Guys, hug time or what?
I'd like to repeat my earlier post:
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I think we would all love to get back to 'the old days' of the forums.
It has been all the glitches that have put so many of us off.
We're coming up to five months since the changeover to this new format, and it still has some of us tearing our hair out.
However, my own absence lately has been more to do with losing three dear friends in less than a month.
For the first time in nine and a half years here, and losing a lot of PCa pals (38 in all), these recent losses really got to me.
Now I feel ready to try again.
I must admit, I feel guilty that my input here has lessened.
From 2005 till this year, it seemed we were all here for eachother, every single day, and we could count on quick replies to PCa concerns.
We have lost a lot of that community spirit, and I for one would like to see it back here, stronger than ever.
Allister is right, 'the Dark Side' site is so much easier to use, but is not an alternative to this site, just as my own B2PCa site could never be (we're all crazy on there!).
The 'Dark Side' is simply another 'room' we can enter and meet up with about 200 of PCUK people, and has been running for over three years.
To get this site back on track, I do now think we 'veterans' should try a bit harder, attempt more posts despite the problems, and keep everything crossed that those very frustrating glitches will be resolved.
I have faith in Carol Jones, and hopefully we will have resolution in the near future.
Guys, we owe it to newcomers to be there for them.
We must never forget how lonely we felt ourselves in the first very dark days after diagnosis.
All the very best,
George
(better late than never)
PS. Barry M made a good and valid observation.
It's always good to be a member of a variety of Prostate cancer Support sites.
Yana was the very first site I found in 2005 and I still use that site as well as the American USTOO forums.
To have such a wide spectrum of views and news at your fingertips can make a big difference to your understanding of every aspect of PCa treatment plans around the globe. Knowledge is power.
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Agree with George, (Really) http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif for the same reasons the last month has really hit me, when you loose so many guys it really is tough. Guys that joined after me and succumbing to this disease really brings home your own vulnerability.
I took Mick on his final journey last week to Manchester airport on route to America to have his ashes spread there and Mo has gone for 7 weeks as well.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif
When i look back on my thread right at the beginning PSA 4.6, your be all right then the phone call, the cancer has eaten through your pelvis and we might need to do a hip replacement, all of this over Christmas, if it wasn't for this forum i would have gone mad, the help and advice i got was amazing.
I think we have to except that this is it and there is no going back to the old forum and judging by the deafening silence from PCAUK they probably don't care. But i will say one thing, you might work in prostate cancer but none of you HAVE prostate cancer and this forum is probably second only to a good onco as the most important things to have. to have the ability to discuss with guys in the same boat as you is priceless.
To think that you got the new forum right first time and that there is no need for any tweaks is amazinghttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif but i will give it my best shot and hopefully so will everyone else.
Si
Don't deny the diagnosis; try to defy the verdict |
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These last few posts bring it home about what is important in life. So a few buttons don't work, big deal. This site isn't about faulty buttons it's about real people and real lives, real people that are scared they need help , advice, friendship. This site is so much more than it's faults, it is so much more than that. It is about all of you Guys, being there for each other. That is what we all do best, not the griping.
Too many good men lost in such a short time, many of us have been left reeling. Come on lets honour there memory.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
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George Si Julie
great posts good to hear that old fighting talk back the advice friendship the compassion.
You and all the oldtimers have so much still to give(sorry for the old comment)
Have been missing you all
Carol x
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When I unfortunately had to join this forum I got a lot of support ..I also like to think ive offered some support to others.
My last post was not to tell you what to do with your thread Paul nor to offend or upset you in anyway. I didn't join the forum to cause offence or to upset anyone.
Apologies if this was the case above
Bri
Edited by member 23 Sep 2014 at 07:18
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User
Hello people.. I actually cried when I caught up on this thread, I have not needed to report any faults although the site sometimes does some annoying things when accessed via a mobile phone or tablet. It seems to work fine on my rather ancient Toshiba laptop. It has taken a bt of getting used to but only becuase it is different I now have all my dearest friends locked into "conversaions I follow" I try and post a reply to every new member by using recent conversations as the backbone. I sometimes lose my own conversations but when I use the search facility I find them.
I have made lifetime friends through this forum with people who have been there to support me through Mick's slow diagnosis, through his treatments which did not work through his awful months in Hospital and in the Hospice and ulitmately in his death and beyond.
The friends list is substantial and my Daughter Karen has also sought refuge with me on this forum.
I cry because I can envisage friends that I love and who are dear to me arguing over IT and trivia ... please, please, please I urge you to use this conversation as Paul intended to raise awareness of technical issues and not as a place to moan about things we cannot change.
ie I just tried to post this message at 16.11 GMT and got a 403 message error fortunately I am running a word back up so was able to retrieve it and post it again.
I hate unnecessary confrontation LIFE is too important
xxx
Mandy Mo
Edited by member 23 Sep 2014 at 18:15
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User
Every time I try to post a reply recently using Mozilla Firefox (my preferred browser), I get 'Access Denied' and am asked to sign in as it has the effect of signing me out. Anybody else had this problem with Firefox? I do have cookies disabled but this has been the case for quite some time and I was still able to post until a few weeks ago. Am using Chrome here which has cookies enabled so hopefully this will work.
Barry |
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Last input regarding issue resolvement was 5 September, it seems.
Dave
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Carol,
I have just undergone HDR brachytherapy on 19 Sep and given the shortage of information on this in the forums thought it would be helpful to give an account of my experience to others either embarking on the treatment or considering it. I typed in a full page of information, hit the POST button and was told I was not connected. Too right. If this is how the site works then it seems to me money has been wasted. All my hard work has been in vain and it's taken me since 21 Sep to calm down from my irritation to make this complaint. Something has got to be done soon.
User
Originally Posted by: Online Community MemberSo let me get this right. We have to sit and observe all the moaning about this site and then be criticised for pointing out its negativity and be forced to close a thread that was started (by me) to deliberately avoid the moaning which had become endemic. I commented because this thread had been hijacked for negative reflections rather than its purpose which was provide feedback to PCUK on issues to resolve. I do not need a lecture on my contribution or to be told that I should close my own thread. I believe we have moderators for that purpose.
Stay with us Paul, you are one of the most thoughtful and diligent contributors here and your experience is so important to new members with a similar diagnosis. Anyway, we are all waiting to hear about the wedding - it must be in the next 3 or 4 weeks?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Oh go on then! Yes three weeks now but have consultant appointment first next week!
User
Wedding? Do I need a hat?
Dave
PS Echo Lyn's comments above
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Yes Dave a hat is required and Lyn has a very fetching red creation and if you ask nicely she may lend it to you.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
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Hi Sadie,
Thanks for that.
One question:
In 'All Topics/Treatment' there is a sub-section entitled 'TREATMENT TO GET RID OF CANCER'.
I for one find myself very uncomfortable posting under such a heading.
It seems very inappropriate.
I would think a large number of us with locally advanced cancer have had to go the HT, RT route, knowing there won't be a cure, but that with luck we can die WITH PCa and NOT BECAUSE OF IT.
George
Edited by member 25 Sep 2014 at 17:41
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I’ve just managed to join after a lot of trying.
I’m using an iPad (iOS 13.4.1) and Safari as a browser. Very frustrating to fill out the Join form and find, after filling in all of the details that username already exists. I tried again and again, even with a user name that could not possibly exist! Then cleared the cache and tried again with the same result. Eventually I tried the same thing, with same obscure username but this time using Firefox as the web browser. I could register without problems.
Not sure if the issue is with your coding or more likely with Apple, but glad to have got through the first hurdle!