I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error


Dads small cell cancer

User
Posted 03 Jan 2016 at 11:39
Hi Paula

water retention is a very common problem in cancer patients, as Lyn has said it is very important to establish if it is Oedema or steroid bloating. Judging by previous information I would be inclined to think that it is Oedema.

There are several causes of this, Lyn has mentioned and explained Lymphodema and how to tell the difference between this and steroidal bloating.

If your Dad has swollen legs or arms it is a really good idea to ask your medical team if he should slightly elevate these whenever possible, so legs on a footstool or, if you have a recliner,raise the lower support. Keep his arms up on the arm rests of the chair away from his sides.

At night in bed he may need to put a small pillow below his legs or arms.

There are also special elasticated stockings, or bandages that can be used to gently push the water back from the area just below the skin back into the blood vessesls so that it gets transported away.

It is vital that he continues to take in fluids and as Lyn also says checking his urinary output is an indicator of how well Dad is processing fluids. Your medical team can advise you how best to do this and what quantities you should be aiming for.

One of the later stage issues is when protein levels (albumin) become very low this is another potential cause of water retention.

If Dad is retaining water he probably will be finding that standing and moving about is harder, try to encourage him to do a little but often.

Right now just having you nearby to give him and your Mum as much love and support as you can will be the best tonic you can give.

You are in my thoughts

warmest wishes

xxx

Mo

User
Posted 04 Jan 2016 at 20:10

Thank you both he has anther blood test this week.He has slept on the settee a few times as the swelling does go down a bit when his leg is raised,As far as i know the pain is at the top and sometimes his hips.I hate to see him shuffling around but i guess he needs to keep moving,Mum said standing is hard for him.
My son and daughter are going to see him with some much loved toffee tomorrow so that should raise his spirits.He cant drive due to his ooramorph he has been taking.We offered to take the xmas tree down but perhaps they both wanted to do it in their own time,
I may call the hospice nurse if he is still struggling if mum hasnt, many thanks Paula xx

User
Posted 07 Jan 2016 at 07:20

GP and hospice nurse viisited dad.He has to have elastic stocking s and diretics.His protein in his blood is low too.Gp told him he should see his birthday in July but ive no idea if she was giving him hope.Lets see what these new changes do love to all Paula xx

User
Posted 16 Jan 2016 at 13:48

Good news,Dad has diretics and has been measured for elasticated stockings and has felt so well he brought mum to the place i work for lunch,Mum had her onco appointment and is ok and goes back in the summer,they have planned a 50th wedding do at a nearby hotel as dad has been advised not to travel far so 40 of us (large family ha ha) are going for a meal for a fantastic couple on a day cancer cant spoil.i never in a million yrs thought either would make it and so we have 5 weeks to keep dad well.It is also mums birthday,the hospice nurse doc and nurse have been coming out to Dad,Please keep your fingers crossed for him and Mum,love to all Paula xx

User
Posted 16 Jan 2016 at 13:55

Paula that's awesome. I'm delighted for you all. There will be 40 of you physically there and then all of us mentally there with you.
I LOVE a party whoop whoop xx
Chris

User
Posted 16 Jan 2016 at 14:06

Party party well done to you all
Regards
Nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 16 Jan 2016 at 17:06

So pleased for you Paula. I'll keep everything crossed for all of you. x

We can't control the winds - but we can adjust our sails
User
Posted 16 Jan 2016 at 20:36

Glad Dad is more comfortable. Fingers crossed for the Party !! Best wishes,

 

Fiona.

User
Posted 16 Jan 2016 at 20:56
Paula

hi

after all you and your family have been through this is lovely news, Lots of nurturing, love and caring now with just 5 weeks until the party. You all truly deserve to have the best party ever.

I will be there with you in spirit every step of the way

xxx

Mo

User
Posted 17 Jan 2016 at 00:51

Hi Paula,

Really good news.

I hope the party is really special for you all.

You deserve happy times.

Steve x

User
Posted 17 Jan 2016 at 10:02

Ahh thank you all it means so much,We havent had any family weddings or parties in yrs,Dad is a real trooper organising it,

Mum is in her element choosing new clothes ha ha,Lots of family photos will be taken and Dad will be in the pics not behind his beloved camera,Best invitation ive had ever :) xx

User
Posted 20 Jan 2016 at 22:52
Fingers and toes crossed here for a memorable day Paula

Lots of love

Allison xxx

User
Posted 21 Jan 2016 at 22:06
Ahhh Paula, you and your family so deserve something to look forward too. Happy planning .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 25 Jan 2016 at 10:33

Golden sugared almonds are on order and Mum let slip she has contacted the local council and the "friday club" who are men who keep the grounds of the rugby club where my brother and nephew play and dad is part of helping out and taking hundreds of photos for years.Between them they have filled the roundabout opposite the club with daffodil bulbs as a memorial to him.I think it is lovely and he is hoping to see them flower.
All lovely things that are a distraction from all the medical stuff of the last few years.xx

User
Posted 16 Mar 2016 at 19:29

The gplden wedding do was a huge sucess.My nephew 9 played a clarinet and one of my brothers who is an actor and singer sang forever young which almost had us in tears !!.Dad thanked everyone including docs and oncologists for all their support.The meal was lovely and the last month Dad has been going to buy bread again and following rugby.

His daffodils surround the local rugby club about 300 Mum had planted.I cant believe he is so well.the hospice nurse comes out every 2 weeks now to look for changes and offer support.Love to all on here and i hope the sunshine is lifting a few spirits xx

Paula xx

User
Posted 16 Mar 2016 at 20:30

So pleased to read this Paula - every happy moment gets tucked away in your hearts for safe keeping x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Mar 2016 at 20:33
So lovely to read this Paula, thrilled that the party went well too. So happy to hear that dad has improved,

With love

Devonmaid

User
Posted 16 Mar 2016 at 20:43
Paula

big smile from me

xxx

Mo

User
Posted 16 Mar 2016 at 22:21

Wow Paula
Time flies by. I'm so glad your party was a success and that your dad is good. Warmed my cockles it has xx

User
Posted 29 Apr 2016 at 14:56

Hi all i have a quick question
.Dad has been really well the last few weeks and ive been really busy at work.However this week he pricked his leg and the fluid wouldnt stop coming out.The gp sent a nurse who said she usually only visited bedridden patients.she bandaged him up and he has a diretic pill each day now.His hands are leaking too and bleeding with dark patches on them.He has a sore thumb that hasnt healed in weeks despite being cauterised.
Is this leaking anything more significant as he feels well and has a blood test every couple of weeks to check kidney function as as a tumour was found there last yr.
He is assumming it is the cancer however we have no experience of this.His skin tears easily and he is on lots of pills.i think it was 26.Love to all and i hope the bank holiday is a good one for you and your loved ones. xx

 
Forum Jump  
©2025 Prostate Cancer UK