I'm interested in conversations about and I want to talk about

Know exactly what you want?

Show search

Notification

Error

Dads small cell cancer

Email this conversation Print this conversation

User

Posted 21 Sep 2016 at 18:27

Dad has had a great few months getting out and about and welcomed another grandchild too.He is now in hospital with a leg infection.I think the thinning skin and water retention are the cause.He is on a drip and the infection did get a bit worse.I have everything crossed he will be home soon.Love to all on here xx

User

Posted 21 Sep 2016 at 18:48

Hello Paula, Thanks for the update.

Glad that dad had improved enough to get out and about a bit, although not so good that he is now in hospital with a leg infection. I hope he is being well looked after.

I bet he was dead chuffed with the new baby.

Fingers crossed for an early homecoming so that he can enjoy what little is left of the summer weather (if you have any where you are that is!!)

*******

We can't control the winds - but we can adjust our sails

User

Posted 21 Sep 2016 at 19:01

Hi Paula
Glad things are relatively ok. Really great to hear from you again x

User

Posted 21 Sep 2016 at 20:03

Thank you both.Ive been really busy with my new job so not much spare time.
I hope Dads journey so far will give hope to anyone diagnosed with small cell and adenoma ? prostate cancer as when he was diagnosed 4 yrs ago all i could find were people whose husbands and fathers died months after diagnosis.:(
I apologise for not replying other peoples threads too although i wish everyone well on their journey xx Paula

User

Posted 27 Sep 2016 at 06:05

Dads still in hospital with an infection in both legs.His temp is better and he sounds in good spirits.A few antibiotics have been given by IV.They did a ct scan which went wrong when the dye went into his hand rather than the vein and caused his hand to swell so they cut his wedding ring off,
we are still unsure when he will be discharged yet.Love to all Paula xx

User

Posted 27 Sep 2016 at 06:09

Thanks for the update Paula. Dad certainly isn't having it easy is he, bless him.

Make sure you take care of yourself while taking caring of everyone else.

*****

We can't control the winds - but we can adjust our sails

User

Posted 09 Oct 2016 at 21:38

Hi Dads stll has an infection and swollen legs,His steriods have been stopped i believe and statins too,Mum called the hospice nurse as Dad was shaking with a temp,They went out in the night to check on him and change antibiotics,
Its been a month of taking antibiotics all in all,Obviously i am worried,Love to all on here.

User

Posted 09 Oct 2016 at 22:42

Hi Paula,

Fingers crossed that this Can be sorted I totally understand that you are worried . Hoping the new job is happy to give you time out to visit your dad.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 10 Oct 2016 at 08:45

Hope the new antibiotics kick in quickly Paula. IT must be a terrible worry for you all.

XXXX

Sandra

******

We can't control the winds - but we can adjust our sails

User

Posted 10 Oct 2016 at 10:40

TURNING THE PAGE

We can't control the winds - but we can adjust our sails

User

Posted 10 Oct 2016 at 10:41

TURNING THE PAGE AGAIN

We can't control the winds - but we can adjust our sails

User

Posted 11 Oct 2016 at 10:41

Dad seems no better so Mum is calling the GP again.Obviously worried for him and ive offered help although Mum assures me they have food and shopping xx

User

Posted 23 Feb 2017 at 18:57

I have been reading this thread and with your last post being in October, I can only pray that your dad is still holding on. My father in law, who is almost 74, was diagnosed with stage 4 gleason 10 prostate cancer February of last year. We just found out last week he now has small cell carcinoma. This is so heart wrenching. Today he went in and they are going to do a full body scan and MRI on his brain next week. His memory/thought process has gotten so bad. This small cell carcinoma is the worst news we could have gotten. We do know last year that his cancer had spread to his spine, bladder, ribs, lymph nodes and actually his whole pelvic region. He did a trial of Chemo a year ago and it almost killed him so now he is only on palliative care. They took him off of his xtandi today which I know is going to upset him. I can only hope that it makes him feel better to not be on it. Do you have any advice? He lives alone and has 4 kids. My husband is the only one he really wants but he gets upset when my husband corrects him. Most things my husband lets slide but when it is important things, my husband feels the need to explain and then his dad just gets upset. This is going to be a long road and I am praying that they can spare my father in law of terrible pain. :(

User

Posted 23 Feb 2017 at 21:24

Hi Lisalou, Cookiegirl hasn't been on the site since the day after her last post; I suspect her dad died within a few days as he was clearly in the very final stages of the disease.

I am sorry that your father-in-law has now been diagnosed with small cell; as you have obviously realised, it is a dreadful version because it is so hard to treat and the end can be very quick, especially if it has gone to his lungs, liver or brain. Has he been referred to a hospice or Macmillan service? If not, you need to get that done asap as they will hopefully have day care, alternative therapies, support for your husband etc plus generally the hospice teams are far better at pain management than GPs or hospitals are. The hospice will also have a social worker who can advise you on how to apply for benefits for f-i-l, which he is now entitled to because he is terminally ill. This money is to help pay for any practical things he might need (such as hand rails, mobility scooter, etc) or to pay towards any care he might need.

Edited by member 24 Feb 2017 at 14:43 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 24 Feb 2017 at 14:00

He has not been referred to hospice or Macmillan service (I have never heard of this. We are in the US so maybe that is why. I believe he would have to go through the hospice program here). He is very difficult man and will not do this until he feels he is ready. He is very bull headed and doesn't want people running his life. Honestly, he is in denial at how bad his cancer his. He does not understand that he now has small cell carcinoma. His oncologist is not really explaining it to him because he knows he will not understand. They have to put things very simply for him. My husband is his power of attorney so he is watching closely. I think after we receive the results next Tuesday on the scans my husband will have to take steps as you have stated above. I very much appreciate the information and I will pass this on to my husband. This is a terrible disease. You want your family member around as long as you can have them but you don't want to see the pain that is coming for them. You just hope and pray that it goes fast.

Edited by member 24 Feb 2017 at 16:05 | Reason: Not specified

User

Posted 27 Feb 2017 at 20:52

They were supposed to do an mri scan tomorrow but we had him in the emergency room this past Friday night. They did a head ct scan and said that they found nothing (I am assuming they were looking for signs of a stroke). Now the office is not doing the MRI tomorrow because they said they learned what they needed to know from the ct scan. They did however find a thoracic aneurism which they said is not terrible but to let his cardiologist know about it. So much going on and none of it is encouraging.

User

Posted 28 Feb 2017 at 00:28

Ah, I didn't realise you were in the States Lisa. Ignore most of what I said about benefits and Macmillan nurses; unfortunately they are UK things :-(

Re the head scan, they may have been checking that there was no sign of mets to the brain or skull - has he got some weird side effects? Whatever they were looking for, it is good news that they didn't find it, I think?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 28 Feb 2017 at 01:17

Hi All,

I'm a bit in shock as my Dad age 71 was just diagnosed with small cell prostate cancer today. Everything I'm reading is not very positive! We see oncologist this week. It's such a shock as my Dad is so healthy and just had great blood work results always had normal Psa. I'm very scared! Does anyone know if any new treatment approaches? They are talking chemo, but are there any others? Thanks in advance,

User

Posted 28 Feb 2017 at 09:07

Hello bnelson and welcome to the site.

I don't know anything about small cell prostate cancer so cannot advise.

You are welcome to post on this page as you have, but it might be easier for you in the future if you start again with your own thread as sometimes a person's query will be lost among the original poster's thread.

I'm sure cookiegirl, lisalou and Lyn will answer you though

I'm just thinking that it might make the site easier for you to navigate back to your posts if you keep yours separate.

We can't control the winds - but we can adjust our sails

User

Posted 28 Feb 2017 at 10:00

I think Johsan is right, it would be better if both Lisa and bnelson started their own threads - it might be very upsetting for cookie girl if she suddenly starts getting notifications from the forum when she is probably still grieving.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.