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My 3 men contd

User
Posted 22 Feb 2018 at 21:36

Two PSA results in one day:-

Dad - now up to 0.7 - we have discussed and he is not going to do anything except test again in 12 months time

John - <0.1 again ... to be honest, we can't believe our luck! Just goes to show that even if it does rise over the dreaded 0.1 it doesn't necessarily mean biochemical recurrence.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Feb 2018 at 23:24
Fantastic news regarding John’s PSA Lyn

Must have been a wee bit of a worry for a bit there when it popped over 0.1

Celebrate good times

User
Posted 23 Feb 2018 at 07:30

If it’s possible in this world of PCa it looks like a double win lyn. John seems ultra stable and dad is dad with his mind made up so far. Can’t say I blame him given the scores xx

If life gives you lemons , then make lemonade

User
Posted 23 Feb 2018 at 07:59

Hi Lyn, just popped in to say hello, and pleased to see your good news. I don't get on here much these days, but glad to see some old faces still jogging along. It's been over 4 years since my da Vinci op, and all is well with me and my PSA. Good luck to all. Diesel X.

User
Posted 23 Feb 2018 at 08:50
Good news all round then Lyn as I get the feeling that Dad will do as he pleases anyway and I applaud him for it.

Kind regards

Kevan

User
Posted 23 Feb 2018 at 08:55

Excellent news Lyn.

So pleased for you and John

Dad is a trouper eh!

We can't control the winds - but we can adjust our sails
User
Posted 23 Feb 2018 at 09:06
Morning Lyn,

Great news for you and your family. News such as this also gives those of us in a similar position a good deal of hope. Take care.

Paul

User
Posted 23 Feb 2018 at 10:04

Dads will do what dads will do - and why not as we're of course older and wiser -:) Good news on John.

Keep the luck going

Ray

User
Posted 23 Feb 2018 at 10:18
So pleased for the three of you

Ulsterman

User
Posted 24 Feb 2018 at 08:53
Great news Lyn

Love the way dad deals with it

Si xx

Don't deny the diagnosis; try to defy the verdict
User
Posted 24 Feb 2018 at 22:22
Lyn

That has got to be a relief on both fronts, best wishes.

Thanks Chris

User
Posted 24 Feb 2018 at 22:47

Very good news Lyn

Barry
User
Posted 24 Feb 2018 at 23:57
Great news Lyn and long may it go on

Paul

User
Posted 26 Feb 2018 at 22:02
Oh wow Lyn, amazing results. Lovely to hear xxx
User
Posted 01 Mar 2018 at 14:31

Very good news Lyn

User
Posted 03 Mar 2018 at 11:27

Hi Lyn,

Great news  for your boys long may it continue.

 

John.

User
Posted 12 Mar 2018 at 05:34
Wonderful news Lyn,
User
Posted 12 Mar 2018 at 05:35
Wonderful news Lyn
User
Posted 21 Aug 2018 at 23:59
August brings with it another PSA test - result today was 0.1 (definitely no < sign) so it is just continuing to hover there & thereabouts.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Aug 2018 at 06:57
Sounds good to me. Raiden the same between 0.09 and 0.11. I’m pleased for you guys x

If life gives you lemons , then make lemonade

User
Posted 22 Aug 2018 at 07:13

Lyn

Hoverering is better than rising, best wishes.

Thanks Chris

User
Posted 22 Aug 2018 at 08:04
Sorry the < is missing. Maybe we should reconsider super-sensitive assay 😉

Here’s hoping for <0.2 forever!

Cheers, John

User
Posted 22 Aug 2018 at 08:39

Good news Lyn and long may it continue.

Kind regards

Kevan 

User
Posted 22 Aug 2018 at 10:07

Originally Posted by: Online Community Member
Sorry the < is missing. Maybe we should reconsider super-sensitive assay 😉

Here’s hoping for
Cheers, John

 

Not worried about the missing sign - it has previously gone up to 0.11 then back down to <0.1 and scans are clear so the clinical view is that he simply produces a lot of non-prostate related PSA.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Aug 2018 at 10:09

Fantastic news Lyn can it get any lower,I would be very happy with that.Good luck and long may it continue.

 

John.

User
Posted 22 Aug 2018 at 10:44
Pleased for you both. Long may it continue.

Cheers Bill

User
Posted 22 Aug 2018 at 12:29
Great news, good for you!!

Richard

User
Posted 22 Aug 2018 at 14:08

Originally Posted by: Online Community Member

.........so the clinical view is that he simply produces a lot of non-prostate related PSA.

Is he lactating? 😉

User
Posted 22 Aug 2018 at 20:36

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

.........so the clinical view is that he simply produces a lot of non-prostate related PSA.

Is he lactating? 😉

 

No, he just has a lot of orgasms http://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-laughing.gif

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Aug 2018 at 20:43
:-0

If life gives you lemons , then make lemonade

User
Posted 22 Aug 2018 at 21:15
Great result Lyn xx
User
Posted 22 Aug 2018 at 23:47
Great news.. ( esp the orgasms!)
User
Posted 23 Aug 2018 at 00:18

I’m speechless 😶 , but great news on the psa front 

Ulsterman

User
Posted 23 Aug 2018 at 00:30
Ha ha - I would like to claim that it is all down to my gorgeousness but sadly, it was just a response to Bollinge's comment on my previous posts regarding breastfeeding & post orgasmic women having detectable PSA :-/
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Dec 2018 at 00:29
Weirdest thing happened today. J went to talk to GP about ED and possibly trying something new - Levitra & Viagra both produce an erection but not long lasting, and I am reluctant for him to go back to Caverject as I suspect his EF is still good enough for priapism to be a significant risk. J says the GP was empathetic, listened & said he hadn't heard of Muse or Vitaros but was willing to prescribe. When he brought it up on the screen, it became clear that in our CCG, the cream and pellets can only be prescribed by the consultant so J has been referred back to Mr P! What a waste of time and resources :-/

GP then asked John whether he still ejaculates; John said "erm, no - I don't have a prostate" Apparently, GP wasn't really sure whether it was still possible.

I despair.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Dec 2018 at 00:33
And this is the really good GP that John has waited 6 weeks to see because he is usually so on the ball.

Oh, and I forgot to post that the most recent PSA in November was back down to <0.1

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Dec 2018 at 02:24

Well most importantly John's PSA is down.

I do have some sympathy with GP's. They train for years during which time medicine changes in many ways and continues to do so after they have qualified when they go on to diagnose and prescribe sometimes changing medication for numerous and diverse problems. They are expected to make immediate decisions and to decide whether patients need to be referred to specialists and to monitor their patients in busy surgeries. I think we sometimes expect too much of our GP's in their ever more demanding role.

Most GP's usually work in a practice where there are several of them and I feel there needs to be more specialization so doctors should be able to direct patients towards an appropriate colleague in need with greater expertise within the practice, This would doubtless require changes in the way doctors are trained and qualify. Something needs to be done because there is a limit to how much a person can assimilate and keep updated on. Presently many GP's feel pressurized and overworked , so many of them are retiring early. Something really has to change!

https://www.theguardian.com/society/2015/apr/15/nhs-stress-third-gps-plan-retire-five-years

NB This article was written well before the Referendum on EU membership

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Edited by member 14 Dec 2018 at 02:34  | Reason: Not specified

Barry
User
Posted 14 Dec 2018 at 02:48
I have said before that I now know more about PCa than my GP, and that he wrote that I had a TURP on my first sick note instead of RP, with the result that I was called in for a fitness for work assessment by a physio down the dole office.

She aborted the interview after five minutes once she realised I had cancer and had had major abdominal surgery to remove it.

Ah, priapism, if only! I was offered MUSE and Caverject, but basically can’t be bothered. Must get round to ordering that pump - size XXS😉, but Her Loveliness has moved the leaflet with the NHS PIP order code, and we can’t find it, so it will have to wait until after Christmas.

Cheers, John.

User
Posted 14 Dec 2018 at 06:40
It’s rapidly become clear to me that you can know way more in many areas than your GP. Theirs must be the hardest job ever I reckon. Congrats on your result !! Give Invicorp 25 a go on a date night near a hospital :-)) Although I’m happy with my daily Cialis , if I want what I call a real ‘root’ erection , I add half a viagra or use an injection. Strange thing is when I get a proper proper erection , I become mildly incontinent. It must be because I’m solid through to my bladder which was tampered with during surgery. Lyn you have the knowhow to trial a few of these things privately I reckon. Good luck

If life gives you lemons , then make lemonade

User
Posted 14 Dec 2018 at 07:55

L

Good news on the PSA hope it continues. 

Thanks Chris

User
Posted 14 Dec 2018 at 08:06

Great news on J's PSA, just in time for a nice christmas!

User
Posted 14 Dec 2018 at 09:18

Great and encouraging PSA result Lyn

Re the GP I agree to some extent with Barry’s view about having specialists at the GP surgery. However, all GP’s need to evidence Continuous Professional Development and wouldn’t you think a focus of that would be on conditions that are responsible for the biggest number of deaths in adults. This should apply to nurses also. A nurse at my surgery once questioned me (in front of the receptionist) why I needed a PSA blood form as I didn’t have a prostate.
My GP originally said my PSA of 22 was normal. He also said my increase from <0.01 to 0.08 was normal. The problem is too many people out there will not question their GPs and will believe everything they are told. Frightening

Edited by member 14 Dec 2018 at 09:19  | Reason: Not specified

User
Posted 15 Dec 2018 at 11:22

Good to read the psa result.

At our surgery each GP has a speciality.  Although you'd be pushed to get a decent appointment with a named GP.   That being said I've no real complaints.

I once rang the surgery for a psa result and a youngish voice said it was alright because it was under 4, computer says so.  The psa result at the GP never shows the < either.  Although it was only a one off test so didn't complain.

 

 

 

 

User
Posted 15 Dec 2018 at 11:47

Originally Posted by: Online Community Member

Good to read the psa result..

I once rang the surgery for a psa result and a youngish voice said it was alright because it was under 4, computer says so.  The psa result at the GP never shows the < either.  Although it was only a one off test so didn't complain.



Without wishing to come across as condescending in any way....I'm sure there are many secretaries who type these reports who don't know what the < symbol means,  and either omit it or put it down to a typing error..... 

I've even had a report saying that no intervention would be considered in my case until, or if my PSA rose to 2... 
After challenging that report it was amended to 0.2 ( typing error ) lol! 

Luther

User
Posted 15 Dec 2018 at 12:59
Re ED I assume he has tried a "Chris Cock Ring"??
User
Posted 16 Dec 2018 at 02:32

Originally Posted by: Online Community Member
I guess the only difference is at the hospital they are tested straight away and I get the results in just over an hour and at the GP surgery the nurse takes the blood then they are tucked in her knicker elastic for 8 hours then slung in the back of a van and driven 30 miles and then the next day someone gets round to testing them.

haha

 

User
Posted 16 Dec 2018 at 06:01
good news on the PSA , happy Christmas

barbara xxx

User
Posted 16 Dec 2018 at 07:11

On my EMIS Patient Access app, where I get my PSA result the next day, the < does symbol not appear, and 0.1 or <0.1 is rather important to the likes of us here! I wrote to the company responsible for the app, but they never bothered to reply.

I phoned the doctor’s, and had to interrogate the receptionist to ask if there was a < in front of the figure on their result from the hospital and she came out with ‘I’m not medically trained’. Fortunately there was. Not bloody mathematically trained either!

Merry Christmas everybody.

Cheers, John

Edited by member 16 Dec 2018 at 11:30  | Reason: Not specified

User
Posted 17 Dec 2018 at 15:03

Great news on your husbands ongoing undetectable PSA, long may they remain so 

 

nice little dose of reassurance before the festive period

User
Posted 17 Dec 2018 at 17:11
Lyn, don't blame John's GP for his error, I heard he missed the men's anatomy class at med school due to a bout of flu.

Good news about the PSA!

Merry Christmas to you both.

Roger
 
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