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Dads small cell cancer

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User

Posted 11 May 2017 at 01:44

Fingers crossed that he rallies again Cookie Girl - he has pulled it out of the hat before.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 11 May 2017 at 06:15

Thank you both we thought last week end he was in trouble.so pale and exhausted.Weds he seemed more like himself.You are right Lyn he has been hospitalised a few times and recovered.A family member told me his bowels went last week.I'm not sure if it was a one off though.Mum is being so strong. Love to all
Paula xx

User

Posted 11 May 2017 at 08:18

Sorry dad is going through the mill again cookie girl and I am really sorry that you don't get enough support from your co-workers.

What goes round comes round. I wonder what the future holds for the person who made the tactless comment.

I hope dad can get over this latest problem.

Torehb, I am also sad to read your latest update but at least you all know where you stand now and can spend the remaining time re-living good memories and making more.

Keep strong both of you. Your dads have children to be proud of

We can't control the winds - but we can adjust our sails

User

Posted 11 May 2017 at 21:29

Hi Cookiegirl,
I have got everything crossed that dad can come through this infection , more than most I understand the ups and downs of this disease ( the roller coaster ) at this stage one minute we are up and then we are down with not much warning in between.
Your dad has been remarkable he has fought worse .
Sending you all lots of love .
BFN
Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 13 May 2017 at 09:45

Quick update Dad is feeling much better in himself.He did have a near fall in the garden as his legs are unsteady.He seems to be taking regular oramorph and loads of other pills.
Last weekend I didn't think he would be here now.He even managed some food.He is an amazing man who refuses to give up.Strange to think he could barey move last weekend.
The lady who !made the comment s own parents died of cancer and said she fell apart when her dad died.
Torenib so sorry about your lovely Dad.I hope my Dads almost five yr survival has given you hope.Try not to google anything and enjoy the time you have.I hope you have longer than predicted like we have.
Thank you all for your support it means so much from people who know what were going through Paula xx

User

Posted 01 Aug 2017 at 09:06

Well Dad just had another birthday....five hrs since he was told he had small cell cancer while supporting Mum who was having major surgery for advance d cancer.
He was scanned to see if radiotherapy would help with his back pain caused by the cancer in his spine.The consultant told Dad he couldn't believe he was still here two years since being given months this live.
byway

Well the cancer is everywhere now as I would expect and until recently he was driving short distances and using his walking frame.
This last week he has deteriorated badly.The lymphodema that used to reduce with diuretics has worsened.His arms are black and bleed at the he slightest knock.
He was sent for treatment for the lymphodema by compress and compression bandages.He now can't do the stairs as his legs are so swollen and leak fluid into his clothing.The hospice nurses are going today to see him and he is asking for a hospital bed as he has been sleeping erraticly in a chair downstairs which isn't ideal and the fluid is built up in his abdomen.
Does anyone know how long it takes to organise a hospital bed and how long he may have once he is bed bound?
Typical Dad is still in good oh enough spirits he misses getting out and about and realises he has had far more time than expected.Mum is being exceptionally strong.....love to all Paula

User

Posted 01 Aug 2017 at 10:31

Hi Paula
Lovely to hear from you as ever , even though tragic circumstances !! I can't advise on your issue but am sending wishes and strength to all of you.

User

Posted 01 Aug 2017 at 10:51

Hi and thank you.I haven't been on here lately as I've been doing 60 weeks at work.I have quit to spend more time helping my parents while I can and have a lesser hr job locally as I didn't see my lovely dad for three weeks.
maybe there are no answers and I hope the hospice team and gp can help my dear Dad.
Writing on her helps enormously as sadly we are not alone on this journey and all too many lovely men and their families have been where we are now.
On a positive note Dad had given this disease a run for its money and had time to recently buy gifts for all 13/ of their grandchildren. I thank each and everyone who has cheered him on from the sidelines and offered me support too xx

User

Posted 01 Aug 2017 at 18:37

Dads been rushed to hospital by ambulance suspected spinal cord compression.

User

Posted 02 Aug 2017 at 00:19

After all he has been through! I hope they are just being cautious and he is home again soon.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 Aug 2017 at 06:21

Thanks !ynn so do I xx

User

Posted 03 Aug 2017 at 00:11

From someone who has been here almost from the start of your journey I wish you love and strength through this next part. Your mum and dad are an inspiration to so many .
Lots of love
Julie
BFN
Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 03 Aug 2017 at 15:51

Dads still being treated in hospital Today he gets transferred by ambulance to a cancer specialist hospital for radiotherapy on his spine.They are trying to sort his leaking legs out and the hospital bed has arrived at Mums.
Five whole years since being diagnosed now.Dad is tired but in good spirits.I started a new job today which kept me distracted.
Thank you Julie for all your support xx Paula xx

User

Posted 03 Aug 2017 at 22:47

Paula
I don't come her so often now but wow, your dad! What a man. I know things aren't great but he is a brilliantl example of survival of small cell, which we all collectively breathe in when we see it mentioned. May he continue to outlive all expeditions xxxxx
Love Devonmaid xxxx

User

Posted 08 Aug 2017 at 07:50

Update....Dads still in hospital and going to another for radiotherapy.He has oramorph for pain and has injections in his stomach to reduce his deep vein thrombosis.According to blood tests it is still there.Stressful times as I started.a.new job so haven't seen him yet.He was told that a re went MRI that the cancer is everywhere.which we would suspect with two hrs no treatment.love to all on here xxx

User

Posted 08 Aug 2017 at 08:15

So sorry about this latest upset cookiegirl. I hope the new job fits in well with your need to support your mum and dad. Thinking of you

We can't control the winds - but we can adjust our sails

User

Posted 08 Aug 2017 at 10:33

Feeling for you Paula
Trying to balance the lot. Easy to say , but I hope you can stay strong for everyone. You ladies seem excellent at coping with things xx

User

Posted 08 Aug 2017 at 15:23

Paula,

Just to let you know I'm thinking of you and your family at this time. I don't feel very good with words at the moment but I just wanted to let you know I care.

Steve x

User

Posted 08 Aug 2017 at 22:37

Thank you all so much with all you have to cope with yourselves your support is very much valued.I feel qguilty that I don't fully follow all of your journeys.I post on here to get it off my chest and also to hopefully give others hope.when I first came on here the outlook was months not hrs.The poor husbands and fathers of others went too soon.
I don't.want to see.My lovely.Dad.suffer much more however he has had months if not years of relatively.good health.
He has raised awareness for prostate.cancer too.
I only hope our family and the medical team can help him in this last chapter to return home again and be cared for by us xx

User

Posted 09 Aug 2017 at 06:04

There's no need to feel guilty cookiegirl, although I do understand how you feel.

We all have our own paths to follow, for some of us it's not such a wobbly journey and we have an element of time available to enable us to share.

Even those among us who don't have that luxury will (and have and do) offer what we're good at. A listening ear and a shoulder to lean on.

So, rant away my dear and offload some of that anxiety.

I am sure that you will all do your best (and that is all you can do) to make dad as comfortable as can be during the closing chapters. You care and you're there, even if it isn't as often as you'd like it to be. I'm sure your dad appreciates that.

None of us are superhuman cookiegirl and can only do what we can

We can't control the winds - but we can adjust our sails

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