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Dads small cell cancer

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User
Posted 02 Mar 2017 at 14:10

This thread has been so helpful to me just reading it and the stories and the struggles of everyone here helps me not feel alone. My dad has been diagnosed with small cell about 2 weeks ago, but they suspect that he has had it for the past 2 years or had some kind of the prostate cancer. he is 85 and i am the only caregiver as he is divorced and my brother is not very helpful. I lost my job 2 months ago which in some way is a blessing in disguise as i can spend more time with him and manage his doc appointments. I relate to LisaLou as my father is very difficult man, he does not trust doctors , thinks they just want to kill him or make money. We are here in Florida USA and I my self am having a very hard time dealing with all of this without breaking down .
Any words from you here will be helpful and i really don't have many people i can talk to :-(((
thank you again for this thread and the kind people on here.

User
Posted 02 Mar 2017 at 14:11

LisaLou , 


I am in similar situation with my father who is 85 and hard headed and stubborn and does not trust doctors and is in denial and refuses to accept his situation. 


I would appreciate your comments and updates


 

User
Posted 02 Mar 2017 at 18:17

But ideally those comments and updates need to be on torebh's thread rather than this one. I am sure nobody would want to cause any distress to cookiegirl by keeping her thread live. She hasn't logged on for many months but it is possible that she receives an e-mail alert every time one of us posts anything :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 11 Mar 2017 at 21:00

Hi everyone.good news is Dads daffodils have come up around the rugby club and Dad is still here to see them!! He has recently been in good health walking around etc.He and mum celebrated their 51st anniversary.unbelievable that he was given months to live in 2015.I wished I hadn't worried so much when he WS diagnosed in 2012..Yes he has been very I'll several times but he is still here thanks to chemotherapy. I hope his story gives hope to others diagnosed with this rare type.they thought he had the usual type of prostate cancer first for perhaps two yrs before the small cell type.it was mum who spotted the symptoms while battling her own stage 4 cancer. My heart goes out to everyone whose dear Dad's are suffering and I will keep my fingers crossed for you.Thank you Lynn for your continued support.Perhaps the newcomers should start their own threads that way anyone searching for support can gain more advice.love to all Paula xx

User
Posted 11 Mar 2017 at 22:01

Hi Paula
Despite the awfulness of it all I'm so pleased you all seem to have reached a comfortable place. Hope for everyone and a very well kept post for sufferers to follow. Your dad is so lucky to have such a devoted genuinely caring daughter. Best continued wishes
Chris

User
Posted 11 Mar 2017 at 23:01

Well that is wonderful news Cookiegirl, my heart sank when I saw how long it was since you had checked in.

Spring is such a beautiful time, and always filled with hope xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 12 Mar 2017 at 05:20

Thank you for the positive update Paula.

Like Lyn I was concerned when I looked at new conversations to see you had posted so I was very pleased to see the update.

I know you must be so proud of your parents but equally, they have every right to be proud of their caring and supportive daughter.

We can't control the winds - but we can adjust our sails
User
Posted 12 Mar 2017 at 08:34
I have no idea why we've been so lucky.mum will be ten yrs since stage 4 diagnosis and Dad five if they make august.Living proof that cancer is a journey with so many unpredictable twists and turns. I don't dwell on the future now just celebrate the fact they ate here.Thank you all for your replies it means so much from people who understand xx
User
Posted 17 Mar 2017 at 01:19
Ahhh Paula,
So lovely to hear from you and with such a positive update like Lyn I feared the worst when you hadn't posted for such a long time. As you say your mum and dad are such an inspiration to so many hearing the worst news . I hope your new job continues to go well also.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
User
Posted 17 Mar 2017 at 08:43
Paula, just seeing you post that your Dad is still here has brought a tear of joy to my eye. So happy for you and family. I do hope your new job has worked out well now as the one you had a while back sounded like a horrible place to be. Keep posting even if it's just good stuff as gives us all hope.

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 02 Apr 2017 at 14:27

Paula, 


So happy to hear your dad is doing well. May i ask you how old he is ? I am sorry if you mentioned and i missed it. My dad was just diagnosed in January and i am devastated.  they tell me at the most 6 months and I know you dad maybe an exception but i am very curious what treatment they used for him. 


I would so very much appreciate any insight from you. 


Thanks


Tee

User
Posted 02 Apr 2017 at 14:35

Dear Paula, 


My dad was just diagnosed in January and although i know your dads situations is probably and exception it does give me some hope. may i ask how old your dad is ? my dad is 83 and they are saying he should do CHEMO and i am so afraid that at his age he may not take it. do you have any thoughts ? 


bless you and thanks for sharing your story and journey

User
Posted 02 Apr 2017 at 14:36

Dear Paula, 


My dad was just diagnosed in January and although i know your dads situations is probably and exception it does give me some hope. may i ask how old your dad is ? my dad is 83 and they are saying he should do CHEMO and i am so afraid that at his age he may not take it. do you have any thoughts ? 


bless you and thanks for sharing your story and journey

User
Posted 02 Apr 2017 at 14:43

Hi torehb, my father in law had chemo at the age of 80 and sailed through apart from not being allowed to go to the pub for 2 or 3 days each cycle which he found intensely irritating. It did cause some heart damage a couple of years down the line but he lived a very full and happy 3 years after the chemo. In his case, it was never confirmed he had small cell but that is the suspicion. The problem with small cell is that hormone treatments don't generally work so if your dad didn't have chemo, are they offering anything instead? The question of chemo or no chemo has to be weighed against a decision to just let nature take its course - not a happy thought.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 02 Apr 2017 at 15:28

Lyn,


We are considering CHEMO but i think he is scared of the consequences. but after reading Paula i am thinking maybe we should try. the only thing is that my father is alone and now i have him living with me i am alone and don't have much support, so i think that makes a difference when you have many people around you. Anyway it gives me hope but my dad is not a good patient he complains and does not trust doctors and i think is going through depression which is understandable. but reading everyone here has been so much help and i look forward to following this thread and all its kind people. 


xoxo

User
Posted 02 Apr 2017 at 16:02

I am trying to post a new conversation but its not working :-( or i can't find it. i named it SAMLL CELL PROSTATE CANCER USA
does anyone see it ? how do i look for it ?

User
Posted 02 Apr 2017 at 17:37

Better to stick with your existing thread and just keep updating that. The new thread you have started will appear once the moderators have checked it - sometimes than can take a couple hours, especially at the weekend.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 04 Apr 2017 at 13:51

After talking to another oncologist for a second opinion today he made me feel as if in my dad's case its best to let nature take its course. he would not put his father through it, and that is what i asked him. :-( oddly enough dad felt very good about his answer as i think it was a relief for him not to have to do CHEMO. 


 

User
Posted 10 May 2017 at 21:54
Hi I'm so sorry to read. about your lovely Dad. Mine has done far better than expected although he had had some bad times and many infections.
Sadly he has been very unwell the last two weeks.I came home from hold to find he had been taken unwell and become exhausted and taking his liquid morphine for pain.Twice he could barely move and thought this is it.....this weekend he was confused and his arms were shaking involuntarily.not eating or hardly drinking.Mon I heard the hospice nurse had said this is what we were expecting.she insisted he saw the doc so the poor man had to travel to the surgery!!! He has an I fe tion which has become borderline sepsis.Today he had more colour and moved around.we sat in the garden.Perhaps this is an infection he can shake perhaps not.I made a minor mistake at work and when I pointed out I had hardly slept for concern over dad I was told why worry when you know what the outcome will be....angry or what.
Day for day. Love to all and thanks for all the support and cheering my father on xx
User
Posted 10 May 2017 at 22:27

Always think about you. Hang on in there girl. And Karma will get the prick that made that comment x

 
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