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My 3 men contd

User
Posted 15 Nov 2019 at 00:57
That's terrible but I believe rare. I read another case recently of a child under 10 years of age being diagnosed with Alzheimer's which is also surprising for that disease which we also associate with people that are middle age and beyond.
Barry
User
Posted 15 Nov 2019 at 09:08

That’s shocking Lyn. So sorry to hear that.

Ido4

User
Posted 16 Nov 2019 at 15:02

Sad news Lyn our thoughts are with you, you think it only happens to old men like me that have had a good life first.


Regards John.

User
Posted 01 Jan 2020 at 01:36
This month marks 10 years since John's RP and in July it will be 8 years since his salvage RT started. When he was diagnosed, I just wanted him to make it to 60 and he has done that; there is hope after biochemical recurrence.

Wishing everyone here a happy and hope-filled 2020 x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 01 Jan 2020 at 08:24

Happy new year, Lyn, and thanks for all the support you’ve given to so many over the years 

User
Posted 01 Jan 2020 at 08:34
Happy new year Lyn and family xxx
User
Posted 01 Jan 2020 at 08:59
Happy New Year, Lyn. Hope we all have a healthy year.

Best wishes,

Chris
User
Posted 01 Jan 2020 at 09:34
Happy New Year Lyn and family glad you are all well,10 years, where does it all go?
It's 7 years for me and still <0-1 or something like that, so very good I think! Still having six month s PSA bloods, s'pose I should go to 12 months by now. Must go lots to do, Happy new year to All. xx
User
Posted 01 Jan 2020 at 09:53

Lyne


Here's hoping for a happy new year ahead for you and your family.


Happy New year to all.


Cheers


Sandy

User
Posted 01 Jan 2020 at 09:54
Best wishes Matron & John.

Happy New Year!

Cheers, John.
User
Posted 01 Jan 2020 at 10:46
Happy new year and a big Thankyou to you for all the support and knowledge that you have given everyone over the years .
Best wishes
Debby
User
Posted 01 Jan 2020 at 11:29
Hi Lyn,
since first visiting this site I have followed your input.
Thank you for your advice, support and generosity.
Your advice on so many issues I am certain helps everyone.
God bless and best to you and John for the roaring Twenties.
User
Posted 01 Jan 2020 at 12:43

Lyn,


I'd also like to echo the comments of others, thanking you for sharing your knowledge here for the benefit of all.


Wishing you and your family the best for 2020.


Andy.

User
Posted 01 Jan 2020 at 16:41

That's an optimistic start to 2020, Lyn.  It's what we like to read.  All the best to you and everyone!

User
Posted 01 Jan 2020 at 17:12
Thanks for always being there for everyone. It means a lot to us all xx

If life gives you lemons , then make lemonade
User
Posted 01 Jan 2020 at 19:20

Lyn


Happy new year to you and your family. 


Thanks Chris

User
Posted 01 Jan 2020 at 20:08

Happy New Year to everyone here. Lyn, it is very encouraging to read John’s story. Thanks  for all the help and advice you give us all.


 

Ido4

User
Posted 02 Jan 2020 at 02:03
Best wishes from me too!
Barry
User
Posted 02 Jan 2020 at 09:03
Very encouraging Lyn. Come Feb I will be 7 years since my treatment.
On another note has anyone heard from Bazza. Hope he’s ok

Happy new year all

Bri
User
Posted 02 Jan 2020 at 09:30
Happy New Year Lyn,

Your support on here is immense and much appreciated

Regards

Dave
"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
User
Posted 02 Jan 2020 at 10:14
thankyou lyn,you are very helpful to people on here,happy new year,and to everyone on here.
User
Posted 02 Jan 2020 at 15:06

Thank you for all of the help and advice you have given to me Lyn.  Wishing you and yours a very happy new year.


xx

User
Posted 16 Jan 2020 at 23:16

Not been on since Xmas so apologise for late post, but may you Lyn and all your family have a very happy and healthy 2020. The same to everyone on here too.


 

User
Posted 12 Feb 2020 at 01:15
I don't know quite how to start this post. Dad took ill while we were in the Gambia last week; a flurry of blood tests and scans have provided the following information:

- exceptionally high CRP reading (normal is <3.0 - dad's is over 300)
- high ALP & ALT
- extreme pain in the hips and legs
- constipation
- acid reflux
- jaundice
- unsteady on his legs and prone to fainting / losing consciousness momentarily

It was a battle this morning to get a GP to come out to him but we did eventually get him into a car to the GP surgery, from where we had to take him to the hospital for more bloods and an x-ray. He has had an endoscopy, there is a liver scan on Friday, CT scan is on an urgent referral but the general view is that he either has end stage liver disease or PCa mets to liver and bone or pancreatic cancer. The doctor's view is that it is most likely advanced PCa. They have told him to stop taking his blood pressure meds and statins and this afternoon, we managed to get them to prescribe some proper pain relief.

Three weeks ago he was dancing 5 nights a week, he is due to do the Camino again in May. His PSA in January was 1.1. Dad has been quite tearful today and says he just feels very, very sad. We have cried together; John has lifted him, dressed him, undressed him for the scans, dressed him again.

When Stan died, they had missed the advancing PCa because his PSA had fallen to 1.2 - they told us that it is extremely rare for an aggressive cancer to stop producing PSA as it progresses. I didn't think for a moment that lightning could strike twice but it possibly has.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 12 Feb 2020 at 01:22

Thinking of you all Lyn.


God Bless. 

User
Posted 12 Feb 2020 at 05:13
So sorry to read this, Lyn.

Ulsterman
User
Posted 12 Feb 2020 at 05:49
Oh Lyn , sending all our strength and love x

If life gives you lemons , then make lemonade
User
Posted 12 Feb 2020 at 06:44

So sorry to hear this news. 


Sandy

User
Posted 12 Feb 2020 at 07:20

Lyn, really sorry to read this. Thinking of you...

User
Posted 12 Feb 2020 at 07:36

Lyn


Sorry to hear this, thinking of you all. 


Thanks Chris

User
Posted 12 Feb 2020 at 07:44
Lyn, so sorry to hear your news. Thinking of you and your family
User
Posted 12 Feb 2020 at 07:53

Oh Lyn, I'm so sorry to read about your Dad. What a shock.  I'm thinking of you all xx

User
Posted 12 Feb 2020 at 07:59

So sorry to read this, Lyn, thinking of you all, xx

User
Posted 12 Feb 2020 at 14:48

So sorry to hear this - thinking of you.

User
Posted 12 Feb 2020 at 14:53

Think of you all at this most difficult of times.


Arthur

User
Posted 12 Feb 2020 at 15:07

So sorry to hear about your dad. Thinking of you all


 


Ann


 

User
Posted 12 Feb 2020 at 15:41

Oh Lyn, you and your family are in my thoughts.


 

User
Posted 12 Feb 2020 at 16:10
Really sorry to hear this Lyn. Thinking of you all at this worrying time

Love Bri xx
User
Posted 12 Feb 2020 at 17:16
So sorry to read this Lyn, thoughts with you and your dad.
User
Posted 12 Feb 2020 at 17:19
Very sorry to learn of this development and I share your concern Lyn.
Barry
User
Posted 12 Feb 2020 at 17:51
I hope things go as well as they can from here Lyn.

Cheers
Bill
User
Posted 12 Feb 2020 at 17:53

Lyn, I'm really sorry to hear that your dad is going through this now. 


Thinking of you both at this difficult time. 


Steve x

User
Posted 12 Feb 2020 at 18:29

Really sorry to read this Lyn. Thinking of you all. Sending hugs and love.

Ido4

User
Posted 12 Feb 2020 at 23:09
God bless you and all your family
User
Posted 12 Feb 2020 at 23:25

Sorry to read this, Lyn.


Peter

User
Posted 12 Feb 2020 at 23:29
So sorry to read this Lyn. Your dad sounds like a real character with the Camino planned ., wow! What a blow for you all.
Thinking of you
Clare
User
Posted 13 Feb 2020 at 19:29

So sorry to hear this
Barry

User
Posted 14 Feb 2020 at 17:34

A worrying and extremely difficult development in Dad’s fight with this nasty illness. He sounds a wonderful character & hopefully his fighting spirit will give him the strength to carry on the good fight. Sincere good wishes to you all.

User
Posted 14 Feb 2020 at 20:55

So sorry to hear this news Lynn. xx


 


barbara

User
Posted 14 Feb 2020 at 21:25
So sorry to read this Lynn ,our thoughts are with you and your family .xxGeoff
 
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