:15
Great update Lyn thank you.

User
Posted 22 Feb 2019 at 10:00

Originally Posted by: Online Community Member
at the cancer centre they have done some research on PSA which included testing women. The average PSA result for the women tested was 0.06 (and before Bollinge asks, it seems that these women are unlikely to have just had an orgasm). It seems this had played a part in the ending of the ultra-sensitive test.


πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚

User
Posted 22 Feb 2019 at 15:31

He's in good hands with you accompanying him.  What you've written supports what you often say. That he's over psa 1 with cells in the prostate bed and not having treatment is re-assuring to others.  As well as the intermittent and velocity statements and MRI unreliable with psa under 10. In some ways it softens my own view that I want to know my actual psa but it hasn't knocked it off court.  Very good consultation. 

User
Posted 23 Feb 2019 at 23:38

Such a good uodate Lyn, no doubt that this is great information for many readers here too.


lots of love


Devonmaid xxx

User
Posted 26 Feb 2019 at 20:37

Hi Lynne


Been a wee while since I wrote. 


Good news on your dad, long may it continue. 


Cheers


Sandy

User
Posted 27 Feb 2019 at 10:55

Hi Lynn,


Great News long may it continue.


John.


 


 


 


 

User
Posted 28 Mar 2019 at 12:50
Great news Lynn.
We too have been to see Mr P this week. I only wish my patient could be a bit more pragmatic about his results.
User
Posted 28 Mar 2019 at 20:36
Did he tell you about their research testing women's PSA?

What was his score this week?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 17 May 2019 at 19:33
Wine for John and a nice cup of tea for me .... May 2019 PSA result is in and we have regained the < symbol :-)
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 17 May 2019 at 19:50

πŸ‘fantastic news 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 17 May 2019 at 20:25

That's so good to hear Lyn. Tony's PSA due in next couple of weeks once we get back from the Cotswolds so squeaky bum time again.


 

User
Posted 17 May 2019 at 20:31
John was more nervous this time and put off getting the results for nearly a week! Good luck with yours, Peggles.

Julie, lovely to see you posting ... how are you doing?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 17 May 2019 at 20:53
Nice one!
Roger
User
Posted 17 May 2019 at 20:55

Lyn


Good to hear. 


Thanks Chris

User
Posted 17 May 2019 at 22:31
Brilliant news Lyn
User
Posted 17 May 2019 at 22:54

Great news

User
Posted 18 May 2019 at 00:35
Very pleased for you and yours,
Barry
User
Posted 18 May 2019 at 06:26
That’s good to hear Lyn. Like the new photo!
Betty
User
Posted 18 May 2019 at 06:50
Well done Matron!

Cheers, John.
User
Posted 18 May 2019 at 07:17
That's good news all the best to you and your family..Geoff
User
Posted 18 May 2019 at 09:27
It’s such a relief to get good news , love the new photo .
Best wishes
Debby
User
Posted 18 May 2019 at 09:32
Good news hope it continues

Cheers
Bill
User
Posted 18 May 2019 at 10:03

That’s great news.

Ido4

User
Posted 18 May 2019 at 10:48

Very good news! 
Enjoy the cuppa πŸ™‚

User
Posted 18 May 2019 at 13:59
Nice one, keep the very good news going.

Ray
User
Posted 18 May 2019 at 15:32

Very happy for you all Lyn.

User
Posted 19 May 2019 at 01:12
Great news Lynne. Very pleased

Clare
User
Posted 19 May 2019 at 02:42

πŸ’•πŸ’•πŸ’•

Ten. YES BLOODY 10 years since DX!!


I am Spartacus - with the strength of iron, a will of steel and the fight to give this disease a real run for its money!! 

User
Posted 19 May 2019 at 12:15
Great news....please please let me follow a similar path πŸ˜‰
User
Posted 19 May 2019 at 14:10

Wonderful news Lyn, really chuffed for you both x

 
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